Attention Board: To make your annual donation, click here
Regional Board of Directors
We have several volunteer opportunities for our three wonderful regional boards! For a Full listing of the Greater Boston, Central MA, and Western MA Regional Board opportunities and membership requirements click here.
You Might Find Something Accessible to Be Thankful for Within this List
Monday, November 21, 2022, 4:58 PM
This is my favorite time of year. I love reflecting on the year and recognizing what I’m thank…
This is my favorite time of year. I love reflecting on the year and recognizing what I’m thankful for. And then, once Thanksgiving is over, the days start leading up to New Year’s Eve, which symbolizes the closing of a chapter and the beginning of a new one. For me, a new year feels like a clean slate and a fresh start, an opportunity to look at it from a brand-new lens.
I started 2022 feeling cautiously optimistic. I wrote a post like this before last year, focusing on the pandemic. It was very therapeutic to write it all down — to think to myself, “Okay, it was a rough year, but I’m going to sit here and I’m going to find those silver linings.”
This year feels like a breath of fresh air compared to the last two. It wasn’t perfect — no year ever is — but sitting down and finding its silver linings, expressing what I’m thankful for, comes much, much easier in 2022. So here is my reflection in all its glory!
I’m thankful for my friendships. I wrote a post about this recently but truly, I can’t stress this enough. The first thing that comes to mind when I think of this year are my friends, especially the virtual ones. My friends are spread far and wide, and this year I strengthened so many connections and found routines in the day-to-day that really helped with my mental health. I had monthly movie nights with friends. I had virtual coffee dates on Saturday mornings. I had SharePlay sessions with a friend every time an album came out by an artist that we were both crazy for. These small, seemingly insignificant moments got me through some really hard times, simply because they were things that I was able to look forward to.
I’ve grown much more confident in my travel abilities. It’s been six months since my MetroLift experience to the airport and sometimes I still catch myself thinking about it. A year ago, there’s no way I would’ve felt confident enough to try that. I am an anxious traveler, and a year ago, I would’ve let that anxiety get the better of me and insist that we come up with a travel plan that does not involve relying on para-transit, maybe asking a friend to drive me instead. But now? I trusted that Juan knew the system, and I trusted myself that I was independent enough and courageous enough to try something new. And so I did it, and it went well, and I felt liberated enough to write about it.
I stayed in Houston for a month and it was a success! Juan and I have been in a long-distance relationship for so long that we knew that one of us would eventually need to relocate. I’d already fallen in love with the Houston area, but I wanted to make sure he and I could live under the same roof before making the big decision. During that month-long visit we had a lot of open and honest conversations about our relationship, cohabitation, and our expectations. And I did a lot of networking, too. I checked out the transportation system, the way strangers treated me as a person with a disability, and other things like that gave me a glimpse of what my life in Houston might be like. And I loved that life.
I’ve grown grateful to people who take the time to provide equal opportunities for blind and visually-impaired individuals, such as the creators of audiovault.net. This site provides free TV shows and movies guaranteed to be audio described. I prefer this over going to movie theaters — I’ve had far too many bad experiences at movie theaters (sometimes giving us the wrong audio description device, other times giving us a device that didn’t work and needed to be fixed). I’ve watched so, so many more movies this past year knowing I can count on audiovault to provide us with access to accessible content.
I’m thankful for my family’s efforts to include me. Example: during season 41 of the TV show Survivor, CBS started providing audio description. That means that every week now when I watch survivor with my parents, my mom turns on the audio description. That way, she no longer has to describe and can focus a bit more on the show, and I know precisely what’s going on in the show without needing extra help from family members.
Thanks in large part to the YouTube channel “Yoga with Adriene,” I now do yoga every day. I occasionally turn to Sara Beth Yoga. Both of these channels do a great job at describing yoga poses and, if you aren’t familiar with the practice, have beginner videos as well. Therapists have recommended yoga to me for anxiety, and ever since I started doing yoga every day with my mom, it has become part of my day and has done wonders for my mental health.
Lastly, I discovered a good (and very accessible) journaling app called Day One. I wanted to get back into journaling. This app allows me to journal whenever and wherever I am, and I love how it feels to take time to write down my feelings.
Gratitude is something I constantly work on. On bad days, I could always have the mindset that the entire day was awful, and “at least there’s tomorrow.” I’m learning now that there’s always something to be thankful for, even if it takes some time. I think that’s something we should all strive for.
I hope you all have a happy Thanksgiving, enjoy the rest of 2022, and have a hopeful, positive opening to 2023. Happy holidays!
It’s Not Political, It’s Access: The Disability Community Supports Easier Voting Access
Tuesday, November 8, 2022, 10:05 AM
While selfishly I’ve always thought people with disabilities – the community of which I identify – w…
While selfishly I’ve always thought people with disabilities – the community of which I identify – were more “thoughtful,” specifically in our opinion of access, now I can proclaim our thoughtfulness as fact!
As a Project Manager for Change for Balance, a boutique strategic communications company, and as a self-proclaimed “connector,” I brought together our client, Easterseals, with my friends at AARP with the idea of commissioning a voter survey among our two shared constituencies – people with disabilities and older Americans aged 50+.
And guess what? We did it! You can check out the full results of the Easterseals and AARP survey here.
But, if you’ll allow me to get straight to the results this “connector” found interesting, stick with me.
With strong bipartisan support – I just knew this would be true – people with disabilities aged 50+ support expanding voting access, including voting by mail, voting absentee, and ballot drop boxes.
While much of the media pits the major parties at odds on many issues, fundamental access to voting is a united issue for people with disabilities 50 and older. For a very diverse and intersectional population, that’s nice. Simply put, it’s not political – it’s all about access!
Tony Coelho, the esteemed former United States Congressman and primary sponsor of the Americans with Disabilities Act, puts it perfectly “Voting access is not politically motivated as it is supported by Democrats and Republicans alike. In that regard it’s like passing of the Americans with Disabilities Act.”
Another interesting result – and this applies mostly to in-person voting – is when given a list of multiple accommodation options, 43% of respondents say they utilize an accommodation when voting.
I’m not good with math, but 43% of what is expected to be 30 million people with disabilities 50+ voting in the midterm election is a lot! Those who require just a little extra help will cast their ballot.
While this survey reveals many other important issues to the disability and older American groups, including inflation and other pocketbook issues, a resounding number of people just want access.
Unfortunately, as discovered in previous conversations with my friends at Rutgers University, it’s likely there are a number of people with disabilities who don’t participate in the elections because of accessibility barriers. “If people with disabilities voted at the same rate as everyone else, there would be 1.75 million more voters,” said Lisa Schur, professor, and co-director of the Rutgers Program for Disability Research.
We know it, Rutgers reinforces it – at the end of the day, the disability community wants greater access, from restaurants to airlines to casting our ballots. And, when we have it, we damn sure will participate!
Two Members of Congress are Putting a Spotlight on Accessibility
Tuesday, November 8, 2022, 9:53 AM
Here’s why it’s cool to have a Senator who uses a wheelchair to get around: she’s an accessibility e…
Here’s why it’s cool to have a Senator who uses a wheelchair to get around: she’s an accessibility expert! Tammy Duckworth, our Senator here in Illinois, served in Iraq and lost both legs when a rocket-propelled grenade struck the helicopter she was co-piloting in 2004. After she won the 2017 election for Senator of the State of Illinois, an article in the Chicago Tribune pointed out that running a Senate campaign involves lots of travel and complicated logistics. From the article:
Duckworth said she and her staff have a pre-event checklist to make sure the site is up to their standards — and that means making sure even the bathrooms are wheelchair accessible.
“I don’t go to any place that isn’t accessible even though I have artificial legs that I can walk in; it’s on principle,” she said. “If someone in a wheelchair can’t get in it, I’m not going to do an event there because just because I can get in there doesn’t mean somebody else can.”
The article said that during her campaign Duckworth often heard from voters who question her ability to serve. A question about using a wheelchair in public during the campaign came up when she first ran for Congress. “I’m not ashamed I’m in a wheelchair. I earned this wheelchair,” she said. “I’ve always insisted it’s not something that we hide.”
A seasoned member of Congress now, Senator Duckworth joined Representative Sarbanes of Maryland last month to introduce the Websites and Software Applications Accessibility Act (S. 4998 , H.R. 9021)) in both houses of Congress. The bill will require employers, state and local governments, and private businesses to make their websites and applications accessible.
Much has been made about how people with disabilities benefitted from digital access during the COVID pandemic, but casual conversations I’ve had with people with visual impairments tell me how frustrated they’ve been with technology, the high number of web sites that are not easy to use if relying on speech software and the hours they’ve wasted trying to make it work.
I am blind, and my husband Mike is sighted. During the pandemic Mike has had to take over much of the on-line ordering we do, the forms we are asked to fill out on line, and the online streaming we do. I get a lot of messages in my in box about plays and concerts and lectures that are available on line free of charge, but when I give that a try, the links and buttons are not accessible – frustrating!
If passed, this new legislation will make it clear that the Americans with Disabilities Act applies to websites and applications. I already know that my Senator will be voting in favor of the bill — she’s the one who introduced it to the Senate! Now it’s time for me to take action and find out who my House member is and contact them. You can do the same by linking to the official U.S. House of Representatives web site.
As co-founder and partner at Change for Balance, a full-service strategic communications and production agency on a life-long journey to change this world for the better, it has always been my goal to foster a diverse and inclusive work environment.
My passion for building equity and allyship across our communities is a personal one. While non-disabled, I am an ally and advocate, and I am a person of color as my parents emigrated from Iran years ago. I understand the extreme value of what an underrepresented perspective can bring to the table and how critical it is to create workplaces where everyone feels a sense of belonging. Plus, in my work as a filmmaker, I’ve been privileged to travel the world to showcase stories that capture people’s hearts and minds – from climate action to animal welfare, human rights and yes, disability inclusion.
When building our workgroup at Change for Balance, we asked ourselves, what community is not properly represented in the workforce? Who is not getting a seat at the table? Who’s missing? After learning that the largest minority group in the United States are the 61+ million Americans living with disabilities, I was shocked to learn that the employment rate for people with disabilities was so extremely low. Thus, our company took on its next mission – HIRE MORE PEOPLE WITH DISABILITIES! And we did!
Straight out of the gate, the first thing I learned working alongside my colleagues with disabilities is that they are extremely talented problem-solvers with valuable perspectives. People with disabilities are constantly seeking out ways to perform tasks which others take for granted, and that outside-the-box style of thinking is essential to growing, improving performance, and elevating our work — companywide!
It is a privilege to work alongside my colleagues with disabilities. The work ethic that comes from the disabled community is unmatched. In addition to enhancing our work at Change for Balance, hiring people with disabilities at our company has also brought my own personal work ethic to new heights as the disabled community encourages me to often think differently, opening my eyes to an entirely different perspective I hadn’t previously encountered.
The pool of talented professionals with disabilities doesn’t stop at Change for Balance – they are everywhere and in all professions. In fact, CFB recently worked with a cast and crew of 70% people with disabilities to produce a nationwide PSA series for Easterseals. We even hired a stylist with a disability!
We realize disability inclusion doesn’t stop at our doors; we can collaborate, hire, and contract with talented professionals with disabilities from across the United States and beyond. The practice of including people in front of and behind the camera will be a priority of CFB now, and in the future, whether we are working on Easterseals content or elsewhere!
My advice to any business or work group looking to take their company to new heights: hire more people with disabilities! They will get the job done.
Having an employer that believes in you – the whole you – is incredibly important for success.
When I suffered a spinal cord injury 15 years ago, I had a tremendous lack of confidence, a trait I know I share with many people with and without disabilities. I didn’t know it at the time, but after graduating college a few years after sustaining my disability, ready to enter the work world for the first time, I needed an additional support system. I needed someone to believe in me at the same time I was trying to believe in myself. What I didn’t know is that support system would be my employer.
In my “short” professional career of nine years, I’ve worked for two tremendous companies who have prioritized disability inclusion, and, in my opinion, it’s made a world of difference – not only just for me, but for all employees. When companies like Change for Balance prioritize inclusion and culture, the “trickle-down effect” is real. Everyone feels included, and deeper and more understanding friendships are formed.
Our partners at Change for Balance may not take all the credit for this, but by being inclusion-minded in our recruitment approach, the composition of our team, and even being thoughtful and strategic to ensure accessibility as we plan meetings and travels, our company is more compassionate, allowing each of us to become the most confident and strongest versions of ourselves.
As an employee, if you are “hitching your wagon” to an employer, I suggest other potential employees seek out a company like Change for Balance, a company who cares about culture and inclusion. No doubt you’ll have a more thoughtful company, but an even more successful career.
The same can be true of many of our clients who have prioritized hiring people with disabilities as part of their DEI&A practices. Among them is Easterseals where Erin Hawley, a talented and accomplished influencer in the disability community, is on the national marketing team as its organization’s Communications and Digital Content Producer. She brings an important and authentic perspective to initiatives on which Easterseals is focused in their mission to advance full equity, inclusion, and access to people with disabilities.
Easterseals Massachusetts 18 Chestnut Street, Suite 200, Worcester, MA 01608 | 800-244-2756 (508) 471-1400 (Assistive Technology) Easterseals and its affiliate organizations are 501(c)(3) nonprofit organizations.
Easterseals Massachusetts 18 Chestnut Street, Suite 200 Worcester, MA 01608 | 800-244-2756 (508) 471-1400 (Assistive Technology) Easterseals and its affiliate organizations are 501(c)(3) nonprofit organizations.