Easter Seals assists members of Congress and their staff, White House and federal agency officials, and representatives of other national interests -- as well as citizens like you -- to understand and act in support of policies and programs that help people with disabilities to live with equality, dignity and independence.
Easter Seals' legislative efforts focus on health care, early intervention, child care, education, employment, housing, supports for older Americans, recreation, assistive technology, transportation, and nonprofit organization operations.
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A new effort is underway in Congress to expand and strengthen ABLE accounts, the savings tool Congress created in 2014 to help families save for the future needs of their children with disabilities.
At the time, Congress limited this important savings tool to only individuals who acquired their disability before turning age 26. Bipartisan legislation in the U.S. Senate (S. 817) and U.S. House of Representatives (H.R. 1874) would increase the age restriction to ensure that more individuals with disabilities are eligible to set money aside for housing, employment training, personal support services, or other services to help improve their health and independence.
The ABLE Age Adjustment Act would also strengthen the sustainability of the current ABLE account program, according to the National Association of State Treasurers.
Beginning in 2019, states must implement a new electronic system to verify the delivery of Medicaid home health and personal care services that require an in-home visit.
There are numerous implementation challenges related to this new federal requirement, including concerns for the privacy of individuals. The U.S. House of Representatives recently approved legislation (H.R. 6042) to delay the electronic visit verification system requirement to ensure proper implementation and to avoid service disruption. A similar bill (S. 2897) in the U.S. Senate would also delay EVV implementation.
While the U.S. House voted in support of the measure, a procedural vote on the Administration's rescission package failed on a 48-50 vote in the U.S. Senate.
On May 8, 2018, President Trump had submitted a $15.4 billion package of rescission cuts for Congress to consider as part of the Congressional Budget and Impoundment Control Act of 1974. The Trump Administration noted that the programs proposed to be cut are “no longer needed” for the purpose for which they were appropriated by Congress and that the funds have been left unspent by federal agencies, in some cases for many years.
Easterseals Statement on the Rescission Package: “Access to health care and treatment is critical to all Americans, particularly children and adults living with disabilities. The Children’s Health Insurance Program has been instrumental in providing children with disabilities and other special health care needs with access to early intervention services and other care, such as immunizations and regular check-ups. Easterseals was pleased that Congress approved and the President signed into law a long-term CHIP extension earlier this year. Easterseals questions the impact proposed CHIP funding cuts will have on the program and the ability of children to access essential care. Funding dedicated to improving children’s health should be reinvested in the program rather than be cut, as proposed in the Administration’s recent rescission package.”
The Consolidated Appropriations Act of 2018 included strong investments for federal programs important to Easterseals and the individuals and families we serve across the country, including:
The legislation also invests in national programs that Easterseals supports, including funding increases for the Maternal and Child Health Block Grant, Social Services Block Grant and Childcare and Development Block Grant. Please view our updated Federal Program Funding Chart for more details on key programs and services.
Thanks to key federal programs, children and adults with disabilities and others are not only meeting key milestones, they are living independently and contributing to their communities. These programs are vital to their success.
Congress is beginning the process for determining FY 2019 funding levels for federal programs that, for example, provide children with disabilities with access to early education and therapy services or help unemployed older adults and at-risk veterans find jobs in their communities. Congress needs to know how important these programs are for children and adults with disabilities and other most-in-need populations.
And you can help make a difference!
TAKE ACTION: Tell Congress to prioritize funding for services for children and adults with disabilities, older adults, and veterans by taking separate action on the following programs:
Thank you in advance for your continued advocacy and support.
The Money Follows the Person (MFP) program is a Medicaid program that has helped more than 75,000 people with disabilities and seniors move from nursing homes and other institutions to the community.
The MFP program, which was first authorized by President George W. Bush in 2005, has expired.
Bipartisan legislation known as the EMPOWER Care Act has been introduced in the U.S. Senate (S. 2227) to extend this vital program. A companion bill, H.R. 5306 - To reauthorize the Money Follows the Person Demonstration Program, was introduced soon in the U.S. House of Representatives.
On Thursday, February 15th, the U.S. House of Representatives voted 225-to-192 to pass the ADA Education and Reform Act (H.R. 620), a bill that would significantly weaken the Americans with Disabilities Act (ADA) and its protections for individuals with disabilities. Thousands of Easterseals and disability advocates sent messages to their Representatives telling them to vote NO on the bill. (See how your Representative voted on H.R. 620.) The bill may now be introduce in the U.S. Senate.
As an original supporter of the ADA, Easterseals believes our country is strongest when all Americans, including individuals with disabilities, can fully participate in and contribute to their communities. The House vote on H.R. 620 was disappointing. Easterseals will continue to work to stop efforts to curb access to public places and essential services or otherwise weaken the Americans with Disabilities Act.
One of every seven Medicaid enrollees is a person with a disability, and now Congress is considering health care proposals that restrict access to critical Medicaid services.
Read more than 100 stories we've collected from parents of children with disabilities and from adults and seniors with disabilities in the Easterseals family who depend on Medicaid for their health, independence and well-being. Join more than 2,000 people who have already voiced their concern by signing our petition.
Each day, decisions are being made in Washington, D.C., that will affect people with disabilities and Easterseals' ability to provide services to them, as well as to meet Easterseals' mission today and for years to come. The unmet needs of people with disabilities will continue to go unaddressed if Easterseals is not engaged in educating public policy makers about people with disabilities' disproportionate reliance on government for health, education, employment, transportation and other needed services. Sign up to receive Easterseals advocacy alerts.
This chart, developed by Easterseals Office of Public Affairs, tracks the funding history of federal disability programs. The chart divides the information by agency, listing underneath each agency specific programs that matter to children and adults with disabilities. Additionally, we have also created a FY 2019 funding chart for Federal Agencies from numbers in the President's 2019 Budget Proposal.
Easterseals supports a rigorous debate on policies and strategies to grow the economy, improve our nation’s fiscal health, and strengthen and protect social programs for our country’s most vulnerable populations. Proposals related to the federal budget, tax reform, deficit reduction, and strategic investments may have a direct impact on the lives of children and adults with disabilities. Easterseals policy decisions on fiscal policy and tax reform will be based on Easterseals Principles on Fiscal Policy and Tax Reform as approved by the Easterseals Board of Directors on October 20, 2017.
People with disabilities and Easterseals have a significant stake in government programs. For many children and adults with disabilities, their ability to get an education, earn a living and live independently in the community is dictated by the availability of services and supports, many of which come only from the federal government.
Easterseals has been active in public policy advocacy since our founder, Edgar Allen, lobbied the Ohio Legislature to fund appropriate services for children with disabilities in the 1920s. We continue to actively support and promote federal legislation that helps people with disabilities achieve independence.