Last Updated April 19, 2023
Easter Seals, Inc. (d/b/a "Easterseals") ("we," "our," or "us") understands that data privacy and the protection of personal information is important to you. This Privacy Notice explains how we collect, use and share your personal information, and your rights and choices regarding the personal information we collect about you.
Please read this Notice carefully to understand our policies and practices regarding your personal information and how we will process it. You can also click on the links below to navigate to a specific section.
1. Scope of Notice
This Privacy Notice applies to all donors, members, website visitors, business partners, employees, job applicants, and individuals who otherwise interact with Easterseals whom we collect personal information from. We often refer to your interactions with us as using our "services" throughout this Notice.
2. Personal Information Collection
We collect a variety of information as part of our operations, including personal information and other information. "Personal information" is any information that identifies, relates to, describes, is reasonably capable of being associated with, or could reasonably be linked, directly or indirectly, with an identifiable individual.
a. How We Collect Personal Information
Easterseals collects information, including personal information, from and about its donors, event attendees and program participants, individuals who interact with our affiliate members, employees and job applicants, individuals who visit our website and other individuals who choose to interact with us. We collect information from or about you in the following ways:
b. Types of Personal Information We Collect
The types of personal information we collect depends on how you interact with us, including whether the interaction is through one of our affiliate members or directly with us. In many cases, the personal information we collect will be apparent from the context in which you provide the information.
We collect the following types of personal information from you depending on how you interact with us (i.e., donor, employee, etc.).
|Categories of Personal Information||Categories of individuals|
|Contact Information. This includes your name, mailing address, email address, social media handle, or other similar identifiers.||
|Identification Information. This includes your SSN, driver's license number, passport number, or similar legal identification information.||
|Profile Information. This includes information about your activity and interactions with us, including your donor tendencies and donation history, information you voluntarily provide to us or that we collect from other sources regarding your interests, preferences, and characteristics. We compile this information we collect about you to better understand you.||
|Health Information. This is information about your health, disability, or medical condition which may include "Protected Health Information" (PHI).||
|Financial Information. This includes information about your wealth and financial status, income, credit card, bank account, or payment information.||
|Location Information. This includes information about your location.||
|Professional or Employment-Related Information. Current or past job history or performance evaluations.||
|Internet or other similar network activity. Browsing history, search history, information on your interaction with a website, application, or advertisement.||
|Interaction Information. This includes information about your attendance at events we host or programs we sponsor, as well as information about correspondence with us and other ways you interact with us.||
|Sensitive Personal Information. We may collect certain sensitive personal information including race, gender, and age information. This information is collected in aggregate form.||
We may not collect all of the above categories of information from each category of individual who interacts with us. Please note that if you voluntarily provide us with additional information when you interact with us that does not fit one of these categories of information or individuals set forth above, we will collect the information and use it for the purposes you direct or that we disclose to you.
As noted above, in certain circumstances, we may also collect "Protected Health Information." "Protected Health Information" ("PHI") is individually identifiable health information. We sometimes collect PHI when we gather information about the effectiveness of our programs in order to understand whether a program that we or our affiliate members offered resulted in improved outcomes for the individuals or communities our programs are designed to serve.
3. How We Use Personal Information
We use personal information for our legitimate business purposes to further our mission and for other purposes disclosed to you at the time data is collected. More specifically, we use personal information in the following ways:
We may aggregate and de-identify personal information we collect from you to understand the effectiveness of our programs, services, and offerings, as well as to understand our donor base and donor trends. When we aggregate or de-identify information, it is no longer personally identifiable.
4. How We Disclose Personal Information
Easterseals may share your personal information in the following circumstances, and as otherwise described in this Notice:
5. Easterseals Affiliate Members
Easterseals has a number of affiliate members throughout the United States who interact directly with the populations we serve by bringing Easterseals' mission and work directly into the community in which the affiliate member operates. While our affiliate member organizations are associated with and use Easterseals branding, they may have their own practices regarding how they collect, use, share, and retain information when you interact with them.
As described above, affiliate members share information with us, and we share information with our affiliate members. This information sharing occurs so that we can understand the impact of our and our affiliate members' programs and services, yield actionable insights, and drive future-forward decision making so that we can continue to further the Easterseals' mission of equity, inclusion, and access for individuals with disabilities.
Easterseals' website may contain links to other sites, including to our affiliate members, as well as links to non-affiliated third parties, such as social networks or business partners. These linked sites may have personal information collection, use, and disclosure practices that differ from Easterseals' practices. We encourage you to review the privacy policies of websites that you visit before sharing your personal information with them. Please also be aware that if you disclose personal information, PHI, or other sensitive information through public forums, at an event, or on online message boards, this information may be used by others. We take no responsibility for the content, security, or confidentiality of any information posted on or conveyed in these public spaces.
7. Security of Personal Information
Easterseals knows that information security is of the utmost important to our donors, affiliate members, website visitors, and individuals whose information we collect. We maintain reasonable technical, administrative, physical, and organizational safeguards in proportion to the sensitivity of information we collect that are designed to prevent unauthorized access, use, and disclosure of personal information.
However, no electronic data transmission or processing of personal information is completely secure, so we cannot guarantee the security of personal information. We encourage you to assist us with securing your personal information by using a strong password and not disclosing your login credentials, where applicable, to anyone. If we become aware of an incident that affects your personal information, we will investigate and comply with all reporting obligations.
8. Transmission of Health-Related Information
Easterseals understands the sensitivity of collecting and using health-related data. It is not Easterseals' intent to collect personally identifiable health-related information or PHI. If we do collect personally identifiable health-related information or PHI, it will not be used by or shared with entities other than Easterseals or our affiliate members, unless the information is de-identified. Any transfer of personally identifiable health-related data between Easterseals organizations will take place in a secure environment with access allowed only to certain qualified employees of Easterseals. Easterseals will comply with all regulations set forward by the Health Insurance Portability and Accountability Act (HIPAA). To learn more about HIPAA, visit the U.S. Department of Health and Human Services Office for Civil Rights.
9. Retention of Personal Information
We will retain your information only for as long as necessary to achieve the purpose for which it was collected. This may mean that we will continue to retain certain information even after we stop providing our services directly or indirectly to you, after you delete your user profile, or cease interacting with us, as required by law or for our legitimate business purposes. We may also retain de-identified, aggregated, or anonymous information that does not identify a particular individual. In all cases where we retain data, we do so in accordance with limitation periods and record retention obligations that are imposed by applicable law.
10. Your Rights and Choices Regarding your Personal Information
Easterseals offers various rights that are consistent with state consumer privacy laws. Easterseals offers the option to access, correct, and delete your personal information. If you are a registered user of our website, you can access your Easterseals profile and update your contact information and user preferences by clicking here. Upon your request, we will delete, aggregate, or de-identify personal information related to you that is retained in our organizational databases, unless we are required to continue to retain the information in an identifiable format. To exercise your right to deletion, or to modify or correct your information other than through the link above, please contact us via a method set forth in the below "Contact Us" section.
You can also change your communication preferences and opt-in or opt-out of marketing communications from Easterseals. To opt-out of receiving email communications, postal mail or from participating in the list rental and exchange program, or to request a disclosure of list rental and exchange information, please follow the directions below.
We will endeavor to fulfill all requests within a reasonable timeframe.
12. International Transfers of Personal Information
Easterseals and all of its affiliate members are located in the United States, and all programming offered by Easterseals and its affiliate members occurs in the United States. Because of the global nature of the internet, the Easterseals website may be accessible from jurisdictions other than the United States, even though Easterseals does not operate, provide, or market its services outside of the United States. If you access the Easterseals website outside of the United States, your information will be transferred to and processed in the United States. Since the data protection laws of various countries differ, information transferred to the United States may not be subject to the same level of protection as the jurisdiction in which you reside. If you choose to access our website from a jurisdiction outside the United States, we rely on your consent to transfer the data to the United States. To the extent you do not consent to data transfers to the United States, please do not provide us with your personal information or visit our website.
13. Information from Children
Our website is not directed towards children under the age of 13. We do not knowingly collect personal information from anyone under the age of 13 through our website without parental consent. If you become aware that we have collected personal information from an individual under the age of 13 through our website without parental consent, please let us know so that we can take appropriate action.
14. Changes to this Notice
We may update this Privacy Notice from time to time. If we make material updates to this Notice, we will endeavor to provide you notice by placing a prominent notice on this website and/or sending an email notification of the change. We will also update the "last updated" date at the top of this policy. Any changes will be effective immediately on posting unless otherwise indicated. Continued use of our services after updates to our Notice will be deemed consent to the changes.
15. Contact Us
If you have any questions about this Notice or our information practices, please contact us by emailing us through this link or directly at email@example.com, calling us toll-free at 800-221-6827, or writing to us at:
Easter Seals, Inc.
Attn: Privacy Manager
141 W. Jackson Blvd
Chicago, IL 60604
Notice of Privacy Practices
What is the purpose of this Notice?
We respect the privacy of your health information and pledge to protect that information. This Notice describes your rights and our duties on the subject of your health information. It tells you about how we may use and give out ("disclose") your personal medical information. This Notice applies to all information and records about your care that we have received or created. It also applies to information received or created by our employees, staff, contractors, volunteers and or other health care business associates of the agency.
Our promise to you about our duties and responsibilities:
The law says we must protect the privacy of your information. The law also says that we need to give you this notice about what we do with the information we collect and maintain about you. We must follow the practices described in this notice. The Notice will be posted in the reception areas of our facilities. We agree to consider any reasonable privacy requests and to notify you if we are unable to meet those requests. We will not use or give out your information without your permission, except as described in this notice.
Who will follow this Notice?
Easter Seal Rehabilitation Center provides care to patients and clients together with clinicians and other health care professionals. This Notice will be followed by:
What are your rights as a patient?
You have the following rights regarding your Personal Health Information:
Who do you contact for more information or to report a problem?
If you believe that your privacy rights have been violated, you may file a complaint in writing with the Easter Seal Rehabilitation Center by contacting the person listed below:
Privacy Officer Loraine Shea 203-754-5141 ext. 241
22 Tompkins Street
Waterbury, CT 06708
You may also file a complaint with the Office of Civil Rights in the U.S. Department of Health and Human Services. There are no penalties if you file a complaint.
What happens if Easter Seal Rehabilitation Center changes this Notice?
We have the right to change this notice. We will post a copy of the current notice in our facilities. The notice will contain on the first page, in the top right-hand comer, the effective date. Also, each time you register at or are admitted to Easter Seal Rehabilitation Center for treatment or health care services, you may ask for a copy of the current notice in effect. If we change this notice, you will be notified the next time you come to the center and you may request a new copy.
When and how will Easter Seal Rehabilitation Center use and/or give out your personal medical information?
We may use and disclose your health information for purposes of treatment, payment and health care operations (our business operations) without written permission. There are times when we must use your personal medical information. The center must use and give out your personal medical information to provide information:
What are treatment, payment, and health care operations and what are some examples?
Treatment: Treatment is when we provide care to you. It includes many pieces, including when doctors and clinicians consult on your case or when referrals are needed. We will use and disclose your health information when we provide you with treatment and services, and to coordinate your care. Your health information may be used by the therapists, educators, and other clinicians/staff involved in your care. For example, our staff may need certain information to recommend a hearing aid for you. We also may give health information to individuals or facilities that will be involved in your care after you leave Easter Seals.
Payment: Payment is billing for services we provided. It also involves receiving payment from individuals or insurance companies. We will give out some of your health information so that we can bill and receive payment for the treatment and services you receive. For billing and payment purposes, we may give out your health information to your representative, insurance or managed care company, Medicare, Medicaid or another payer. For example, we may contact Medicare or your health plan to confirm your coverage or to request prior approval for a proposed treatment or service. Payment information may include things that identify you, your diagnosis, procedures performed on you, and supplies we used.
Health Care Operations: Health care operations involves many things that Easter Seal Rehabilitation Center must do to operate its' business side. We may give out your health information as necessary for clinic operations or business reasons. These may include management purposes or reviewing our treatment and services for quality of care. We may also use your information to evaluate the performance of our staff in caring for you by using surveys. For example, health information of many patients may be grouped and studied for purposes such as evaluating and improving quality of care and planning for services. Health information is used in evaluating our employees and in reviewing the qualifications and practices of the clinicians and other licensed health care staff at the Center. We also may use and disclose health information for education and training purposes. We may use a sign-in sheet at the registration desk where you may be asked to sign your name. We may also call you by name in the waiting room when your therapist is ready to see you. We may use or disclose your protected health information, as necessary, to contact you to remind you of your appointment.
How else does Easter Seal Rehabilitation Center use and disclose medical information?
We may also use and disclose health information about you for specific purposes. Below is a list of the various ways in which we may use or give out your health information:
Is information about Behavioral Health, substance abuse treatment, and HIV treated differently?
For disclosures concerning health information relating to care for Behavioral Health (psychiatric) conditions, substance abuse or HIV-related testing and treatment, special rules may apply. For example, we usually are not able to disclose this specially protected information in response to a subpoena, warrant or other legal process unless you sign a special authorization or a court orders the disclosure. We will follow state and/or federal law and obtain a special authorization to release this type of information about you in cases other than what is listed here.
For other reasons that are not listed in this Notice, we will use or give out your information only with your written permission ("authorization"). A written authorization must list other particular uses or disclosures that you may allow. You may cancel an authorization to use or disclose health information, in writing, at any time. If you cancel an authorization, we will no longer use or disclose your health information for the purposes covered by that authorization, except in cases where we followed your original request.