Last Updated April 19, 2023
Easter Seals, Inc. (d/b/a "Easterseals") ("we," "our," or "us") understands that data privacy and the protection of personal information is important to you. This Privacy Notice explains how we collect, use and share your personal information, and your rights and choices regarding the personal information we collect about you.
Please read this Notice carefully to understand our policies and practices regarding your personal information and how we will process it. You can also click on the links below to navigate to a specific section.
1. Scope of Notice
This Privacy Notice applies to all donors, members, website visitors, business partners, employees, job applicants, and individuals who otherwise interact with Easterseals whom we collect personal information from. We often refer to your interactions with us as using our "services" throughout this Notice.
2. Personal Information Collection
We collect a variety of information as part of our operations, including personal information and other information. "Personal information" is any information that identifies, relates to, describes, is reasonably capable of being associated with, or could reasonably be linked, directly or indirectly, with an identifiable individual.
a. How We Collect Personal Information
Easterseals collects information, including personal information, from and about its donors, event attendees and program participants, individuals who interact with our affiliate members, employees and job applicants, individuals who visit our website and other individuals who choose to interact with us. We collect information from or about you in the following ways:
b. Types of Personal Information We Collect
The types of personal information we collect depends on how you interact with us, including whether the interaction is through one of our affiliate members or directly with us. In many cases, the personal information we collect will be apparent from the context in which you provide the information.
We collect the following types of personal information from you depending on how you interact with us (i.e., donor, employee, etc.).
|Categories of Personal Information||Categories of individuals|
|Contact Information. This includes your name, mailing address, email address, social media handle, or other similar identifiers.||
|Identification Information. This includes your SSN, driver's license number, passport number, or similar legal identification information.||
|Profile Information. This includes information about your activity and interactions with us, including your donor tendencies and donation history, information you voluntarily provide to us or that we collect from other sources regarding your interests, preferences, and characteristics. We compile this information we collect about you to better understand you.||
|Health Information. This is information about your health, disability, or medical condition which may include "Protected Health Information" (PHI).||
|Financial Information. This includes information about your wealth and financial status, income, credit card, bank account, or payment information.||
|Location Information. This includes information about your location.||
|Professional or Employment-Related Information. Current or past job history or performance evaluations.||
|Internet or other similar network activity. Browsing history, search history, information on your interaction with a website, application, or advertisement.||
|Interaction Information. This includes information about your attendance at events we host or programs we sponsor, as well as information about correspondence with us and other ways you interact with us.||
|Sensitive Personal Information. We may collect certain sensitive personal information including race, gender, and age information. This information is collected in aggregate form.||
We may not collect all of the above categories of information from each category of individual who interacts with us. Please note that if you voluntarily provide us with additional information when you interact with us that does not fit one of these categories of information or individuals set forth above, we will collect the information and use it for the purposes you direct or that we disclose to you.
As noted above, in certain circumstances, we may also collect "Protected Health Information." "Protected Health Information" ("PHI") is individually identifiable health information. We sometimes collect PHI when we gather information about the effectiveness of our programs in order to understand whether a program that we or our affiliate members offered resulted in improved outcomes for the individuals or communities our programs are designed to serve.
3. How We Use Personal Information
We use personal information for our legitimate business purposes to further our mission and for other purposes disclosed to you at the time data is collected. More specifically, we use personal information in the following ways:
We may aggregate and de-identify personal information we collect from you to understand the effectiveness of our programs, services, and offerings, as well as to understand our donor base and donor trends. When we aggregate or de-identify information, it is no longer personally identifiable.
4. How We Disclose Personal Information
Easterseals may share your personal information in the following circumstances, and as otherwise described in this Notice:
5. Easterseals Affiliate Members
Easterseals has a number of affiliate members throughout the United States who interact directly with the populations we serve by bringing Easterseals' mission and work directly into the community in which the affiliate member operates. While our affiliate member organizations are associated with and use Easterseals branding, they may have their own practices regarding how they collect, use, share, and retain information when you interact with them.
As described above, affiliate members share information with us, and we share information with our affiliate members. This information sharing occurs so that we can understand the impact of our and our affiliate members' programs and services, yield actionable insights, and drive future-forward decision making so that we can continue to further the Easterseals' mission of equity, inclusion, and access for individuals with disabilities.
Easterseals' website may contain links to other sites, including to our affiliate members, as well as links to non-affiliated third parties, such as social networks or business partners. These linked sites may have personal information collection, use, and disclosure practices that differ from Easterseals' practices. We encourage you to review the privacy policies of websites that you visit before sharing your personal information with them. Please also be aware that if you disclose personal information, PHI, or other sensitive information through public forums, at an event, or on online message boards, this information may be used by others. We take no responsibility for the content, security, or confidentiality of any information posted on or conveyed in these public spaces.
7. Security of Personal Information
Easterseals knows that information security is of the utmost important to our donors, affiliate members, website visitors, and individuals whose information we collect. We maintain reasonable technical, administrative, physical, and organizational safeguards in proportion to the sensitivity of information we collect that are designed to prevent unauthorized access, use, and disclosure of personal information.
However, no electronic data transmission or processing of personal information is completely secure, so we cannot guarantee the security of personal information. We encourage you to assist us with securing your personal information by using a strong password and not disclosing your login credentials, where applicable, to anyone. If we become aware of an incident that affects your personal information, we will investigate and comply with all reporting obligations.
8. Transmission of Health-Related Information
Easterseals understands the sensitivity of collecting and using health-related data. It is not Easterseals' intent to collect personally identifiable health-related information or PHI. If we do collect personally identifiable health-related information or PHI, it will not be used by or shared with entities other than Easterseals or our affiliate members, unless the information is de-identified. Any transfer of personally identifiable health-related data between Easterseals organizations will take place in a secure environment with access allowed only to certain qualified employees of Easterseals. Easterseals will comply with all regulations set forward by the Health Insurance Portability and Accountability Act (HIPAA). To learn more about HIPAA, visit the U.S. Department of Health and Human Services Office for Civil Rights.
9. Retention of Personal Information
We will retain your information only for as long as necessary to achieve the purpose for which it was collected. This may mean that we will continue to retain certain information even after we stop providing our services directly or indirectly to you, after you delete your user profile, or cease interacting with us, as required by law or for our legitimate business purposes. We may also retain de-identified, aggregated, or anonymous information that does not identify a particular individual. In all cases where we retain data, we do so in accordance with limitation periods and record retention obligations that are imposed by applicable law.
10. Your Rights and Choices Regarding your Personal Information
Easterseals offers various rights that are consistent with state consumer privacy laws. Easterseals offers the option to access, correct, and delete your personal information. If you are a registered user of our website, you can access your Easterseals profile and update your contact information and user preferences by clicking here. Upon your request, we will delete, aggregate, or de-identify personal information related to you that is retained in our organizational databases, unless we are required to continue to retain the information in an identifiable format. To exercise your right to deletion, or to modify or correct your information other than through the link above, please contact us via a method set forth in the below "Contact Us" section.
You can also change your communication preferences and opt-in or opt-out of marketing communications from Easterseals. To opt-out of receiving email communications, postal mail or from participating in the list rental and exchange program, or to request a disclosure of list rental and exchange information, please follow the directions below.
We will endeavor to fulfill all requests within a reasonable timeframe.
12. International Transfers of Personal Information
Easterseals and all of its affiliate members are located in the United States, and all programming offered by Easterseals and its affiliate members occurs in the United States. Because of the global nature of the internet, the Easterseals website may be accessible from jurisdictions other than the United States, even though Easterseals does not operate, provide, or market its services outside of the United States. If you access the Easterseals website outside of the United States, your information will be transferred to and processed in the United States. Since the data protection laws of various countries differ, information transferred to the United States may not be subject to the same level of protection as the jurisdiction in which you reside. If you choose to access our website from a jurisdiction outside the United States, we rely on your consent to transfer the data to the United States. To the extent you do not consent to data transfers to the United States, please do not provide us with your personal information or visit our website.
13. Information from Children
Our website is not directed towards children under the age of 13. We do not knowingly collect personal information from anyone under the age of 13 through our website without parental consent. If you become aware that we have collected personal information from an individual under the age of 13 through our website without parental consent, please let us know so that we can take appropriate action.
14. Changes to this Notice
We may update this Privacy Notice from time to time. If we make material updates to this Notice, we will endeavor to provide you notice by placing a prominent notice on this website and/or sending an email notification of the change. We will also update the "last updated" date at the top of this policy. Any changes will be effective immediately on posting unless otherwise indicated. Continued use of our services after updates to our Notice will be deemed consent to the changes.
15. Contact Us
If you have any questions about this Notice or our information practices, please contact us by emailing us through this link or directly at email@example.com, calling us toll-free at 800-221-6827, or writing to us at:
Easter Seals, Inc.
Attn: Privacy Manager
141 W. Jackson Blvd
Chicago, IL 60604
Easter Seals of Southeastern Pennsylvania
Notice of Privacy Practices
For Protected health Information
This notice describes how medical information about you may be used and disclosed
and how you can get access to this information. Please review it carefully.
Easter Seals is honored that you have chosen us to provide services for you and your family. As part of providing these services, Easter Seals accumulates records and information regarding protected health information (PHI) about you and/or a family member. Protected health information is defined as any individually identifiable health information whether oral or recorded in any medium. This may include health condition, treatment plans, service outcomes and recommendations specific to a particular person.
This information helps to ensure that we provide the highest level of care in response to your family's needs and goals. We understand and appreciate that this health information is personal and confidential. At all times we desire to maintain the confidentiality of this information and to maintain the trust that you place in us.
We are providing this notice to help you understand how protected health information about you may be used and shared. In accordance with applicable laws, we also want you to be aware of your rights regarding protected health information.
Easter Seals Use & Disclosure of Health Information
As a routine part of providing services to you and/or a family member, Easter Seals may use and share protected health information in some or all of the following ways:
To Provide Treatment and Care
Protected health information about you and/or a family member help us to ensure that the services we provide are appropriate and responsive to your needs. It allows us to coordinate services where appropriate with other members of your treatment team. Health information may be shared with therapists, teachers, nurses social workers, student interns or other personnel who are involved in you or your family's treatment or services.
Health information may also be shared with emergency personnel such as paramedics or hospital staff if you or your family member requires such intervention.
Health information about you or your family member may be shared with an organization or entity reimbursing Easter Seals for provision of services. This may include an insurance company, a county program (such as the Office of mental Retardation), an Intermediate Unity or a school district. In some circumstances, information regarding services you are going to receive may be shared in advance to secure prior approval or to determine whether these costs will be covered.
For Quality Management
Health information about you or your family member may be shared with both Easter Seals personnel and on occasion external professionals to review the treatment and care received and to assess and improve the services provided and the outcomes achieved. This allows us to ensure that we are providing the highest quality services to all families and understand the best practices that should be used to achieve the most meaningful results.
For Fund Raising
Information (limited to only your name, address and phone number) may be shared with our Development Department who might contact you to invite your financial support of Easter Seals or participation in a fund raising activity or project.
For Community Awareness
On occasion, individuals including current or prospective donors, parents interested in determining if Easter Seals is an appropriate placement for their child or other parties may tour our facilities. As a part of these tours the individual may become aware of a limited amount of protected health information. Each visitor who tours an Easter Seals facility is required to sign a statement of confidentiality.
As Required by Law
Easter Seals will disclose protected health information when required to do so by federal, state or local law or governmental agency or a court of law having appropriate jurisdiction. Information may also be shared with other oversight entities, such as an auditing firm, when we are required to do so.
At Your Request
you may request that Easter Seals disclose protected health information as part of a referral for services to another provider, as part of litigation or for some other reason. In these instances, only information that has been developed by Easter Seals and not information we may have from some other source will be disclosed. Typically you will be asked to sign a release of information form indicating the party to whom the information may be released.
Your Rights Regarding Protected health Information
Current law provides you with several rights regarding protected health information regarding you and/or a family member. These include:
The Right to Inspect & Copy Your PHI
You have the right to inspect and copy of protected health information that has been generated by Easter Seals. Usually this includes treatment and billing records. To review and inspect information available to you, please contact the Director or Program Coordinator of the division providing the services to your family. At a mutually convenient time (not to exceed three working days) you will be able to visit our center and review your records.
At your request a copy of your information can be provided to you. A copy can be made when you review your records or mailed to you. A fee may be assessed to cover the costs involved in copying or mailing the information.
Right to Amend Your Records
If you feel that the information we have about you is incomplete or inaccurate, you can request that it be amended. To amend your records, please provide us your request in writing indicating the changes that should be made and reasons for doing so. Your request for amendment should be submitted to the Director or Program Coordinator of the division providing services to you or your family member.
Right to an Accounting of Disclosures
You have the right to an accounting of parties to who protected health information about you and/or a family member has been disclosed. Please submit in writing your request for this information to the Director or Program Coordinator of the division providing services to your or your family member.
Right to Request Restrictions on Uses & Disclosures
You have the right to restrict or limit the use and disclosure of health information about you and /or a family member has been disclosed. Please submit in writing your request for this information to the Director or Program Coordinator of the division providing services to you or your family member.
Right to a Paper Copy of This Notice
You have the right to have a paper copy of this notice if you are reviewing it in a form other than paper. to request a paper copy, please contact our Director of Programs, Janet Rubien at firstname.lastname@example.org.
Right to Confidential or Alternate Means of Communications
You have the right to request that communications with you regarding health information be done in a certain way or at a certain location. This could mean that you wish us to contact you only at work, only at home or using some specific method of communications. We will honor any written request to use confidential or alternate means of communications that we are able to do. Your written request should be as specific as possible as to the method(s) of communication to be used and should be submitted to the Director or Program Coordinator for the division providing services to you or your family member.
Right to Revoke Your Consent
If you have given us consent to use protected health information for any reason you have the right to revoke that consent to the extent that it has not already been relied upon. This might include, but not be limited to, a situation where you have allowed us to use personal information as part of our community awareness and fund raising activities but now desire that we not do so. If you desire to revoke your consent, please submit that request in writing to the Director or Program Coordinator for the division providing services to you or your family member.
Questions and/or Complaints
If you have any questions regarding this notice or if you believe that your rights have been violated, you may contact either the Secretary of the U.S. Department of Health and Humans Services or Easter Seals.
you may direct any questions or complaints regarding this notice to Easter Seals c/o:
Director of Programs
Easter Seals of Southeastern Pennsylvania
3975 Conshohocken Avenue
Philadelphia, PA 19131
(215) 879-8424 FAX
Individuals and families will not be penalized in any manner for filing a complaint.
Changes to this Notice
Easter Seals reserves the right to change, alter or modify this notice from time to time as required by law or operating conditions. The amended notice will be sent to all individuals currently receiving services from Easter Seals and will be posted on our Website at www.easterseals-sepa.org