Easter Seals, Inc. (d/b/a "Easterseals") ("we," "our," or "us") understands that data privacy and the protection of personal information is important to you. This Privacy Notice explains how we collect, use and share your personal information, and your rights and choices regarding the personal information we collect about you.
Please read this Notice carefully to understand our policies and practices regarding your personal information and how we will process it. You can also click on the links below to navigate to a specific section.
This Privacy Notice applies to all donors, members, website visitors, business partners, employees, job applicants, and individuals who otherwise interact with Easterseals whom we collect personal information from. We often refer to your interactions with us as using our "services" throughout this Notice.
2. Personal Information Collection
We collect a variety of information as part of our operations, including personal information and other information. "Personal information" is any information that identifies, relates to, describes, is reasonably capable of being associated with, or could reasonably be linked, directly or indirectly, with an identifiable individual.
a. How We Collect Personal Information
Easterseals collects information, including personal information, from and about its donors, event attendees and program participants, individuals who interact with our affiliate members, employees and job applicants, individuals who visit our website and other individuals who choose to interact with us. We collect information from or about you in the following ways:
Directly from you. We collect information directly from you when you make a donation, create a user profile on our website, attend an event or program we are offering, apply for employment or gain employment with us, when you visit our website, and when you otherwise voluntarily submit or provide information to us.
Automatically. When you visit and interact with our website, we collect information automatically through cookies. For more information about cookies on our website, please visit the section below titled "Cookies."
From our Affiliate Members. We rely on our affiliate members to provide us with information about the individuals they provide services to and interact with so that we can understand the impact of our and our affiliate members' programs and services, yield actionable insights, and drive future-forward decision making to ensure that our services and programs make the most impact in the communities we serve.
From Other Sources. We may collect information about you from other sources and we may combine information from other sources with information we collect through our services or interactions with you. Examples of the other sources we most frequently collect information from includes national donor data bases and registries, and companies that compile mailing lists about individuals.
b. Types of Personal Information We Collect
The types of personal information we collect depends on how you interact with us, including whether the interaction is through one of our affiliate members or directly with us. In many cases, the personal information we collect will be apparent from the context in which you provide the information.
We collect the following types of personal information from you depending on how you interact with us (i.e., donor, employee, etc.).
Categories of Personal Information
Categories of individuals
Contact Information. This includes your name, mailing address, email address, social media handle, or other similar identifiers.
Donors
Employees and job applicants
Website visitors
Event attendees
Program participants
Individuals who interact with our affiliate members
Easterseals affiliate member users
Identification Information. This includes your SSN, driver's license number, passport number, or similar legal identification information.
Employees and job applicants
Profile Information. This includes information about your activity and interactions with us, including your donor tendencies and donation history, information you voluntarily provide to us or that we collect from other sources regarding your interests, preferences, and characteristics. We compile this information we collect about you to better understand you.
Donors
Website visitors
Event attendees
Program participants
Individuals who interact with our affiliate members
Easterseals affiliate member users
Health Information. This is information about your health, disability, or medical condition which may include "Protected Health Information" (PHI).
Event attendees
Program participants
Individuals who interact with our affiliate members
Employees and job applicants (if you choose to participate in our group health plan)
Financial Information. This includes information about your wealth and financial status, income, credit card, bank account, or payment information.
Donors
Employees and job applicants
Individuals who interact with our affiliate members
Location Information. This includes information about your location.
Donors
Website visitors
Easterseals affiliate member users
Professional or Employment-Related Information. Current or past job history or performance evaluations.
Employees and job applicants
Affiliate clinical and non-clinical service providers
Internet or other similar network activity. Browsing history, search history, information on your interaction with a website, application, or advertisement.
Website visitors
Donors
Easterseals affiliate member users
Interaction Information. This includes information about your attendance at events we host or programs we sponsor, as well as information about correspondence with us and other ways you interact with us.
Donors
Event attendees
Program participants
Website visitors
Individuals who interact with our affiliate members
Easterseals affiliate member users
Sensitive Personal Information. We may collect certain sensitive personal information including race, gender, and age information. This information is collected in aggregate form.
Employees and job applicants
Individuals who interact with our affiliate members
Easterseals affiliate member users
We may not collect all of the above categories of information from each category of individual who interacts with us. Please note that if you voluntarily provide us with additional information when you interact with us that does not fit one of these categories of information or individuals set forth above, we will collect the information and use it for the purposes you direct or that we disclose to you.
As noted above, in certain circumstances, we may also collect "Protected Health Information." "Protected Health Information" ("PHI") is individually identifiable health information. We sometimes collect PHI when we gather information about the effectiveness of our programs in order to understand whether a program that we or our affiliate members offered resulted in improved outcomes for the individuals or communities our programs are designed to serve.
3. How We Use Personal Information
We use personal information for our legitimate business purposes to further our mission and for other purposes disclosed to you at the time data is collected. More specifically, we use personal information in the following ways:
Provide our services, programs, and events to the communities and individuals we serve.
Send you confirmations about event or program registration, or donations.
Process donations and gifts made to Easterseals or our affiliate members.
Understand our donor base and potential donors.
Measure the effectiveness of our services, programs, and events, including services, programs, and events offered by our affiliate members.
Communicate with you about our services, programs, events, happenings, and news.
Respond to your comments, inquiries, and customer service requests.
Market our events, services, programs, and potential donor opportunities to you. You may opt-out of marketing communications at any time.
Provide you with employment, or consider you for employment with Easterseals.
Process payroll and other benefits afforded to our employees.
Improve and personalize our content and services.
Monitor and analyze trends regarding our services, programs, and events, including services, programs, and events offered by our affiliate members.
Protect against and prevent fraud, unauthorized transactions, and manage risk exposure.
Enforce our legal rights and agreements.
Comply with applicable legal requirements.
Carry out any other purpose you consent to, that we disclose to you at the time your data is collected, or that you direct us to.
We may aggregate and de-identify personal information we collect from you to understand the effectiveness of our programs, services, and offerings, as well as to understand our donor base and donor trends. When we aggregate or de-identify information, it is no longer personally identifiable.
4. How We Disclose Personal Information
Easterseals may share your personal information in the following circumstances, and as otherwise described in this Notice:
Affiliate Members. We share information with our affiliate members in order to understand and improve the impact of our and our affiliate members' programs, services, and offerings. Please see the section below titled "Easterseals Affiliate Members" for more information.
Service Providers, Vendors, and Consultants. We rely on third parties to perform functions on our behalf. Some of these service providers include marketing service providers, payment service providers who help us process donations and pay our employees, cloud storage providers, website hosting platforms, client relationship management providers, HR or employee benefits providers, and content providers. We endeavor to ensure written agreements are in place with all service providers, vendors, and consultants where feasible and appropriate. All service providers, vendors, and consultants are required to use the information we disclose to them at our direction and only for the purpose(s) for which it was disclosed to them, and they are required to adhere to security and confidentiality measures.
List Rental and Exchange Program. We may share certain information about our donors with national donor registration and list service providers in order to grow our donor base and more effectively reach current and prospective donors. If you do not wish for your information to be shared with these third parties, you may opt-out by contacting us via a method set forth in the "Contact Us" section below or by visiting our website and contacting us through a means listed on our website. If you would like to know which third parties participate in the list rental and exchange program, you may also contact us via one of the methods listed below.
Law Enforcement Agencies, Courts, Regulators, Government Authorities, or Other Third Parties. We may disclose your information: 1) to apply with a legal obligation or court order; 2) when we believe in good faith that the law requires it; 3) at the request of governmental authorities conducting an investigation; 4) to verify or enforce our policies, procedures, terms of service, and other agreements, or to protect the rights, property, safety, and security of Easterseals, our members, vendors, business partners, service providers, affiliate members, website visitors, or the public; 5) to respond to an emergency; or 6) when we believe it is necessary or appropriate to prevent physical harm or financial loss, or in connection with an investigation of suspected or actual illegal activity.
Successor Entities, Buyers, Transfers and Mergers and Acquisitions. We may disclose your information to a buyer, potential buyer, successor in interest, or to an organization in connection with a bankruptcy, transfer, merger or acquisition, or other transfer of some or all of Easterseals' or an affiliate's assets, which may include your information. If this occurs, we will endeavor to ensure that the successor entity uses your personal information in accordance with this Privacy Notice, or provides you with notice and a choice about future use of your personal information.
5. Easterseals Affiliate Members
Easterseals has a number of affiliate members throughout the United States who interact directly with the populations we serve by bringing Easterseals' mission and work directly into the community in which the affiliate member operates. While our affiliate member organizations are associated with and use Easterseals branding, they may have their own practices regarding how they collect, use, share, and retain information when you interact with them.
As described above, affiliate members share information with us, and we share information with our affiliate members. This information sharing occurs so that we can understand the impact of our and our affiliate members' programs and services, yield actionable insights, and drive future-forward decision making so that we can continue to further the Easterseals' mission of equity, inclusion, and access for individuals with disabilities.
6. Links to Other Sites
Easterseals' website may contain links to other sites, including to our affiliate members, as well as links to non-affiliated third parties, such as social networks or business partners. These linked sites may have personal information collection, use, and disclosure practices that differ from Easterseals' practices. We encourage you to review the privacy policies of websites that you visit before sharing your personal information with them. Please also be aware that if you disclose personal information, PHI, or other sensitive information through public forums, at an event, or on online message boards, this information may be used by others. We take no responsibility for the content, security, or confidentiality of any information posted on or conveyed in these public spaces.
7. Security of Personal Information
Easterseals knows that information security is of the utmost important to our donors, affiliate members, website visitors, and individuals whose information we collect. We maintain reasonable technical, administrative, physical, and organizational safeguards in proportion to the sensitivity of information we collect that are designed to prevent unauthorized access, use, and disclosure of personal information.
However, no electronic data transmission or processing of personal information is completely secure, so we cannot guarantee the security of personal information. We encourage you to assist us with securing your personal information by using a strong password and not disclosing your login credentials, where applicable, to anyone. If we become aware of an incident that affects your personal information, we will investigate and comply with all reporting obligations.
8. Transmission of Health-Related Information
Easterseals understands the sensitivity of collecting and using health-related data. It is not Easterseals' intent to collect personally identifiable health-related information or PHI. If we do collect personally identifiable health-related information or PHI, it will not be used by or shared with entities other than Easterseals or our affiliate members, unless the information is de-identified. Any transfer of personally identifiable health-related data between Easterseals organizations will take place in a secure environment with access allowed only to certain qualified employees of Easterseals. Easterseals will comply with all regulations set forward by the Health Insurance Portability and Accountability Act (HIPAA). To learn more about HIPAA, visit the U.S. Department of Health and Human Services Office for Civil Rights.
9. Retention of Personal Information
We will retain your information only for as long as necessary to achieve the purpose for which it was collected. This may mean that we will continue to retain certain information even after we stop providing our services directly or indirectly to you, after you delete your user profile, or cease interacting with us, as required by law or for our legitimate business purposes. We may also retain de-identified, aggregated, or anonymous information that does not identify a particular individual. In all cases where we retain data, we do so in accordance with limitation periods and record retention obligations that are imposed by applicable law.
10. Your Rights and Choices Regarding your Personal Information
Easterseals offers various rights that are consistent with state consumer privacy laws. Easterseals offers the option to access, correct, and delete your personal information. If you are a registered user of our website, you can access your Easterseals profile and update your contact information and user preferences by clicking here. Upon your request, we will delete, aggregate, or de-identify personal information related to you that is retained in our organizational databases, unless we are required to continue to retain the information in an identifiable format. To exercise your right to deletion, or to modify or correct your information other than through the link above, please contact us via a method set forth in the below "Contact Us" section.
You can also change your communication preferences and opt-in or opt-out of marketing communications from Easterseals. To opt-out of receiving email communications, postal mail or from participating in the list rental and exchange program, or to request a disclosure of list rental and exchange information, please follow the directions below.
We will endeavor to fulfill all requests within a reasonable timeframe.
11. Cookies
Our website uses or may use cookies, web beacons, pixel tags, and similar technologies (collectively, "cookies"). Cookies are small text files stored directly on a website visitor's computer or mobile device that automatically collect certain information from users such as browser type, IP address, time spent online, pages visited, referring URL, and additional aggregated website traffic data. We also rely on partners to provide features of our services, which may involve using cookies.
We use cookies for the following purposes:
Functionality. These cookies are necessary for us to ensure that the website functions properly.
Security. These cookies are necessary for us to mitigate the risk of data breaches and similar attacks by ensuring that requests are submitted to our website from proper domains.
Authentication. These cookies allow us to authenticate user requests and to maintain session information related to users.
Preference. These cookies allow our website to remember which events you have signed up or registered for, the products you place in your shopping cart, and to recognize your device.
Advertising. These cookies allow us to provide you with more relevant advertisements.
Analytics. These cookies enable us to learn more about how users and visitors interact with our website, including pages visited, how much time is spent on each pages, and similar information. We use this information in aggregate.
Third-Party. These cookies are placed by third parties such as Google and social media networks. These cookies track and monitor how you interact with our services and other websites, provide us insight into how you interact with our website (such as analytics), facilitate account registration and login, and also enable the sharing of content from our services to these third parties. We do not control the data use or sharing practices of these third parties. If you do not wish to accept third party cookies, we encourage you to update your browser settings accordingly.
The use of cookies has become standard among website operators. Most browsers are initially set to accept cookies. You can usually set your browser to refuse cookies that are not necessary or to indicate when a cookie is being set. To understand your options regarding cookies, you can visit the help section of your web browser, or take a look at the links below:
If you refuse cookies, you may not be able to use certain functions on our website and our website may not function as smoothly as it does when cookies are enabled.
12. International Transfers of Personal Information
Easterseals and all of its affiliate members are located in the United States, and all programming offered by Easterseals and its affiliate members occurs in the United States. Because of the global nature of the internet, the Easterseals website may be accessible from jurisdictions other than the United States, even though Easterseals does not operate, provide, or market its services outside of the United States. If you access the Easterseals website outside of the United States, your information will be transferred to and processed in the United States. Since the data protection laws of various countries differ, information transferred to the United States may not be subject to the same level of protection as the jurisdiction in which you reside. If you choose to access our website from a jurisdiction outside the United States, we rely on your consent to transfer the data to the United States. To the extent you do not consent to data transfers to the United States, please do not provide us with your personal information or visit our website.
13. Information from Children
Our website is not directed towards children under the age of 13. We do not knowingly collect personal information from anyone under the age of 13 through our website without parental consent. If you become aware that we have collected personal information from an individual under the age of 13 through our website without parental consent, please let us know so that we can take appropriate action.
14. Changes to this Notice
We may update this Privacy Notice from time to time. If we make material updates to this Notice, we will endeavor to provide you notice by placing a prominent notice on this website and/or sending an email notification of the change. We will also update the "last updated" date at the top of this policy. Any changes will be effective immediately on posting unless otherwise indicated. Continued use of our services after updates to our Notice will be deemed consent to the changes.
Easter Seals Oregon promises to keep your Personal Health Information (PHI) private. When we work with you, we will have to write information down about the treatment and services we provide to you. The law says that we have to keep your health information private. The law also says that we have to give you this notice of what the law says about your personal health information and that we have to tell you how we keep your PHI private. Federal and state laws say that we have to follow the rules that we have in place at the time.
We realize that these laws are complicated, but we must provide you with the following important information:
How we may use and share your personal health information.
Your rights to keep your personal health information private
How we plan to use your personal health information, including who we might have to share it with, and what the law requires us to do.
This notice applies to everything we write down and keep about your PHI. We are allowed to change some of the information in this Notice of Privacy Practices. If we have to change this notice, the new rules will apply to all the information we have about you from the past and any information we might get or keep in the future. We will post a current copy of this Notice in our client waiting area and on our web site (www.or.easterseals.com). We will not mail you a new copy if we change it. You can ask for a copy of the Notice any time you want.
If You Have Questions About This Notice
If you have questions about this notice, please use one of the following methods to contact us:
Mail:
Privacy Officer 290 Moyer Ln NW PO Box 5193 Salem OR 97304
The following describes the different ways in which we are allowed to use and share your personal health information without your written permission unless Oregon State law does not allow us to share the information.
Treatment. We may use your PHI to treat you or for purposes related to your treatment. For example, we may share information with your doctor about your treatment progress or how you are doing. We may share your PHI with others who may help in your care such as another person in your family or the other parent. We may want to tell you about other treatments that are available to you or tell you about health-related benefits or services that might be of interest to you. Examples are support groups, parent education classes, community resources or durable medical equipment.
Payment. We may use and share your PHI in order to bill and collect payment for the services you receive from us. For example, we may talk to your health insurer to confirm that you are eligible for benefits and what those benefits may be. We may also tell your insurer about details regarding your treatment so your insurance company can decide if they will pay for your treatment. We may use and share your PHI to obtain payment from other people or companies that may be responsible for such costs, such as family members. We may use your PHI to send you a bill for services and items.
Health Care Operations. We may use and share your PHI to operate our business. Examples of health care operations would be measuring the quality of care you receive from us, using outside professional services, or carrying out cost-management and business planning activities for our practice. We may use and share your PHI to contact you to cancel or remind you of an appointment.
Disclosures Required By Law. We will use and share your PHI when we are required to do so by federal, state or local law.
Use and Disclosure of Your PHI in Certain Special Circumstances
The following categories describe unique ways in which we may use or release your personal health information without your written permission.
Public Health Risks. We may share your PHI with public health authorities, including Oregon Department of Human Services, that are allowed by law to collect information for the purpose of:
Reporting suspected child abuse, neglect or domestic violence.
Preventing or controlling disease, injury or disability.
Notifying a person regarding potential exposure to a communicable disease.
Notifying a person regarding a potential risk for spreading or contracting a disease or condition.
Reporting reactions to drugs or problems with products or devices.
Notifying a person if a product or device they may be using has been recalled.
Health Oversight Activities. We may share your PHI with a health oversight agency. Activities allowed by law can include investigations, inspections, audits, surveys, licensure and disciplinary action. They may also include civil, administrative and criminal procedures or actions, or other activities necessary to monitor our compliance with civil rights laws and the health care system in general.
Lawsuits and Similar Actions. We may use and share your PHI in response to a court order if you are involved in a lawsuit or similar proceeding. We may share your PHI in response to a subpoena or other lawful process by another party involved in the dispute. However, we will make an effort to inform you of the request prior to sharing the information.
Law Enforcement. We may release PHI if asked to do so by law enforcement officials:
Regarding a crime victim in certain situations, if we are unable to obtain the person’s agreement.
Concerning a death we believe resulted from a criminal act.
Regarding criminal conduct at our offices.
In response to a warrant, summons, court order, subpoena or similar legal process.
To identify/locate a suspect, material witness, fugitive or missing person.
In an emergency, to report a crime (including the location or victim(s) of the crime, or the description, identity or location of the perpetrator).
Serious Threats to Health or Safety. We may use and share your PHI to prevent a serious threat to your health and safety or the health and safety of another individual or the public. In this case, we will only make disclosures to a person or agency able to help prevent the threat.
Inmates. We may share your PHI to correctional institutions or law enforcement officials if you are an inmate or under the custody of law enforcement officials. These disclosures would be necessary: (a) for us to provide health care services to you, (b) for the safety and security of our organization, and/or (c) to protect your health and safety or the health and safety of other individuals.
Fundraising. We may send you fundraising solicitations for Easter Seals Oregon by mail. If you do not wish to receive such solicitations, you may choose to opt out of these mailings. To opt out, simply give us your name and address and we will kindly remove you from our fundraising list.
Your Rights Regarding Your PHI
You have the right to request that we communicate with you in a particular manner or at a certain location. For instance, you may ask that we contact you at work, rather than home. Our practice will accommodate reasonable requests. You do not need to give a reason for your request.
You may ask us to limit our use or disclosure of your PHI for treatment, payment or health care operations. For example, you may request that we share your PHI with only certain individuals involved in your care or the payment for your care, such as family members and friends. We are not required to agree to your request. However, if we do agree, we must honor that agreement except when federal or state law says otherwise, for instance, in emergencies, or when the information is necessary to treat you. You must make your request in writing. Your request must be clear and concise and must include what information you wish restricted. Your request must also include whether you are requesting to limit our practice’s use, disclosure or both and to whom you want the limits to apply.
You have the right to inspect and obtain a copy of the PHI that has been created by our agency. You may not, however, inspect the following records: psychotherapy notes; information compiled for use in a civil, criminal, or administrative action or proceeding. You must submit your request in writing. Our practice may charge a fee for the costs of copying, mailing and other costs related to your request. Your request may only be for records created by our practice. Our practice may deny your request to inspect and/or copy in certain limited circumstances; however, you may have a right to have this decision reviewed.
You may ask us to correct your health information if you believe it is incorrect or incomplete, and for as long as the information is kept by or for our practice. Any amendment request must be made in writing. You must provide us with a reason that supports your request for amendment. In certain cases, we may deny your request for an amendment. If we deny your request, you have the right to file a statement of disagreement with us.
You have the right to receive an accounting of certain disclosures we have made, if any, of your PHI. This accounting applies to disclosures allowed by law for which we are not required to obtain your written authorization. This list will not include the times that information was shared for treatment, payment or health care operations. The list will not include information provided directly to you or family members or information that was shared with your authorization. You must submit your request in writing. All requests for an “accounting of disclosures” must state a time period and may not include dates before April 14, 2003. The right to receive this information is subject to certain restrictions. The first list you request within a 12-month period is free of charge. Our practice may charge you for additional lists within the same 12-month period. Our practice will notify you of the costs involved, and you may withdraw your request before you incur any costs.
You are entitled to receive a paper copy of our notice of privacy practices. You may also obtain a current Notice from our website (www.or.easterseals.com).
You have the right to file a complaint. If you believe your privacy rights have been violated, you may file a complaint with our practice or with the Secretary of Health and Human Services. All complaints must be submitted in writing. You will not be penalized for filing a complaint.
You have the right to provide an authorization for other uses and disclosures. We will obtain your written authorization for uses and disclosures that are not identified by this notice or permitted by applicable law. Any authorization you provide to us may be revoked at any time in writing except to the extent that we have taken action in reliance upon it. After you revoke your authorization, we will no longer use or share your PHI for the reasons described in the authorization. Please note we are required to retain records of your care.
To obtain a form for any of the above requests or if you have any questions regarding this notice or our health information privacy policies, contact us using one of the methods listed under If You Have Questions About This Notice.
Bridging the Gap in Public Transportation for Disabled Travelers
Tuesday, September 10, 2024, 12:13 PM
By Mike Ervin If you ride public transit trains here in Chicago, at each boarding platform you will …
By Mike Ervin
If you ride public transit trains here in Chicago, at each boarding platform you will see a couple storage boxes made of silver metal. Each of those boxes contains what’s called a gap filler, which is a fiberglass square with wheels on the side. Gap fillers are painted yellow and on each, planted in blue, is the international symbol of wheelchair access and the words WELCOME ABOARD. The gap filler is about five feet tall and four feet wide.
So, whenever I ride the train, I tell my destination to the Chicago Transit Authority (CTA) customer assistant that’s on duty in the kiosk at the station from where I am departing. The CA, as they are called, then escorts me to the boarding platform. Either that or they meet me there. The CA has a big ring of keys and uses one of them to unlock the nearest silver storage box. They roll out the gap filler. When the train arrives and the doors open, the CA puts the yellow slab in place in front of the door to bridge the gap between the station platform and the train and I roll in. After the train leaves and the CA returns to their kiosk, they contact the CA on duty at the station of my destination to let them know I am coming so that they can be waiting to put down the gap filler when my train arrives so I can roll off.
When the Americans with Disabilities Act was signed into law in 1990, it mandated wheelchair access to all public transportation. So the CTA was faced with the challenge of convincing people with disabilities to try riding the newly-accessible buses and trains. Thus, the Joint Implementation Committee (JIC) was formed. JIC members were CTA officials and Chicagoans with disabilities. We met regularly to brainstorm ways to make riding the CTA as smooth as possible for wheelchair users. We knew that the key to getting wheelchair users to try riding was to make them feel welcome. We all agreed that not too many wheelchair users were going to jump on the CTA just because the federal government declared that they had a right to do so. Disabled people were too used to being excluded from the public transit system because of all the physical barriers that kept them out and the reluctance of the CTA to do anything about removing any of those barriers. They needed to be confident that the CTA understood and addressed all of the little details that added up to true accommodation.
Just adding elevators to make train stations and platforms accessible wasn’t enough. When trains pulled up to the platform and their doors opened to let riders in and out, that would create another barrier. The floor of the train would be a few inches higher than the platform. Most people would just step over that gap without giving it a thought. But that gap could prohibit a wheelchair user from boarding the trains.
So the JIC recommended that there be something available at every boarding point that can be deployed to bridge the gap. But there would have to be humans involved because these bridges weren’t going to deploy themselves. It made the most sense that assisting people with disabilities in this way would be one of the job duties of the CA. But what if there was no CA on duty or if they were away from the kiosk assisting somebody else and couldn’t be contacted?
In that case, if there was no CA around and a passenger needed the gap filler to get on or off of the train, it would be the job of the person operating the train to get out of the train and deploy it.
That’s how the gap fillers and the system of deploying then came to be long, long ago. There are a lot of moving parts, which makes it more likely that something will go wrong. But all I can say is that I have ridden CTA trains hundreds of times. And whenever I’ve needed the gap filler, a CA or train operator has always deployed it. It’s become a matter of routine for CTA employees. When someone who uses a wheelchair shows up to ride, everybody knows just what to do.
But one thing that has changed since the ADA became law is that train cars that are much more wheelchair accessible are being manufactured and CTA has put several of them into service. When a train consisting of these cars pulls up and the door opens, the car is usually on the same level as the platform so there’s no need for me to use the gap filler to get on or off.
That’s what happened when I rode a CTA train earlier this summer. As I waited on the platform for the train to arrive, the CA vigilantly stood next to me clutching the yellow gap filler. ready to put it in place. But when the train pulled up and the doors opened, it was one of the newer, more accessible cars. The entrance of the doorway was level with the platform so I really didn’t need to use the gap filler to get on. But before I could say anything, the CA was already putting the gap filler in place. So I just thanked him and rolled on.
When I arrived at my destination, another CA was waiting on the platform with a gap filler. The doors opened and again, before I knew it, she had put it in place.
My return trip went the same way. The train car was one of the new ones so I didn’t need the gap filler to get on or off. But the CAs were always right there to put one in place.
And again, the only thing I said to them was thank you. I didn’t want to say or do anything that might discourage any of them from going the extra mile to make people with disabilities feel welcome riding the CTA.
Mike Ervin is a writer and disability-rights activist living in Chicago. He is a columnist for the Progressive magazine and writes the blog Smart Ass Cripple.
Sex Ed for All: How We Can Support Disabled Students
Friday, September 6, 2024, 1:35 PM
By Ashira Greenberg Sex education is a sensitive topic that garners a lot of attention in news and m…
By Ashira Greenberg
Sex education is a sensitive topic that garners a lot of attention in news and media. While sex education is intended to keep people safe and prepare youth for life, many people get uncomfortable with how to approach the topic to support young people, which leads to much discussion about how to approach sex education throughout the country. No national laws govern what sex education should include or how content should be taught across the country. Additionally, states’ laws and guidelines can often mean that there is no guarantee that education sufficiently covers the topics that people need to learn to stay healthy. According to SIECUS’ state profiles, several states emphasize abstinence-only education for all students, and so many students are left out of conversation entirely in certain spaces — including LGBTQ+ students, BIPOC students and disabled students. While the focus of this blog is disability and accessibility, reflection on the experiences of different communities is important as people do not live single-issue lives.
People with disabilities are a diverse group with different needs and experiences. According to the United Nations, the disability community is the largest minority in the world, and the community intersects with all other communities. The World Health Organization highlights that people with disabilities can identify with any gender as well as with any sexual orientation and the community spans across all cultures. Regardless of identities or background, people with disabilities can be impacted by a full gamut of sexual experiences, including casual encounters, violence and abuse, and long-term committed relationships.
According to SIECUS’ 2021 Call-to-Action, however, students with disabilities in the United States are less likely to receive sex education than students who do not have disabilities. Among students with disabilities who do receive formal sex education at school, accommodations and representation within lessons can be limited. Only three states specifically include people with disabilities in sex education requirements, and only five states have additional requirements mandating that health curricula be accessible for people with disabilities. While students with disabilities across the United States may have an Individualized Education Program (IEP) or 504 Plan to outline accommodations that must be provided by law to support a given student throughout education, inclusive experiences encompass more than basic accommodations. Legal compliance is key, but a lack of support in classrooms still contributes to risks and harms that impact the disability community. Disability experiences can be more nuanced than legal definitions. Due to a variety of barriers, students with disabilities may have limited access to educational and informational resources, so supportive teachers are key to successful experiences.
Best practices for accessible and inclusive lessons foster supportive environments for all students with a wide variety of needs. Setting up the learning environment is key to supporting success for all learners. Ensure that the space is accessible, so all people can easily access bathrooms and personal belongings. Be mindful of noises, scents, room temperature, textures, and lighting to support physical comfort. Recognize that students may require accessible furniture, adaptive devices, support people, or service animals to engage in sessions. Setting up the space to accommodate such needs is critical. Setting classroom expectations, like “raise your hand before speaking” and “one speaker at a time,” can help facilitate access by creating a culture of engagement that meets people’s needs. Some expectations may also need to be adjusted to support student needs. Students may need breaks during lessons to allow for movement, snacks, drinks or restroom needs, so plan to be flexible with timing for activities and offer extra time when needed. In addition to a confidential space for questions, tell students how to best communicate concerns with you and ask students for the best way to communicate with them.
Beyond the learning structure, develop a classroom culture with resources that support different learning styles and highlight disability experiences. Educational frameworks, such as Universal Design for Learning and Differentiated Instruction, can set the groundwork for accessible lessons. Universal Design for Learning encourages teachers to facilitate lessons that allow for multiple means of engagement, representation, action, and expression for students to demonstrate learning in different ways.
Beyond Universal Design for Learning, Differentiated Instruction tailors education to students’ individual learning needs. Be mindful of accessibility of all materials, and consider which textual, audio, visual, and tactile resources will best support learning. Choose educational modalities based on students’ unique needs and offer a variety of different options when possible to maximize the opportunity for engagement with content. When sharing content, clearly define terms to minimize miscommunication and facilitate understanding in areas that may be less familiar or especially sensitive. Emphasize the many potential ways that people can experience fulfilling friendships, relationships, and sexuality. Make sure students know about different ways that abuse can show up in different kinds of relationships. Expand messages about safety and respect to include the needs as well as experiences of students with disabilities who may have some unique concerns. With respect to both consensual and non-consensual interactions, include information on sexually transmitted infections, pregnancy, and contraception. Modify role play or story prompts to incorporate a variety of disabilities in different roles throughout scenarios. Support students with disabilities to navigate situations through self-advocacy and asking for help when needed. If content becomes overwhelming or triggering for some students, allow space for self-care. People need to support each other to create the healthier spaces that are the goal of sex education.
A note on representation: Inclusive representation that shows and tells the story of disability is important in all aspects of life. In the realm of sexuality and relationships where people with disabilities are typically excluded, representation is even more critical to positive experiences. While books, television shows and movies are starting to openly explore sex for disabled people, many resources may be lacking in authenticity and give a mixed impression of disabled experiences. While disabled experiences can be complex, teachers should be mindful of ways that the media can reinforce tropes about disability in the context of sexuality and relationships. Try to select media that includes authentic representation of disability as well as media that was developed directly by disabled people. Many disabled creators and authors have developed videos, books or other resources that explore disabled sexuality as well as relationships. That said, a representation gap exists in the experience of disabled people in sexual/reproductive healthcare. Healthcare is a key part of actualizing sexuality education safely, and many educators offer “talk to your trusted adult or your healthcare provider” as the automatic response to questions that feel more nuanced or less familiar, which often includes questions about disability. Unfortunately, access to trusted adults and healthcare providers for support with sexual/reproductive health can be uniquely difficult for people with disabilities. Some healthcare spaces have developed articles and videos for people with disabilities, so keeping resources available can be helpful.
All people need affection, love, acceptance and companionship. Disability does not negate a person’s sexuality, bodily autonomy and the right to positive relationships. While disability is common throughout the world, gaps in education harm the disability community, and a lack of support in the classroom can add to the challenge of accessing safe, healthy and fulfilling sexual experiences. Best practice guidance fosters supportive environments for all students with a wide variety of different kinds of needs. Access is just one step to inclusion for people with different identities, but without access, full inclusion is impossible. Students with disabilities deserve access to education like students without disabilities, and all students deserve access to respectful relationships.
Ashira Greenberg (she/her/hers) graduated with her Master of Public Health from Columbia University’s Mailman School of Public Health and received her CHES certification. Ashira is passionate about child, youth and family health with an interest in improving educational and healthcare experiences for all young people. Ashira is especially committed to advocacy and health promotion on behalf of youth with disabilities, chronic illness and complex health needs.
Why Having a College Plan is So Important For Disabled Students
Tuesday, August 27, 2024, 10:00 AM
By Dom Evans When I was in high school, I didn’t understand that my guidance counselor should …
By Dom Evans
When I was in high school, I didn’t understand that my guidance counselor should be helping me figure out what colleges I wanted to attend. I believe this was largely because of ableism. My guidance counselor would occasionally see me, but never specifically to talk about my future, probably because he didn’t think I had much of a future.
I also got the feeling that he thought because I handled so much of my life on my own, this was just another area I could figure out myself.
Since the time I was four, I knew I wanted to be an actor. As a teenager, I was heavily involved in theater and acting and had quite a lot of experience and training. I should’ve been looking at schools like NYU, USC, or UCLA. I should’ve been training and preparing for auditions.
Instead, I was floundering — I was stagnant in my approach to contacting schools. I got an offer to apply to Fordham, and I did, getting into their theater program. I was offered a chance to audition but my family believed I couldn’t go to school outside of Ohio if I wanted assistance from Ohio’s Bureau of Vocational Rehabilitation (BVR).
Nobody told me about BVR either. I’m not quite sure how I got connected with them, but they were also supposed to help me figure out my collegiate goals, and they told me I shouldn’t even bother applying outside of Ohio. The only problem was, there were better schools for what I wanted to do outside Ohio and I should have found a way to go to them — scholarships or something else.
In the end, I first went to Bowling Green State University, 30 minutes from my house. I then transferred down to Wright State University, which was a few hours from my house, but much more physically accessible. Both schools had pretty good theatre programs, but because of my ADHD, it was near impossible for me to figure out auditioning, and with WSU in particular, I wasn’t even prepared for auditions when I was finally scheduled to do so. I didn’t practice the way I should have, or invest time in working out what I needed to do for my audition. I believe this is because of executive functioning issues that were never addressed.
So, what ended up happening was that it took me SEVEN years of schooling to get my degree, and I went to three different schools. I spent a little time at the University of Michigan-Flint, also in their theatre program. By the time I transferred back to WSU, I was no longer pursuing theater. I was studying film. My goals had changed because my life had changed and that was partly because of my disability.
I had been injured multiple times and no longer had the capacity to be a working actor, so I decided to go behind the screen. Again, I had to figure everything out alone. My guidance counselor didn’t treat me like my peers because, like everyone else, he just did not know what to do with me because of my disability. Unfortunately, there’s nobody there to hold your hand and walk you through the process when you are disabled in most situations, and because of that I feel a lot of us miss out on a lot of opportunities.
I probably wouldn’t have gone to any of the schools I went to except for University of Michigan, if I had an actual choice. When you require homecare, when you can’t travel without assistance, these things all make it difficult to go to school far away. That being said, disabled people can do it. There were many people at WSU who came from different areas because the school was physically accessible to wheelchair users.
What really needs to happen is that when you are in high school, starting around junior year, you need to figure out what you want to do. Do you want to go to college? Do you want to go to a trade school? Sometimes going to college can help you figure out what you want to do, so if you are not sure what you want to do, go for a year and explore different classes.
If you do have a goal, what are the best schools for what you want to do? Do you have the grades to get into that school? If you do, what requirements for your disability are you going to need to accommodate? Can that school handle those accommodations? These are the first questions you need to ask yourself. There are questions I desperately wish I had asked myself or someone else had asked me. I believe I would have wasted less time in school if I had a better plan.
Once you figure those things out, what is your plan? You should obviously visit the school. Don’t attend a school you haven’t visited, especially if you are disabled. Once I got to WSU and I realized how physically accessible it was, I knew that It was going to be a breeze getting around. That was never a problem and I was able to become independent because I was able to live on my own on campus at WSU.
If you need homecare, that is something you need to figure out. Most states will allow you to still get your homecare if you are going to school somewhere else as long as your family/guardian is still living in the state that is providing the homecare. However, you’ll want to figure out home care issues before heading to college because having to figure it out while you’re going to school is a total headache
After you have visited, you should definitely talk to disability services and make sure they know who you are. Make sure they know what you need them to help you with in terms of accommodation. You may have to give them paperwork and something from your doctor so they can offer you services. It’s good to get that done as soon as possible.
If you have a major that you are going to declare, you also should reach out to the department. They need to become familiar with you and your accommodations. I always met with or emailed teachers if I could before class to let them know who I was and hash out anything I needed from them before classes began.
A lot of planning for college when it comes to being disabled is preparation. I didn’t understand I needed preparation and my education suffered as a result. It took me longer to graduate and figure out how I could accommodate myself.
Reach out to your guidance counselor now to help you with all of this rather than waiting until your senior year when they may not have the means or knowledge to help you figure out your past forward through higher education.
Dom Evans is the founder of FilmDis, a media monitoring organization that studies and reports on disability representation in the media. He is a Hollywood consultant, television aficionado, and future showrunner. His knowledge and interest on disability extends through media, entertainment, healthcare, gaming and nerdy topics, marriage equality, sex and sexuality, parenting, education, and more. He was also featured in Season 1 of Everything You Know About Disability is Wrong, an Easterseals podcast.
How Mandatory Travel Makes Higher Education Inaccessible
Monday, August 19, 2024, 1:50 PM
By Mids Meinberg You’ve managed to overcome a wide variety of structural barriers and have successfu…
By Mids Meinberg
You’ve managed to overcome a wide variety of structural barriers and have successfully enrolled at a university. The course work is manageable, if time consuming, and navigating the campus is more difficult and draining than anticipated. Still, you’re doing as well as you can in facing the wide variety of obstacles that appear in front of you every day. You’re not excelling, but you’re surviving. Then one of your courses, an elective that you were very interested in, springs a new requirement on you: a project that counts for a quarter of your grade, that will require you to leave campus.
Meinberg
For most students, leaving campus is a relatively simple task. Even those that can’t drive or don’t have a car have the tools available to seek assistance from their peers. For disabled students, asking for this kind of help is significantly more difficult, even impossible, depending on the accessibility needs of the specific student. A non-ambulatory wheelchair user requires specifically outfitted vehicles that most college students will not have. Someone with persistent social anxiety or autism may find it difficult to ask for assistance from their peers.
Even in those universities located within cities or within broader metropolitan areas, the campuses are rarely directly connected with the public transit networks of those cities. When I attended Rice University, I had multiple times where I was required to go off campus, but I struggled with each of them, adding to the difficulty of my developing depression and lack of a support network.
For an art history course, I was assigned to a group that set out to do a survey of low-income Houston architecture. The other members of the group were older and more established at the university than me, and ultimately, I did not contribute to the group project despite my best intentions. I simply did not have the social tools to navigate the gap in experience as mediated by my growing social anxiety to ask for the assistance from the group members that would allow me to participate as required.
Also, an acting course at Rice required me to attend multiple off-campus live theater shows. While I managed to attend one toward the end of the semester because acting courses inherently open up routes of conversation and establish bonds, attending only one was insufficient for the course’s requirement. Requiring off-campus show attendance was particularly striking because of the high quantity of on-campus productions. Forcing students to go beyond their capability when there were perfectly valid, if less professional, options available within the expected boundaries was unnecessary and alienating.
In contrast, at Stockton (which I attended later in life), I had only a single mandatory activity that had me leave campus. However, this was a group activity that was scheduled with the aid of the course’s professor, thus creating a structured place to discuss group transportation. Everyone was willing to carpool anyone, so my inability to drive did not leave me on the outs from participating. Stockton’s acting courses also required a student to see two productions, but allowed for on-campus shows thus making it so much easier to meet that requirement.
For many disabled students, especially since the outbreak of COVID-19, even attending university on-campus is impossible. The risks associated provide massive barriers to entry, even in those cases where the campus is technically accessible. In response, many have turned to online programs to provide the safety that they require, allowing them to participate in upper education while still remaining in a fully accessible environment.
Yet, fully online programs become rarer and rarer the higher the degree being pursued. According to an interview with Erin Hawley, there are no fully online PhD programs for her degree. She earned a Master’s degree in English via an online program at East Carolina University, but has failed to find opportunities to attain her doctorate. For other areas of study, like creative writing, it can be difficult or even impossible to find even a BFA program that is fully online.
Instead, the more common structure for the pursuit of online degrees is a limited residency program. A limited residency program is mostly online, but has a fraction of the semester (usually two weeks) take place face-to-face on campus. The benefit of a limited residency program is that they allow students to meet with their professors and peers in person, serving as the basis for the ongoing work that the student will do at home for the rest of the semester. Limited residency programs are of the highest value to students who are also working, allowing for them to take a relatively short time away from their jobs while continuing their education.
“I’ve wanted to pursue my doctorate for over 9 years, but haven’t found a single English program that doesn’t require me to board an airplane – something that’s impossible for me because I can’t fly with my modified wheelchair or transfer and sit in a standard airplane seat,” Erin said. “This inaccessibility shows how ableism often works in tandem. Airplanes and long-distance travel are not accessible, which makes academia not accessible for me. We need change that addresses how systematic inequalities compound to make easy tasks for anyone who isn’t disabled impossible for those who are.”
Obviously, this structure makes for immediate accessibility concerns. A short time on campus will be as difficult for a disabled person as a long time, as the physical and social barriers that exist in the space will be immediately apparent. In addition to the difficulties on campus, transportation to the campus is a major obstacle itself for many disabled people. Planes are rarely accessible for even ambulatory wheelchair users, and are very expensive. Long car rides bring their own issues, especially for disabled people who cannot drive. The transportation issue is exacerbated by the short time spent on campus, as it means these difficult trips will happen in closer proximity to each other. This does not even broach the expenses associated with bringing a caretaker along for two weeks away from home.
Telecommunication technology is more advanced now than ever before in part because of advances made to accommodate for the COVID-19 pandemic. These tools make it so that the benefits of limited residency programs can be met technologically rather than spatially. Fully online programs should be more widespread, no matter the degree, as they provide the greatest accessibility possible.
We have the tools available to allow disabled people to engage in higher education at all levels and in all fields. All that is needed is for society to accept the changes that are needed to bring these programs to the forefront.
Mids Meinberg is a writer and game designer working out of New Jersey. They have an AA in Creative Writing from Brookdale Community College.
How Easterseals Oregon’s SCSEP Program Connects Older Adults to Employment
Thursday, August 15, 2024, 2:57 PM
By Grant Stoner Employment is a crucial aspect of the human experience. From a young age, people att…
By Grant Stoner
Employment is a crucial aspect of the human experience. From a young age, people attend schools to train specific skills, work jobs to bolster their knowledge, and spend years hoping to establish savings for retirement. Yet, for many, the need to work and seek employment does not end in your 50s or 60s. In fact, for some, it’s only the beginning.
Easterseals Oregon understands the importance of helping individuals find employment opportunities. Through theSenior Community Service Employment Program (SCSEP), Easterseals, in conjunction with the state of Oregon, assists those 55 and over within 34 of the 36 counties to develop necessary skills that allow them to either return to the workforce or enter it for the first time. Speaking with Easterseals,Kathryn Gerhards, Director of Employment Services at Easterseals Oregon, explores the importance of SCSEP, what services enrolled members can access, and even some personal stories from staff and former members.
Why SCSEP Matters
Despite the existence of state and federal programs like Social Security and Medicare and Medicaid, older Americans may lack the appropriate funds for necessities like housing, food, and clothing. Further, with an increase in the evolution of technology and digital services, many older adults struggle to even enter the workforce at all. Gerhards explains the role of SCSEP, noting that not only does it provide employment, but also teaches them how to thrive in the digital age.
“Through SCSEP, participants are placed in internship programs in their county,” Gerhards said. “These internships are hosted by non-profits and federally funded programs. While placed, participants receive coaching and supervision to gain skills that they can use towards employment. During their placement participants work on things like computer comfortability, soft skills, time management, etc. while in a supportive environment. This allows them current experience to add to their resume and gives them a current reference while job seeking.”
Aside from providing technical skills, SCSEP gives members a vital tool regardless of occupation – confidence. Being able to comfortably and confidently enter a new position is beneficial, especially for seniors that not only understand their desired role, but how to navigate the modern era. SCSEP teaches members to embrace modernity which is vital for any job.
“Almost more importantly, these placements also allow job seekers to be and provide value to their internship program,” Gerhards said. “This increases their confidence and gives them a place to belong. This program is funded by the Department of Labor. This funding allows participants to receive a stipend for every hour that they train. This stipend provides more financial breathing room while they job seek, which gets them back on their feet while they work towards securing unsubsidized employment.”
Crucial Services
Since its establishment, Easterseals Oregon has assisted thousands of mature job seekers through SCSEP. Gerhards explains that every year, approximately 500 individuals are serviced throughout the state of Oregon. And since SCSEP is a national program, members can move to a different state and continue to receive services. For a total of four years, participants can access a bevy of tools through numerous workshops and partnering organizations that ultimately bring them into the workforce.
“SCSEP participants engage in platforms like GetSetUP and IBMSkillsBuild,” Gerhards said. “We also offer financial literacy through Chase Bank. Through our Business Advisory Committee (BAC), participants also get resume reviews, have access to resume templates, and more. We also are co-located with Worksourses (OneStops) around the state that give them access to local programs like STEP that provide additional support.”
Internships and partnered assistance are not the only forms of assistance available to older adults. Gerhards explains that throughout the entire four-year process, Easterseals Oregon continuously works with each member to refine their skills and help them find employment. “While not at their internship placement, participants also receive support from ESO staff through resume coaching, access to training, job leads, support services and more while they travel their SCSEP journey.”
Success Stories
For each individual enrolled within SCSEP, there are countless stories of success, both with seeking employment, as well as finding a sense of purpose and community. Through the four-year program, mature workers are consistently entering the workforce to once again receive livable wages. One example proves that even at the age of 81, you can still find joy in your work.
“The SCSEP program enrolled me at a point in my life where I was close to being unemployable due to my age and years of looking after my mother rather than continuing as an Insurance Agent,” a SCSEP participant said. “This worked out so well that I was hired by ESO-SCSEP in 2017 as a Data Entry Specialist and Program Assistant. This has given me an increase in salary and the satisfaction in knowing that my efforts are constructively helping older people participate in the economy and realize improved lifestyles. Now at 81, I enjoy the things I do to make SCSEP a viable organization and assist so many elders to actively live healthy and worthwhile lives.”
As mentioned before, SCSEP helps to establish confidence after tragic moments in an individual’s life. For many people, reentering the workforce can be a traumatic experience, especially after, in some cases, needing to completely rebuild — like one participant at Easterseals Oregon.
“The participant who after a life-long career in catering, lost everything after a traumatic injury,” a member of Easterseals Oregon said. “Her house, her business, and in her own words, ‘her entire sense of self.’ Within three months, she is housed and training at a food bank, writing grants, creating recipes based on available food donations, and facilitating inter-agency collaborations to improve food security for Benton County.”
For participants and employees within Easterseals Oregon’s SCSEP, providing a second chance is an invaluable resource for so many individuals. Whether it’s personal moments or nationwide traumatic events like the COVID-19 pandemic, everyone deserves help during their time of need. And for one Easterseals employee, providing mature workers with the confidence to rebuild is a powerful experience.
“We are assisting people not only with reaching sustainable employment, but we are also helping them navigate a world that has become dismissive of their lived experiences, technologically complicated, and often feels overwhelming,” they said. “We remind them of their value. We guide them on how to reconnect with their capabilities. We introduce them to the tools they can use to learn new skills, and the impact is exponential when they start believing in themselves.”