Privacy Policy

Last Updated April 19, 2023

Easter Seals, Inc. (d/b/a "Easterseals") ("we," "our," or "us") understands that data privacy and the protection of personal information is important to you. This Privacy Notice explains how we collect, use and share your personal information, and your rights and choices regarding the personal information we collect about you.

Please read this Notice carefully to understand our policies and practices regarding your personal information and how we will process it. You can also click on the links below to navigate to a specific section.

  1. Scope of Notice
  2. Personal Information Collection
  3. How We Use Personal Information
  4. How We Disclose Personal Information
  5. Easterseals Affiliate Members
  6. Links to Other Sites
  7. Security of Personal Information
  8. Transmission of Health-Related Information
  9. Retention of Personal Information
  10. Your Rights and Choices Regarding your Personal Information
  11. Cookies
  12. International Transfers of Personal Information
  13. Information from Children
  14. Changes to this Notice
  15. Contact Us

1. Scope of Notice

This Privacy Notice applies to all donors, members, website visitors, business partners, employees, job applicants, and individuals who otherwise interact with Easterseals whom we collect personal information from. We often refer to your interactions with us as using our "services" throughout this Notice.

2. Personal Information Collection

We collect a variety of information as part of our operations, including personal information and other information. "Personal information" is any information that identifies, relates to, describes, is reasonably capable of being associated with, or could reasonably be linked, directly or indirectly, with an identifiable individual.

a. How We Collect Personal Information

Easterseals collects information, including personal information, from and about its donors, event attendees and program participants, individuals who interact with our affiliate members, employees and job applicants, individuals who visit our website and other individuals who choose to interact with us. We collect information from or about you in the following ways:

  • Directly from you. We collect information directly from you when you make a donation, create a user profile on our website, attend an event or program we are offering, apply for employment or gain employment with us, when you visit our website, and when you otherwise voluntarily submit or provide information to us.
  • Automatically. When you visit and interact with our website, we collect information automatically through cookies. For more information about cookies on our website, please visit the section below titled "Cookies."
  • From our Affiliate Members. We rely on our affiliate members to provide us with information about the individuals they provide services to and interact with so that we can understand the impact of our and our affiliate members' programs and services, yield actionable insights, and drive future-forward decision making to ensure that our services and programs make the most impact in the communities we serve.
  • From Other Sources. We may collect information about you from other sources and we may combine information from other sources with information we collect through our services or interactions with you. Examples of the other sources we most frequently collect information from includes national donor data bases and registries, and companies that compile mailing lists about individuals.

b. Types of Personal Information We Collect

The types of personal information we collect depends on how you interact with us, including whether the interaction is through one of our affiliate members or directly with us. In many cases, the personal information we collect will be apparent from the context in which you provide the information.

We collect the following types of personal information from you depending on how you interact with us (i.e., donor, employee, etc.).

Categories of Personal InformationCategories of individuals
Contact Information. This includes your name, mailing address, email address, social media handle, or other similar identifiers.
  • Donors
  • Employees and job applicants
  • Website visitors
  • Event attendees
  • Program participants
  • Individuals who interact with our affiliate members
  • Easterseals affiliate member users
Identification Information. This includes your SSN, driver's license number, passport number, or similar legal identification information.
  • Employees and job applicants
Profile Information. This includes information about your activity and interactions with us, including your donor tendencies and donation history, information you voluntarily provide to us or that we collect from other sources regarding your interests, preferences, and characteristics. We compile this information we collect about you to better understand you.
  • Donors
  • Website visitors
  • Event attendees
  • Program participants
  • Individuals who interact with our affiliate members
  • Easterseals affiliate member users
Health Information. This is information about your health, disability, or medical condition which may include "Protected Health Information" (PHI).
  • Event attendees
  • Program participants
  • Individuals who interact with our affiliate members
  • Employees and job applicants (if you choose to participate in our group health plan)
Financial Information. This includes information about your wealth and financial status, income, credit card, bank account, or payment information.
  • Donors
  • Employees and job applicants
  • Individuals who interact with our affiliate members
Location Information. This includes information about your location.
  • Donors
  • Website visitors
  • Easterseals affiliate member users
Professional or Employment-Related Information. Current or past job history or performance evaluations.
  • Employees and job applicants
  • Affiliate clinical and non-clinical service providers
Internet or other similar network activity. Browsing history, search history, information on your interaction with a website, application, or advertisement.
  • Website visitors
  • Donors
  • Easterseals affiliate member users
Interaction Information. This includes information about your attendance at events we host or programs we sponsor, as well as information about correspondence with us and other ways you interact with us.
  • Donors
  • Event attendees
  • Program participants
  • Website visitors
  • Individuals who interact with our affiliate members
  • Easterseals affiliate member users
Sensitive Personal Information. We may collect certain sensitive personal information including race, gender, and age information. This information is collected in aggregate form.
  • Employees and job applicants
  • Individuals who interact with our affiliate members
  • Easterseals affiliate member users

We may not collect all of the above categories of information from each category of individual who interacts with us. Please note that if you voluntarily provide us with additional information when you interact with us that does not fit one of these categories of information or individuals set forth above, we will collect the information and use it for the purposes you direct or that we disclose to you.

As noted above, in certain circumstances, we may also collect "Protected Health Information." "Protected Health Information" ("PHI") is individually identifiable health information. We sometimes collect PHI when we gather information about the effectiveness of our programs in order to understand whether a program that we or our affiliate members offered resulted in improved outcomes for the individuals or communities our programs are designed to serve.

3. How We Use Personal Information

We use personal information for our legitimate business purposes to further our mission and for other purposes disclosed to you at the time data is collected. More specifically, we use personal information in the following ways:

  • Provide our services, programs, and events to the communities and individuals we serve.
  • Send you confirmations about event or program registration, or donations.
  • Process donations and gifts made to Easterseals or our affiliate members.
  • Understand our donor base and potential donors.
  • Measure the effectiveness of our services, programs, and events, including services, programs, and events offered by our affiliate members.
  • Communicate with you about our services, programs, events, happenings, and news.
  • Respond to your comments, inquiries, and customer service requests.
  • Market our events, services, programs, and potential donor opportunities to you. You may opt-out of marketing communications at any time.
  • Provide you with employment, or consider you for employment with Easterseals.
  • Process payroll and other benefits afforded to our employees.
  • Improve and personalize our content and services.
  • Monitor and analyze trends regarding our services, programs, and events, including services, programs, and events offered by our affiliate members.
  • Protect against and prevent fraud, unauthorized transactions, and manage risk exposure.
  • Enforce our legal rights and agreements.
  • Comply with applicable legal requirements.
  • Carry out any other purpose you consent to, that we disclose to you at the time your data is collected, or that you direct us to.

We may aggregate and de-identify personal information we collect from you to understand the effectiveness of our programs, services, and offerings, as well as to understand our donor base and donor trends. When we aggregate or de-identify information, it is no longer personally identifiable.

4. How We Disclose Personal Information

Easterseals may share your personal information in the following circumstances, and as otherwise described in this Notice:

  • Affiliate Members. We share information with our affiliate members in order to understand and improve the impact of our and our affiliate members' programs, services, and offerings. Please see the section below titled "Easterseals Affiliate Members" for more information.
  • Service Providers, Vendors, and Consultants. We rely on third parties to perform functions on our behalf. Some of these service providers include marketing service providers, payment service providers who help us process donations and pay our employees, cloud storage providers, website hosting platforms, client relationship management providers, HR or employee benefits providers, and content providers. We endeavor to ensure written agreements are in place with all service providers, vendors, and consultants where feasible and appropriate. All service providers, vendors, and consultants are required to use the information we disclose to them at our direction and only for the purpose(s) for which it was disclosed to them, and they are required to adhere to security and confidentiality measures.
  • List Rental and Exchange Program. We may share certain information about our donors with national donor registration and list service providers in order to grow our donor base and more effectively reach current and prospective donors. If you do not wish for your information to be shared with these third parties, you may opt-out by contacting us via a method set forth in the "Contact Us" section below or by visiting our website and contacting us through a means listed on our website. If you would like to know which third parties participate in the list rental and exchange program, you may also contact us via one of the methods listed below.
  • Law Enforcement Agencies, Courts, Regulators, Government Authorities, or Other Third Parties. We may disclose your information: 1) to apply with a legal obligation or court order; 2) when we believe in good faith that the law requires it; 3) at the request of governmental authorities conducting an investigation; 4) to verify or enforce our policies, procedures, terms of service, and other agreements, or to protect the rights, property, safety, and security of Easterseals, our members, vendors, business partners, service providers, affiliate members, website visitors, or the public; 5) to respond to an emergency; or 6) when we believe it is necessary or appropriate to prevent physical harm or financial loss, or in connection with an investigation of suspected or actual illegal activity.
  • Successor Entities, Buyers, Transfers and Mergers and Acquisitions. We may disclose your information to a buyer, potential buyer, successor in interest, or to an organization in connection with a bankruptcy, transfer, merger or acquisition, or other transfer of some or all of Easterseals' or an affiliate's assets, which may include your information. If this occurs, we will endeavor to ensure that the successor entity uses your personal information in accordance with this Privacy Notice, or provides you with notice and a choice about future use of your personal information.

5. Easterseals Affiliate Members

Easterseals has a number of affiliate members throughout the United States who interact directly with the populations we serve by bringing Easterseals' mission and work directly into the community in which the affiliate member operates. While our affiliate member organizations are associated with and use Easterseals branding, they may have their own practices regarding how they collect, use, share, and retain information when you interact with them.

As described above, affiliate members share information with us, and we share information with our affiliate members. This information sharing occurs so that we can understand the impact of our and our affiliate members' programs and services, yield actionable insights, and drive future-forward decision making so that we can continue to further the Easterseals' mission of equity, inclusion, and access for individuals with disabilities.

Easterseals' website may contain links to other sites, including to our affiliate members, as well as links to non-affiliated third parties, such as social networks or business partners. These linked sites may have personal information collection, use, and disclosure practices that differ from Easterseals' practices. We encourage you to review the privacy policies of websites that you visit before sharing your personal information with them. Please also be aware that if you disclose personal information, PHI, or other sensitive information through public forums, at an event, or on online message boards, this information may be used by others. We take no responsibility for the content, security, or confidentiality of any information posted on or conveyed in these public spaces.

7. Security of Personal Information

Easterseals knows that information security is of the utmost important to our donors, affiliate members, website visitors, and individuals whose information we collect. We maintain reasonable technical, administrative, physical, and organizational safeguards in proportion to the sensitivity of information we collect that are designed to prevent unauthorized access, use, and disclosure of personal information.

However, no electronic data transmission or processing of personal information is completely secure, so we cannot guarantee the security of personal information. We encourage you to assist us with securing your personal information by using a strong password and not disclosing your login credentials, where applicable, to anyone. If we become aware of an incident that affects your personal information, we will investigate and comply with all reporting obligations.

8. Transmission of Health-Related Information

Easterseals understands the sensitivity of collecting and using health-related data. It is not Easterseals' intent to collect personally identifiable health-related information or PHI. If we do collect personally identifiable health-related information or PHI, it will not be used by or shared with entities other than Easterseals or our affiliate members, unless the information is de-identified. Any transfer of personally identifiable health-related data between Easterseals organizations will take place in a secure environment with access allowed only to certain qualified employees of Easterseals. Easterseals will comply with all regulations set forward by the Health Insurance Portability and Accountability Act (HIPAA). To learn more about HIPAA, visit the U.S. Department of Health and Human Services Office for Civil Rights.

9. Retention of Personal Information

We will retain your information only for as long as necessary to achieve the purpose for which it was collected. This may mean that we will continue to retain certain information even after we stop providing our services directly or indirectly to you, after you delete your user profile, or cease interacting with us, as required by law or for our legitimate business purposes. We may also retain de-identified, aggregated, or anonymous information that does not identify a particular individual. In all cases where we retain data, we do so in accordance with limitation periods and record retention obligations that are imposed by applicable law.

10. Your Rights and Choices Regarding your Personal Information

Easterseals offers various rights that are consistent with state consumer privacy laws. Easterseals offers the option to access, correct, and delete your personal information. If you are a registered user of our website, you can access your Easterseals profile and update your contact information and user preferences by clicking here. Upon your request, we will delete, aggregate, or de-identify personal information related to you that is retained in our organizational databases, unless we are required to continue to retain the information in an identifiable format. To exercise your right to deletion, or to modify or correct your information other than through the link above, please contact us via a method set forth in the below "Contact Us" section.

You can also change your communication preferences and opt-in or opt-out of marketing communications from Easterseals. To opt-out of receiving email communications, postal mail or from participating in the list rental and exchange program, or to request a disclosure of list rental and exchange information, please follow the directions below.

We will endeavor to fulfill all requests within a reasonable timeframe.

11. Cookies

Our website uses or may use cookies, web beacons, pixel tags, and similar technologies (collectively, "cookies"). Cookies are small text files stored directly on a website visitor's computer or mobile device that automatically collect certain information from users such as browser type, IP address, time spent online, pages visited, referring URL, and additional aggregated website traffic data. We also rely on partners to provide features of our services, which may involve using cookies.

We use cookies for the following purposes:

  • Functionality. These cookies are necessary for us to ensure that the website functions properly.
  • Security. These cookies are necessary for us to mitigate the risk of data breaches and similar attacks by ensuring that requests are submitted to our website from proper domains.
  • Authentication. These cookies allow us to authenticate user requests and to maintain session information related to users.
  • Preference. These cookies allow our website to remember which events you have signed up or registered for, the products you place in your shopping cart, and to recognize your device.
  • Advertising. These cookies allow us to provide you with more relevant advertisements.
  • Analytics. These cookies enable us to learn more about how users and visitors interact with our website, including pages visited, how much time is spent on each pages, and similar information. We use this information in aggregate.
  • Third-Party. These cookies are placed by third parties such as Google and social media networks. These cookies track and monitor how you interact with our services and other websites, provide us insight into how you interact with our website (such as analytics), facilitate account registration and login, and also enable the sharing of content from our services to these third parties. We do not control the data use or sharing practices of these third parties. If you do not wish to accept third party cookies, we encourage you to update your browser settings accordingly.

The use of cookies has become standard among website operators. Most browsers are initially set to accept cookies. You can usually set your browser to refuse cookies that are not necessary or to indicate when a cookie is being set. To understand your options regarding cookies, you can visit the help section of your web browser, or take a look at the links below:

If you refuse cookies, you may not be able to use certain functions on our website and our website may not function as smoothly as it does when cookies are enabled.

12. International Transfers of Personal Information

Easterseals and all of its affiliate members are located in the United States, and all programming offered by Easterseals and its affiliate members occurs in the United States. Because of the global nature of the internet, the Easterseals website may be accessible from jurisdictions other than the United States, even though Easterseals does not operate, provide, or market its services outside of the United States. If you access the Easterseals website outside of the United States, your information will be transferred to and processed in the United States. Since the data protection laws of various countries differ, information transferred to the United States may not be subject to the same level of protection as the jurisdiction in which you reside. If you choose to access our website from a jurisdiction outside the United States, we rely on your consent to transfer the data to the United States. To the extent you do not consent to data transfers to the United States, please do not provide us with your personal information or visit our website.

13. Information from Children

Our website is not directed towards children under the age of 13. We do not knowingly collect personal information from anyone under the age of 13 through our website without parental consent. If you become aware that we have collected personal information from an individual under the age of 13 through our website without parental consent, please let us know so that we can take appropriate action.

14. Changes to this Notice

We may update this Privacy Notice from time to time. If we make material updates to this Notice, we will endeavor to provide you notice by placing a prominent notice on this website and/or sending an email notification of the change. We will also update the "last updated" date at the top of this policy. Any changes will be effective immediately on posting unless otherwise indicated. Continued use of our services after updates to our Notice will be deemed consent to the changes.

15. Contact Us

If you have any questions about this Notice or our information practices, please contact us by emailing us through this link or directly at info@easterseals.com, calling us toll-free at 800-221-6827, or writing to us at:

Easter Seals, Inc.
Attn: Privacy Manager
141 W. Jackson Blvd
Suite 1400A
Chicago, IL 60604

EASTER SEALS EAST GEORGIA -- POLICY ON CONFIDENTIALITY

 

The Easter Seals East Georgia (ESEG) shall not release confidential, personal information from its files without receipt of the informed written consent of the individual (or his/her representative, as appropriate) about whom the file is maintained. Personal information may be released to an organization, agency or individual as outlined under the procedural section of this policy.  Legal consultation shall be sought in any instance when there is legal notification of pending litigation against Easter Seals or it's representative or when Easter Seals or it's representative wishes to pursue legal action related to this policy. 

 

PROCEDURE:

 

Informed written consent shall include the purpose for which the information is desired, specific information desired, date of expiration of the informed written consent and dated signature of the individual or his/her representative.  The ESEG release form shall be used when requesting information or (if possible) when information is being requested from us.

A.Release to the individual:  When a written request is received from the client or his/her representative, the client will be directed to the referral source to procure that information since all information received in the referral packet was generated by other agencies/organizations/individuals and the information generated by us was at the request of and through payment by that referral source. Medical, psychological or other information which Easter Seals believes may be harmful to the individual may not be released directly to the individual but must be provided through his/her representative, a physician or a licensed or certified psychologist.

B.Release for audit, evaluation or research:  Personal information may be released to an organization, agency, or individual engaged in an approved audit, evaluation, or research only for purposes directly connected with the administration of the vocational rehabilitation program, or for purposes which would significantly improve the quality of life for persons with disabilities, and only if the organization, agency, or individual assures that:

1. The information shall be used only for purposes for which it is being provided;

2. The information shall be released only to persons officially connected with the audit, evaluation, or research;

3. The information shall not be released to the involved individual;

4. The information shall be managed in a manner to safeguard  confidentiality; and

5. The final product shall not reveal any personal identifying information without the informed written consent of the involved individual, or his/her representative.
           6. Easter Seals employees have the responsibility to require appropriate authorization and identification of any person requesting access to client information or data systems.  If there is any question regarding the request or the authority of  the person to access information, the President/CEO should be contacted immediately.  All requests for research, data and audits are required to have clearance through the President/CEO's office.  

C.Release to other programs or authorities:  Upon receiving the informed written consent of the individual, Easter Seals may release to another agency or organization for its program purposes only that personal information which was generated by Easter Seals, and only to the extent that the other agency or organization demonstrates that the information requested is necessary for its program.  Medical or psychological information which Easter Seals believes may be harmful to the individual may be released when the other agency or organization assures the division that  the information shall be used only for the purposes for which it is being provided and shall not be further released to the involved individual. 

 

D.Easter Seals shall release personal information in response to investigations in connection with law enforcement, fraud, or abuse, (except where expressly prohibited by federal or state laws or regulations) and in response to judicial order (subpoena).

 

E.In an emergency situation, Easter Seals may release personal information in order to protect the individual or others when the individual poses a threat to his/her safety or to the safety of others. Example: Hostage taking.

 

F.Subpoena, Request for Production of Document, Lawsuit, Deposition, Interview:  Upon receipt of a subpoena, any legal process, an informal request from an attorney or individual's representative, or any person for access to, or production of, information contained in a case file or records without the informed written consent of the individual the employee shall immediately notify his/her supervisor and the  President/CEO, who shall, when appropriate, notify Easter Seals' legal counsel.  Should circumstances make it impossible to obtain assistance prior to the time noted on the subpoena or the legal process for the employee's appearance, the employee shall appear at the designated time and place, but shall refuse to divulge, either verbally or by producing documents, the contents or substance of the individual's case file, unless and until ordered to do so by a specific verbal or written order of the judge of the court before whom the matter is pending.  In so refusing to divulge the information, the employee shall advise the person requesting the testimony or documents that disclosure is prohibited by federal confidentiality regulations 34 CFR 361.49 (e)(3), but that if ordered to disclose by the court, the employee shall comply.  At such time as an order from the judge is received by the employee, the employee shall immediately comply therewith.

Powered by Blackbaud
nonprofit software