Today marks the 31^st anniversary of the landmark Americans with Disabilities Act of 1990 (ADA). As we honor this historic legislation and the progress we’ve made since, we also find ourselves at a difficult and transitional time in the world. For children and adults with disabilities – who represent some 61 million Americans – there is no doubt they have been disproportionately impacted by the pandemic, especially when it comes to healthcare equity, education, employment, and financial stability. Further, for disabled people of color, these hardships are only compounded.

Even before the pandemic, people with disabilities were already at a societal disadvantage. Historically under-reported and discounted, the disability community has long faced discrimination in:

• Employment, with many employers not understanding the talent, skills and potential of people with disabilities.
• Healthcare, with limited access to quality healthcare and a lack of general understanding or training by the medical community to adequately support their unique needs; and,
• Society, with outdated and hurtful stigmas still rooted in the culture of our neighborhoods, schools and workplaces.

If we are to truly build back and move forward, we must ensure the people most affected by this tragic year receive the most support, with innovative, responsive and quality services and resources. Simply put, now is the time to urgently address these systemic barriers, once and for all.

Our communities are beginning to reopen, with many people starting to recover. For people with disabilities, the barriers to mend are much more complex and more urgent. To get to the core of these challenges, Easterseals commissioned Accenture to conduct a comprehensive national study to better understand COVID-19’s impact on the disability community. The findings are undeniable.

Take education, for example. Almost all children with significant disabilities (93%) have missed milestones due to the pandemic, compared to around half (54%) of their non-disabled peers. The first five years of a child’s life are the most critical time in their development, with these crucial years setting the trajectory of their entire lives.

People with disabilities are three times less likely to be employed, with this gap growing even wider during COVID. Additionally, the digital divide is acutely impacting people with disabilities. They are much less likely to use the Internet, have home access to broadband, or own a computer – the lifeline for all of us through this time.

Bottom line, if our communities do not properly address the inequities people with disabilities face during this emerging post-pandemic, it will have devastating short- and long-term consequences on their quality of life and wellbeing. Not to mention the negative and financial impact on society at large. Now, after 30+ years with the ADA, it’s time to reevaluate our approach to inclusion. Like any form of progress, critical gains don’t happen in one fell swoop – it’s going to take our continued effort, energy, and action to make our modern world more equitable, inclusive and truly accessible. We can no longer afford to look the other way and not recognize this important demographic of our society. We can, should, and must do better.

As a leading nonprofit provider of outcomes-based services, we are launching a comprehensive, nationwide strategic effort to modify, expand, and amplify our services to meet the very pressing and evolving needs of people with disabilities.

We cannot do this alone. We need employers, educators, government officials, community leaders, and local organizations to step up, drive solutions and do more to advance equity for all in our communities. Only when we do this together, will we ensure every single American is valued equally.

Today is the anniversary of the Americans with Disabilities Act, and this year I’m celebrating it with the fishes.

The Shedd.

Chicago’s Shedd Aquarium contacted me last month to let me know about new ticketing kiosks with accessibility features they’d be installing soon. “We are hoping you’d be interested in assisting us in testing out the accessibility functions of our kiosks,” they wrote, explaining the process might require two separate visits. “We might only need an hour to start, and then we would probably bring you back for another session, after we make any of your recommended revisions.”

Of course I said yes.

It only dawned on me this past week that the day we chose to meet – Tuesday, July 27 – is just a day after the 31st anniversary of the Americans with Disabilities Act. In the spirit of that groundbreaking legislation, the Shedd Aquarium never expected me to volunteer my time for this project. They never assumed I am a disabled person sitting around at home with nothing to do. They actually respect my experience and will pay me for my work.

I’ve been to the Shedd many times before – attended the dolphin show with nieces and nephews, spoke on disability-related panels there, attended a wedding there, went multiple times to hear combos perform at “”Jazzing at the Shedd.” Lately I’ve been toying with heading over there sometime to maybe, just maybe, touch a stingray. Saying goodbye to you all now to ponder what a freelance accessibility consultant wears to a gig at a cool place like Chicago’s Shedd Aquarium. Will leave you with this info about the option to touch a stingray there:

How do you think a stingray feels? Soft, like a pillow? Squishy, like a marshmallow? How about scratchy, like sandpaper? There’s only one way to find out — at Shedd’s Stingray Touch experience.

Dip your hand into a shallow tropical pool and discover the unique texture and movement of a school of stingrays as these fascinating fish glide through the water in Shedd’s first outdoor environment. You’ll also learn how we care for all of the stingrays living at Shedd and how your actions can protect them in the wild.

Kudos to the Shedd for making visitors who have disabilities feel so welcome there, and also for their continuing efforts to leave everyone who visits with ways to help the environment. Looking forward to my trip over there Tuesday.

Hands typing on laptop keyboard

If ever there was a time to learn about the importance of online accessibility, it was the past year-and-a-half, when so many of us were alone at home protecting ourselves and others from the COVID-19 virus. Those of us with disabilities rely on Assistive technology to perform everyday tasks, and the pandemic put our technology training and skills to the test.

More and more Americans are becoming fully-vaccinated now, things are gradually loosening up, but many of the difficulties people with disabilities experienced with technology in 2020 and 2021 not only persist, but seem to be getting worse.

Take graphics, for example. I am blind and use a speech synthesizer to read email messages, web sites, newsletters, and so on. Many of us who are visually-impaired or blind use screen readers on our computers and smartphones. When we visit a website, as long as you’ve used alt text, our screen readers will read the alt text out loud so we know what images you’ve used. Sites that don’t use alt text correctly (or don’t use it at all) risk leaving us, quite literally, in the dark. During the past couple months I’ve noticed more and more web sites and newsletters foregoing the use of alt text and posting a message like this instead:

“To get missing image description, open the context menu.”

I know how to open the context menu, but then what? What do I search for? I looked it up on Google to learn what to do:

• Open Google Chrome browser
• Open the context menu by pressing Shift+F10 in Windows, Ctrl + Alt + Shift + m or VoiceOver+Shift+ m in Mac, Search+m in Chrome OS
• Use the up or down arrow keys to select “Get Image Descriptions from Google”
• Use the right or left arrow to open the image description menu.

I’m told this describer can be enabled for a single page or for all pages. But why should I have to leave the web site or newsletter to do this? It’s all more cumbersome for me than good old alt text.

Don’t really care about alt text? Maybe you don’t realize that adding alt text and, when possible, describing images in a way that includes a keyword you’re targeting is a great SEO tactic. In this way, I think of alt text as an example of accessible design. Alt text is beneficial for people with visual impairments, and it also helps everyone trying to increase SEO scores.

And another thing. Here in Chicago, live theater, music venues, movie theaters and other events are opening up now, but just about every time I go to purchase a ticket, some accessibility issue stops me in my tracks. Usually it’s the “spin box.” How do I stop it from spinning so I can choose the number of tickets I need?

A little research on all this led me to the Perkins School for the Blind’s Technology blog. I’ll say goodbye here with a recommendation that you read a post there to learn best practices when writing alt text. Then watch your SEO scores grow!

Happy Father’s Day to all the fathers out there! We’d especially like to wish a Happy Father’s Day to Nic Novicki – not only is Nic a brilliant actor/writer/stand-up comic, but he is also the founder/director of the Easterseals Disability Film Challenge and an Easterseals Southern California board member. The Film Challenge, in particular, is a game-changing platform for artists with disabilities that is blowing the doors open for disability inclusion across the entertainment industry.

But wait, there’s more. Nic has taken on a brand-new role as a first-time father! I was excited to be able to sit down with Nic for a chat about all things fatherhood.

Nic, on behalf of the Easterseals family, I would like to congratulate you and your wife, Teale, on the birth of your beautiful baby daughter. How are you going to celebrate your first Father’s Day?

Thank you so much. I’m very excited to be a new dad. My wife and I are so happy. I am going to celebrate my first Father’s Day by enjoying the day hanging out with my wife and daughter. Maybe I’ll watch some basketball or one of my favorite movies. Either way I am going to hang out with my family … including our French Bulldog, Rosie, who is technically our first born!

What was your reaction when you found out that you were going to be a dad?

I was ecstatic! Learning I was going to be a dad was the most exciting news I have ever heard! I have always wanted to be a father. I am a proud uncle of two great nephews, and I have always loved coaching kids’ basketball teams at LPA (Little People of America) conventions. I take pride in being a role model and having fun with kids.

Did your daughter adopt your comedic gene? Do you see a future stand-up comedian in your midst?

Yes, she is definitely a funny child. Not to mention, a night owl, total party animal! Ha! She’s got her mom and me slightly sleep-deprived. Sometimes she’ll be really upset and cry a lot or refuse to take a bottle, and whenever you start to get frustrated — she’ll give us a side-eye, with a laugh or a smile. She already knows what she’s doing, with that great sense of comedic timing!

Any hilarious comedy gold moments about being a new dad that might make it into a standup routine?

Yes! The first night of Memorial Day weekend she spit up so much that it oozed all the way down my back, going right into my underwear two separate times in just an hour. Let’s just say, it was definitely an interesting start to a holiday weekend! I earned my new dad stripes with that encounter.

How would you like to see fathers with disabilities represented in the media? Do you think there is a lack of representation there?

I would like to see more dads with disabilities in roles where the disability is never directly addressed. It’s a dad who just so happens to have a disability. I would like to see storylines with dads with disabilities on the soccer field or doing late night runs to the grocery store. That disability representation is important. Because guess, what? We are out there! There will be more progress with disability inclusion in the world when we see it authentically represented in media.

What do you think the world should know about parents with disabilities?

We are just like every other parent. There is not really much of a difference. We are going through the same things most new parents are going through in terms of sleep schedule, feeding, learning how to care for our baby, etc. The only difference is we just may need to do some things in a different way.

Did you ever have any worries / concerns about parenting while having a disability?

No. I did not have any concerns about being a parent with a disability. I have multiple friends who are parents with disabilities and they served as great role models for me. People with disabilities are natural problem solvers, it’s how we naturally go about our days. I am a little person and I have been involved with the Little People of America (LPA) my whole life, so I have grown up seeing people with disabilities as parent role models. LPA has been a great support system for me, so has my involvement with Easterseals and the Film Challenge.

What would you say to someone with a disability who is thinking about becoming a parent?

Just do it! I know a lot of people say, “It’s never the right time [to have a baby|,” but it will work out. Trust yourself and just go for it. I feel like that was the case for us. We have figured out ways to make everything work. My wife is also a little person, so we buy things that are lower and smaller to the ground and find ways to let gravity help us.

Do you know other parents with disabilities? If so, did they give you any great parenting advice that you could share with us?

Yes! We are lucky that we have a lot of friends from the Little People and disability community who have kids, so we were able to get a lot of great adaptive parenting tips in terms of the best and easiest ways for us to hold the baby, and the lightest kinds of strollers.

Sofiya Cheyenne, who is an Easterseals Disability Film Challenge participant, and a great friend of ours, had a baby less than a year ago. Sofiya gave us some great tips of what she bought and how it helped her, like what bassinet worked best, in terms of their ease of use and overall safety.

In your experience, what are the best resources out there for new parents who also happen to have disabilities?

There are so many great blogs out there, but I think the best resource for new parents who have disabilities is word-of-mouth. There are a lot of cool parents with disabilities out there and we were able to connect through social media. We’ve seen such a warm welcome in the online space, with an abundance of people that want to give us tips and advice. Sometimes almost too much, haha!

What is the best adaptive baby equipment that you recommend?

For us, the best baby equipment is the lightest baby equipment. A lot of things for babies can be pretty heavy and that is difficult for me, so we always try to find the lightest products. Also, we try to find products that fit short arms so that we don’t have to lean fully into the crib or bassinet.

Best parenting hack?

I’m still researching that, haha! Check back in a couple months.

What is the FIRST thing you learned as a new dad?

This goes without saying — my child is the most important thing in the world. No matter what. You’re a dad 24/7 and I love every second of it.

What is something you wish someone would have told you about parenthood?

I don’t know. I mean, there are only so many things you can tell someone, but it really comes down to learning firsthand. You have to learn and make all the new adjustments through your firsthand experience. It’s a new adventure.

What is the best advice you’d give to a new dad?

Get ready to have fun, be on call and be as supportive and loving as you can be! Also, get ready to have an amazing experience with somebody that depends on you and loves you. Fatherhood is a beautiful thing. I feel so lucky to be her dad.

Dominick Evans, also known as Dom, is an incredible father – but as a disabled person who parents a disabled child, much of society doesn’t view him that way. Dom has Spinal Muscular Atrophy and is hard of hearing, while his son is autistic with other psychosocial disabilities. When Dom met his partner Ashtyn on an online forum 22 years ago, she was a single mother of an 8-year-old son and Dom was in college studying theater and acting. They lived five hours apart, with Ashtyn in Michigan and Dom in Ohio. After speaking every day for a few months and starting an online relationship, the couple finally met in person and have been inseparable ever since. Now, their son is 26 and the family is thriving. Sure, there are still challenges along the way – including people’s misconceptions about their relationship and parenting – but Ashtyn and Dom continue to provide the support their son needs as he goes through life.

“I love kids. I’ve always wanted children,” he said. “I knew that I could try to help [our son] navigate the world as a disabled person myself. I’ve never been able to formally adopt him, but he wanted me to be considered his dad and we’ve always had that kind of relationship. Sometimes he calls me dad, and sometimes he calls me Dom, but he definitely is my kid.”

Dom is the parent who provides emotional support, as well as guiding his son through education and teaching him social skills. Dom and Ashtyn’s co-parenting skills are what keep the family working. While it is difficult for Dom   to be unable to hold his son when he is upset or hurt, the emotional connection the two have more than makes up for it. They also love spending time together playing video games, and bond over that shared hobby. Dom said, “I remember the look on my son’s face when I helped him win Super Mario Sunshine. In that instant, I became his hero! That’s the thing parents aspire for… moments like this.”

Dom also knows it is important to have someone in your life who understands your own experiences. “I feel like, because I’m disabled, I gave my son a much different perspective,” he said. “He really got to witness the way I was mistreated, and I think he’s a better person because he’s more compassionate and caring. He was bullied a lot in school, and I was able to connect with him because I was also bullied. Having someone who really understands what you’re going through is important for disabled kids. I was glad that I got to be that for my son.” He also said that, in addition to his disability, his son gets to see Dom’s advocacy for LGBTQIA+ rights, and this makes him more empathetic and understanding of diversity and inclusion.

When teaching him life lessons, Dom says that he wants his son to know that it’s okay to fail – you have to just keep trying. He wants him to know that he will always have a shoulder to lean on and listen to without judgement. When the world tries to tell them that their very existence is wrong, they can lean on each other and their found family for strength and pride.

“All we have is each other and we are a very strong family unit. I wouldn’t change my family for the world!”