Benjamin “Benny” arrived as a surprise to this world as his birth mother did not know she was pregnant until she delivered. Benjamin remained in NICU for 8 weeks after birth due to feeding coordination and reflux concerns. Benny went home with his adoptive parents from the NICU. Since coming home, Benny started having seizures and has since been diagnosed with Myoclonic Encephalopathy, Cortical visual impairment, mild apnea obstructive, and mild centralized apnea. He requires constant oxygen support and is on a specialized Ketogenic diet to assist with seizure control as well as medications. Benny started receiving Early Intervention services right away. In March 2020, through the State of Illinois “stay-in place” order, therapy moved to a live video visit (teletherapy) model. Therapists have been providing weekly live video visits with Benjamin and his parents and his three older adopted siblings. Therapists have been able to problem solve and work with the family to provide suggestions and supports on different ways to play and engage with Benjamin so he continues to gain milestones during this time. During the time of live video visits, Benjamin has learned how to consecutively roll across his living room carpet to move to or away from toys or people, is able to complete pull to sit, and is working on supported standing with his feet on the floor!!! We can’t wait to see what Benjamin learns how to do next!!!
Thursday, May 9, 2024, 12:16 PM
By Mike Ervin There was a time when I was adamantly opposed to indulging in any form of “virtual” pa…
By Mike Ervin
There was a time when I was adamantly opposed to indulging in any form of “virtual” participation, such as attending a meeting via Zoom.
Virtual participation seemed like an oxymoron to me. At best, I considered it to be a pale substitute for the real thing. My online dictionary says that virtual means “almost or nearly as described, but not completely or according to strict definition.”
I think this deep aversion to all things virtual was at least partially due to my disability. I thought that the disabled activists whom I revered for paving the way for people like me fought hard for my right to fully participate in the world around me. I took that too literally. I felt that doing anything less than showing up in person to take part in everything was to betray them. I always showed up at my polling place and voted in person, rather than voting absentee, for the same reason. I thought it was my obligation to do so.
But then the pandemic hit and everything shut down. Ironically, this also meant that everything opened up more for disabled people, in a way, because practically all participation became virtual. When everything was shut down, about the only way to have any contact with anyone outside of your immediate household was via Zoom and such.
So I gave in. I realized that if I didn’t participate in things virtually I might not participate at all. I might get left in the dust. I’d be even more isolated.
Now that life has reopened a bit, my perspective on virtual participation has changed. I’ve been experiencing a weird phenomenon of late where I meet someone in person for the first time but I’ve seen them many times before on my computer and/or my telephone screen so I feel like I already know them well. And I‘ve come to realize that I probably never would have met any of these great people or had any of the great experiences I had with them had I stuck to being such a purist.
I still do Zoom with some frequency for the sake of convenience and when I do, I don’t feel as if I‘m betraying my disabled ancestors anymore. My perspective now is that they fought so hard for my right to have choices and the power to exercise them, so that I could participate in the world around me in whatever manner suits me best. I think they would consider that sort of connectivity to be a good thing. So what if my online dictionary says that virtual means “almost or nearly as described, but not completely or according to strict definition.” Maybe just by doing our thing in our own way, people with disabilities can redefine what it means to participate. Trying to keep moving forward during the shutdown showed me that it’s the end that matters, not the means of getting there. Disabled people often just do things differently.
Why should I go through all of the hassle of flying to Los Angeles for a business meeting when I can take part just as effectively from home via video conference?
On a cold day, I’m glad that I can work from home and not have to bundle up and commute to and from some office where I’d do the same damn tasks anyway. Just because a person finds it difficult or impossible to go to an office every day doesn’t mean that they can’t or don’t deserve the opportunity to make a valuable contribution. And I now reserve the right to vote absentee every now and then if that’s what I feel like doing. I voted by mail in the 2020 presidential election. I didn’t want to go to my polling place when so many public places were still shut down. But I didn’t want to not vote at all.
I don’t mind talking to my doctor online either. I don’t feel any obligation to show up at my doctor’s office in person if I don’t have to. Wouldn’t it be great if we all could do stuff like give ourselves x-rays and draw our own blood from the comfort of our own homes?
But all of this pertains to taking care of business. I still prefer making face-to-face contact with other humans whenever I can when it comes to trying to have fun. And I still think there is a certain emptiness to some forms of virtual participation. Seeing a video of the Eiffel Tower is not the same as seeing the Eiffel Tower in person. To me, there’s something sad about seeing a guy standing in his living room wearing virtual reality goggles and fighting off imaginary invading aliens from outer space with an imaginary lightsaber. I want to sit that person down, take off their goggles and gently remind them that there are no invading aliens from outer space in their living room and they do not have a lightsaber. I know it’s kind of silly for me to feel the need to hold an intervention like that. What that person does doesn’t hurt me any. To each their own, I guess.
I also fear that too much virtual participation may lead to some serious social regression for disabled folks. We all know that there are plenty of people out there, politicians and otherwise, who would just as soon see laws like the Americans with Disabilities Act get kicked to the curb. Maybe this will give them the excuse that’s needed for that to happen. Maybe they’ll say that since we have virtual access, we don’t need the real thing.
Maybe virtual participation will lead to a slippery slope. Or maybe I’m overthinking this whole thing.
Mike Ervin is a writer and disability-rights activist living in Chicago. He is a columnist for the Progressive magazine and writes the blog Smart Ass Cripple.
Wednesday, May 1, 2024, 11:48 AM
Earlier this month, Easterseals visited Washington D.C. to meet with representatives and share ways …
Earlier this month, Easterseals visited Washington D.C. to meet with representatives and share ways to break down barriers for our communities. We also had important conversations about supporting veterans and military families. We owe so much to our veterans and yet, according to our recent study about disabled veterans and employment, only about 1/3 of disabled veterans have enough money to handle their own emergency expenses. What do veterans experience when faced with financial challenges and what can they do to overcome them?
We chatted with Caleb Saxby, who was enlisted in the U.S. Army from 2002-2006, and deployed to Iraq from 2003-2004. Both Caleb and his wife, Amanda, who is also a veteran, are part of Easterseals Greater Houston’s Train your Own Service Dog program and attended Camp Coleman, a family retreat focused on integrating new service dogs into veteran and military families. Additionally, they have been guest speakers for Easterseals Greater Houston’s Youth Action Council.
How has Easterseals impacted your life?
My wife and I became connected with Easterseals when we moved to the Houston area a few years ago through the service dog program. At first, I was not sure about the service dog program, but honestly can’t imagine life without my service dog now.
What do you feel is the biggest challenge for military veterans and families when it comes to money management and financial literacy?
I know just from my own experience and from some of my close friends that leaving the military is a hard transition to make, even if it you weren’t injured or anything. Leaving the way that I did, after an injury, you aren’t necessarily super prepared for that change. Many did not plan on leaving and already have families to take care of and college is not always the best option. So, when you factor in not previously planning for it and work options being limited, many times veterans feel like it is an uphill battle immediately and they just can’t catch up.
How can having a disability impact a veteran’s financial options in your experience?
You have to take into consideration that we may or may not be able to physically do the same types of jobs you have training on or have previously done, so a lot of us go in the workforce again at the bottom rung when leaving the military. You also have to think about the missed wages due to multiple doctor appointments and various things that are now a regular thing for many veterans when coming home.
What do you wish more people knew about the process of reintegrating into civilian life and financial stability after service?
Well, if I could speak to the people who are currently in the military, I would advise them to start preparing now because it really does make a difference. If you are like me and many others though who left the military unprepared fully, there are options for help out there for you. There are people to even help with navigating your way through all the different programs you may be qualified for, so check into it and do your homework to find out what is out there.
What advice might you give a fellow veteran or military family members who are feeling overwhelmed about their financial situation?
I would just let them know that there is help available if you need it. Yes, there is red tape a lot of the time, and it can be a headache. It is worth it though for not just the veteran but their entire family. When you do get the help you need, use it for the intended purpose. Use it so you aren’t going paycheck to paycheck and wondering if there is enough in the bank to make it to the next payday.
Through our partnerships and referrals, Easterseals is dedicated to supporting the well-being of veterans in our communities. That’s why we have collaborated with Freddie Mac to share free and accessible money management tools for veterans and military families. Through CreditSmart Military, you can learn about building credit, working through debt and more. If homeownership is a goal, this program can set you up for success.
As Caleb pointed out, it can be overwhelming to navigate the help that is available. Easterseals is available to help shift through the red tape so that you are connected with the right support. Contact an Easterseals near you to learn more about services offered in your area.
Monday, April 15, 2024, 10:56 AM
By Jeremy Johnson-Miller “How did you get here today?” For many, this may never be a second thought,…
By Jeremy Johnson-Miller
“How did you get here today?”
For many, this may never be a second thought, but for others, it is a daily reminder of the extra planning and reliance of others needed to get where they need to go. Many disabled people understand this well – whether it’s figuring out accessible public transit routes (Does this station have a working elevator? Does this bus route get me close to where I need to go?) or wondering if you will encounter ableism on your journey (Will a taxi pass me by when they see I use a wheelchair? Will people question my service animal?).
Even when someone reaches their destination, they may still encounter obstacles in their travel. A crack or broken sidewalk may not hinder someone who is not disabled, but for others it could mean they can’t use that route and must go blocks out of their way or even into the street to bypass the damaged pathways.
Transportation offers independence for people with disabilities, allowing them to get to school, work and social activities, but when one of these connections fails, it can disrupt their entire day or week.
Throughout my career, I met some amazing people who let me learn about life from their perspective.
My passion for transportation started at an early age; my aunt Nancy had poor eyesight that barred her from driving, but that did not stop her from living a full life — she passed that life skill along to me. I would meet her downtown during summer breaks for lunch, picking out a book at the library and, of course, ice cream.
Michelle lives downtown and works several blocks away and uses a motorized wheelchair to traverse the city, but in the winter or during construction season, the path of travel is often blocked or unsafe. Michelle uses the phrase “the sidewalks are my roads” when speaking to city leaders about the importance of sidewalks for her to thrive, and if those fail, she is unable to succeed.
Immanuel lives and works along a bus route, but also values social life beyond work. Immanuel has used a wheelchair his entire life, but because of the limited hours of operation for transportation, he often says, “it’s like I am a 30-year-old with a curfew.” The bus does not operate after 10pm and they cannot go to a late movie or stay out late with friends.
These are only a few stories from my 10-plus years working in transportation, but I have a motivation to keep going, nonetheless. People like Michelle and Immanuel, and of course Aunt Nancy, make me want to keep learning and showing up for those who cannot.
Part of my job at Easterseals is sharing ways all of us can make a difference in accessible transportation.
Here are a few actionable items:
Working for an organization like Easterseals has allowed me to put that knowledge into action and continue to create an accessible world for all. Easterseals offers vital resources like customized training and technical expertise on the Americans with Disabilities Act for transportation providers; develops resources to support organizations in their efforts to connect with transportation and mobility services in their community; and identifies organizations in your state, region, or local community that could connect you to the most appropriate transportation services and support the development of coordinated transportation networks.
To make safer, more accessible communities, we must plan transit alongside the disability community. They are the experts on their needs — we can connect with them to advocate and get the attention of government and transit officials. This is and should be a community effort as it benefits all of us to have accessible public transportation options.
To learn more about the Easterseals Transportation Group and what we are doing to create more equitable access to services and settings that everyone should be able to enjoy, visit our website.
Jeremy Johnson-Miller is the Communications Manager for the National Aging and Disability Transportation Center (NADTC) at Easterseals, a federally recognized technical assistance center funded by the Federal Transit Administration, focused on ADA accessibility for older adults and people with disabilities across the country. Jeremy coordinates the release of publications and reports from NADTC, also conducting training and group facilitation for transportation agencies and state DOTs across the country. Prior to joining Easterseals, Jeremy served as Mobility Programs Administrator at Iowa DOT Public Transit Bureau for 6.5 years, providing guidance and oversight of state and federally funded grant programs, also overseeing outreach and collaboration with communities and other state departments within Iowa. Jeremy holds a bachelors in Geography from the University of Iowa and is a Certified Public Manager from Drake University in Des Moines, Iowa.
Tuesday, April 2, 2024, 11:11 AM
By Grant Stoner As a medium, video games allow us to remain connected. Whether it’s long-distance re…
By Grant Stoner
As a medium, video games allow us to remain connected. Whether it’s long-distance relationships or friendships, or the inability to physically or cognitively access a space, gaming is crucial in creating lifelong memories. And for some individuals, it’s one of the few mediums that anyone can explore, regardless of disability. According to Xbox, approximately 429 million players globally have some form of a disability.
The gaming industry is multifaceted through the opportunities it provides to both consumers and employees. From varying roles in studios, to content creation and media, there are numerous jobs to satisfy an array of interests. For disabled people especially, the capability to work fully remote, as well as create your own position in a massive industry is crucial for accessibility and independence. For this story, we spoke with a disabled streamer, member of the press, and consultant to explore why they work in gaming, the ways in which it could be more accessible, and their hopes for the future of employment for disabled individuals in this industry.
Mollie Evans
Mollie “LittleMoTac” Evans is a content creator and DE&I consultant who regularly streams on platforms like Twitch, YouTube, and TikTok. For Evans, her career in streaming was a direct result of inaccessibility in her previous job. Yet, despite the independence, being a content creator can still be demanding, especially for a disabled individual.
“Streaming is both accessible and not accessible,” Evans said. “The streaming part itself is accessible, in that it allows me to make my own schedule, and I can work it around my disabilities. However, the inaccessible part is the demand for content creators to constantly be networking, attending events and continuously pushing out content. I cannot attend events, and if I can they’re incredible stressful, so all my work networking has basically been done online, which thankfully is becoming a more acceptable side of content creation.”
Aside from the challenges of growing and maintaining connections and an audience, disabled streamers and content creators need to purchase most, if not all their own equipment. Sponsorships and viewers are all dependent on what content you create, how often you go live, and the quality of broadcasts. It’s a career that can be physically, cognitively, and financially demanding. However, it provides unique methods to directly promote views, knowledge, and expertise on topics that each creator intimately understands. And for Evans, that means using streams and videos to educate about the disabled experience.
“Disability, for me, is such an integral part of who I am and my life. I don’t have a choice to hide how it affects me, and so I have been very open about it from very early on in my time streaming and creating content,” she said. “I have always been very open about my symptoms, and how they affect me on the day-to-day, especially as invisible disabilities are still so often disregarded. I feel like it was important for me to be open about it. A lot of my content now focuses on accessibility and disability in gaming, but also about inclusion of marginalized people in gaming in general.”
While streaming can always be more inclusive, especially through sponsored events pertaining to disabled communities, Evans can have a career in games because of her platform.
Antonio Martínez
Editor In Chief and Mobility Editor for Game Accessibility Nexus, Antonio Martínez creates and edits articles pertaining to accessibility and the disabled experience in games. Martínez’ stories help to inform disabled individuals about potential barriers they may experience with games. With a passion for writing, he is hopeful that his stories can educate, and occasionally protect disabled consumers. However, as a disabled member of the press, he regularly encounters his own inaccessible hurdles while trying to produce work for the public.
“I must say over the years it has become less and less accessible for me,” Martínez said. “SMA (Spinal Muscular Atrophy) causes strength, endurance and mobility loss as time passes. I can’t use a physical keyboard as I used to, so it’s been years now with an on-screen keyboard. Voice dictation doesn’t work well for me due to my voice being inconsistent, not to mention my accent. In English it can go from totally wrong to acceptable. In Spanish, my native language, it works better.”
Beyond the lack of physical stamina and accessible technology, being a journalist dedicated exclusively to accessibility can be difficult. Despite the increased innovations across most AAA and Indie studios, establishing connections with PR companies and their respective studios is a constant struggle to prove the importance of highlighting accessible information. And when review codes are distributed, Martínez needs to consistently play, write, or edit to provide accurate information. Sometimes, as he notes, this can include stories with “over 4000+ words and that’s draining.” Yet, he is proud of the work he accomplishes, and is hopeful that more stories and more exposure will lead to opportunities for disabled journalists.
“I hope we get the chance to write in more mainstream media, about games, accessibility, disability, or any subject,” he said. “Disability is always part of our lives, and nobody is better than us to speak about things that we experience daily, but we are more than that. Limiting us to certain subjects is not fair. We have the same interests and hobbies as anyone else, disabled or not. Sports, history, science, entertainment, social issues, you name it.”
As accessibility knowledge and implementation continues to grow in gaming, journalists are desperately needed to cover these important topics. Martínez and others are opening career opportunities with every story.
Paul Lane
Accessibility consultant, Paul Lane has credits in some of the most accessible AAA titles. From The Last of Us, to Marvel’s Spider-Man 2, Lane’s career in consulting is only possible because of his lived experience as a physically disabled individual.
“What drew me to consulting was the opportunity to leverage my unique perspective as both an able-bodied and disabled gamer to improve the gaming experience for others,” Lane said. “I can share the frustrations I’ve faced as a disabled gamer and use that knowledge to advocate for better accessibility features. Companies and studios that I work with go the extra mile to make sure I have everything I need to succeed.”
As his career evolved, Lane was sought by studios to provide his unique expertise to accessibility. And as accessibility grew in popularity, particularly in gaming, other tech companies took notice, offering Lane roles to help make their products and businesses accessible. As the world becomes increasingly aware of accessibility and disabled individuals, Lane is hopeful more accessible consulting opportunities will arise for disabled people, especially in gaming.
“There is a growing awareness of disability rights and inclusion, which is creating a greater demand for accessibility consulting services,” he said. “I hope to see a future where disabled consultants have equal opportunities to succeed in the consulting industry. This includes having access to training, mentorship, and leadership opportunities.”
Streaming, media, and consultancy are only some of the opportunities that disabled individuals can explore for work in gaming. However, even with the increased awareness, accessibility and disabled inclusion still requires constant learning and understanding. While it’s great to see more disabled people enter the workforce, better resources, tools, and assistants are required before we can truly claim gaming is an inclusive industry.
Grant Stoner is a disabled journalist covering accessibility and the disabled perspective in the gaming industry. When not writing, he is usually screaming about Pokémon or his cat, Goomba, on social media.
Wednesday, March 13, 2024, 4:54 PM
Editor’s Note: This blog contains mentions of suicide, self-harm, and panic attacks. By Coty C…
Editor’s Note: This blog contains mentions of suicide, self-harm, and panic attacks.
By Coty Craven
Imagine this scenario:
You’re enduring a depressive episode. You’re isolated, you’re no good at asking for help, or maybe mental health care is inaccessible to you. The current state of the world is not helping things and suicidal ideation remains stuck at the back of your mind because nothing is showing any signs of getting better. You’re longing for a break from what you’re feeling and video games have always provided you with that, so you fire up the latest game you’ve just downloaded.
Instead of that desperately needed break, the first thing you’re met with is a cutscene in which a young woman is willing herself to commit suicide. Now the one place you can often find an escape is mirroring your reality and you had no idea that would happen when you bought the game. What goes through your mind?
Games are a powerful medium. Some of the most important relationships in my life began because of a shared love of them. I’ve used games as a tool to navigate grief, loneliness, and depression. I’ve cried during the death of a character I’ve spent dozens of hours with in a fictional world and agonized over who to pursue romantic relationships with in games that feature them. Games are a unique medium in that they put us in control of the characters and events in the way books, TV, and movies cannot. In games, we walk into the burning buildings, carry out acts of war, and face the deaths of loved ones. Given games’ unique nature, we can be impacted by them in unique ways.
The necessity – and the dire state – of mental health accessibility in games was recently brought into sharp focus for me a few months ago during what I’d intended to be a relaxing gaming session after my weekly therapy appointment. Undergoing EMDR (eye movement desensitization and reprocessing) therapy for a fire-related trauma, my session had been difficult with time spent recalling and focusing on the memory of the trauma I was processing. My therapist prescribed self-care and being gentle with myself as my homework that day and asked me to avoid triggers related to the work we were doing. My method of choice for self-care? Time spent continuing my fifth play through of one of my favorite games, The Witcher 3.
Still on edge from EMDR, I launched the game and snuggled up on the couch with my dogs. Continuing the main quest line, I led Geralt to Crow’s Perch, the Bloody Baron’s hold in Velen. Geralt ran toward the castle where alarm bells were ringing and as he approached, the unmistakable roar of fire filled the air. I’ve played this game five times and knew precisely what to do. Run to the burning barn, climb the ladder, free the horses, unblock the barn door, and save the trapped man. But this time it was different. This time, the roar of flames was fresh in my mind, the urgency of escape and safety my only focus. My chest became tight and my vision narrowed. I could feel my heartbeat in my teeth and the metallic taste of adrenaline filled my mouth. Before I knew it, I, too, was surrounded by flames and choking on smoke.
From the safety of my home, this quest in a game I’ve played countless times brought on a panic attack. This usually mundane quest didn’t even cross my mind as being potentially triggering when I sat down to enjoy the game. I later asked my therapist why this time, what had changed since the first five playthroughs? She explained that my brain was essentially more primed for panic from things related to the trauma we were processing together because the event and all the emotions related to it were fresh and top of mind because we were revisiting them through EMDR. She also explained that it wouldn’t always be like that, which was a relief because I just wanted to enjoy time with Geralt.
According to the National Alliance on Mental Illness (NAMI) one in five adults and one in six youth in the US experience mental illness every year. Among them are PTSD, depression, and anxiety. With 65% of the US population playing video games (ESA, 2023) it’s safe to say that far more than just me stands to have their mental health impacted by video game content.
The games industry has made massive strides in accessibility in recent years with the launches of games like Forza Motorsport and Stories of Blossom and updates to games like Marvel’s Spider-Man 2 which brought audio description and full closed captions among many other improvements. Though we still have a ways to go, games can be enjoyed by more people than ever before. There’s one area in which we’re still regularly failing in accessibility though – mental health. While we are seeing many games addressing things like thalassophobia (the fear of deep water) and arachnophobia, there’s still little being done to aid gamers with things like PTSD, anxiety, and depression beyond the general “this game contains depictions of…” warning many games display upon launching them. If your mental health could be impacted or even harmed by content such as structure fires, racist violence, or the death of a child, there’s not really a standard in place to support you in making your gaming choices. So what’s a person to do if like me, they’ve been given instructions to avoid triggering topics and have no way to tell what they may experience in a game?
In the Xbox Accessibility Guidelines, Microsoft offers guidance on how to support players wanting to protect their mental health. They advise providing players with information on game and story content and tools to skip or avoid potentially triggering content. Recently, we’ve seen more games trying to address mental health. Horizon Forbidden West patched in a thalassophobia mode which lessens the deep water effect for underwater areas. Lethal Company has an arachnophobia mode which turns all in-game spiders into the word “Spider.” The Dead Space Remake has a robust content warning system that allows players to both be warned when triggering content is coming up and skip it entirely, similar to that of Chicory: A Colorful Tale.
So many of us play games both to connect and escape and nothing can wrench someone out of that joyful place quite like being unknowingly confronted with something traumatic or triggering. As conversations on mental health become more and more commonplace and accepted, I hope that games can catch up to meet the needs of those of us who love the medium and want to protect our peace by building better and more thoughtful content warning systems, so we can enjoy our hobby while also caring for ourselves.
Coty Craven is a game accessibility and inclusion expert and the founder of game accessibility sites Can I Play That and the Game Content Triggers Database. He lives in Michigan with his dogs and works as a project manager at Descriptive Video Works. He loves exploring fictional worlds in games and exploring the outside world on hikes.
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