Gabrielle Dinsmore Heart & Hope Fund Grants Easter Seals RI $5,000 For Critical Feeding Needs Programs
Wakefield, RI -- The Gabrielle Dinsmore Heart & Hope Fund graciously awarded Easter Seals RI $5,000 to provide specialized feeding services to Early Intervention and Feeding Group clients who have critical feeding needs.
“We are very happy to be able to support these families in our continued mission to provide financial, emotional, recreational and educational support to kids in RI, CT, and MA who are impacted by heart disease, congenital heart defects and severe feeding issues,” said Louise Dinsmore, co-founder of the Gabrielle Dinsmore Heart & Hope Fund.
Over the past five years, this amazing organization has provided $16,000 to Easter Seals RI to ensure young children with special needs get the very best start in life.
“We thank the Gabrielle Dinsmore Heart & Hope Fund for their continued commitment to serving children with special needs and disabilities,” said Susan Hawkes, Director of Children’s Programs. “At a time when many foundations and funders have cut or eliminated funding, the Heart & Hope Fund continues to be a leader for families in need.”
For more information about Gabrielle Dinsmore Heart & Hope Fund please visit, www.heartandhopefund.com.
About Easter Seals RI
Easter Seals RI provides exceptional services to ensure that all children and young adults with disabilities or special needs and their families have an equal opportunity to live, learn, work and play in their communities. Last year, Easter Seals RI served over 550 children and their families through programs and services provided. For more information about Easter Seals RI, please call 401-284-1000 or visit www.easterseals.com/rhodeisland.
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In photo: Paula Viau Hann and Darlene Dubois of Gabrielle Dinsmore Heart & Hope Fund (far left and far right), and Easter Seals RI Early Intervention Therapist Cindy Dewhurst and Early Intervention clients Mason.
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The Realities of Employment Discrimination for Disabled People
Tuesday, October 1, 2024, 3:43 PM
By Leah Smith In 1988, October was established by Congress as Disability Employment Awareness Month.…
Read this PostBy Leah Smith
In 1988, October was established by Congress as Disability Employment Awareness Month. The goal of this designated month is to “raise awareness about disability employment issues and to celebrate the contributions of workers with disabilities.” Inarguably, one of the biggest employment issues facing the disability community today is employment discrimination.
According to the Equal Employment Opportunity Commission, “employment discrimination is to treat someone differently, or less favorably, for some reason.” This unfair treatment can be because of your race, color, religion, sex (including pregnancy, gender identity, and sexual orientation), national origin, disability, age (age 40 or older), or genetic information.
Of course, there are hundreds of different types of disabilities and ways in which they might impact employment opportunities. Disabilities can be cognitive, physical, and/or emotional, and often limit one or more major life activities.
It is also important to note the definition of ‘major life activities.’ A major life activity is something you do every day, including your body’s own internal processes. Some examples include:
- Actions like eating, sleeping, speaking, and breathing
- Movements like walking, standing, lifting, and bending
- Cognitive functions like thinking and concentrating
- Sensory functions like seeing and hearing
- Tasks like working, reading, learning, and communicating
- The operation of major bodily functions like circulation, reproduction, and individual organs
As of July 2024, the employment rate for people with disabilities was 37%, compared to 75% among their nondisabled counterparts. After looking at cases of disability employment discrimination, we can see that it usually falls within one of the 6 following categories:
- Hiring Discrimination: When qualified applicants are not hired based on their disability, rather than their skills or qualifications.
- Wage Discrimination: When employees are paid less than their colleagues for performing the same job because of their disability.
- Promotion Discrimination: When an employee is overlooked for promotions or advancements due to their disability.
- Harassment: A work environment where an employee is subjected to unwanted comments, jokes, or behaviors based on their disability creating a hostile or intimidating work atmosphere.
- Failure to Accommodate: When an employer fails to provide reasonable accommodations to employees with disabilities.
- Termination or Demotion: When employees are unfairly fired, demoted, or forced to quit due to their disability.
Of course, any one of these forms of discrimination can also happen at the intersection of other marginalized identities, only further impacting the individual and the organization. Being the recipient of employment discrimination can have long-term emotional, financial, and psychological impacts on someone’s life; however, it can also cause reduced productivity, cause higher turnover rates, have legal and financial repercussions, and cause a lack of diversity and inclusion within an organization. The term ‘intersectionality’ was coined by professor Kimberlé Crenshaw to describe how race, class, gender, and other individual characteristics “intersect” and overlap with one another. As this term has evolved, she has further explained, “Intersectionality is a lens through which you can see where power comes and collides, where it interlocks and intersects. It’s not simply that there’s a race problem here, a gender problem here, and a class or LBGTQ problem there. Many times, that framework erases what happens to people who are subject to all of these things.”
Employment discrimination, particularly when viewed through an intersectional lens, underscores the severity of this issue.
For example, we see a 20% wage gap between median annual earnings among nondisabled and disabled women in the United States.1 This breaks down to be about a $10,000 wage gap between nondisabled and disabled women ($40,400 compared to $50,000). (US Census Bureau, 2020)
This also means that, overall, disabled women are only paid .50 for every dollar a nondisabled man makes. (US Census Bureau, 2020)
Further, the wage gap between white disabled women and black disabled women highlights the intersection of race, gender, and disability in the labor market. On average, there is a 10-25% wage gap between black women with disabilities and white women with disabilities. Factors such as education, location, and type of disability can impact this figure.
According to another study, disabled transgender individuals are 5 times more likely than nondisabled cisgender individuals to report being unemployed and looking for work for more than a month. These data only further highlight Crenshaw’s point about how intersectionality shows ‘where power comes and collides.’
As a disabled woman, I find the above statistics to be sobering. But I couldn’t help but want real stories of real people I knew. So, like any good millennial, I took it to social media. As a disabled woman, employee, and mom, I asked over 1,400 friends, “what has employment discrimination looked like for you?” I received over 77 responses like:
- “Being told that they should have hired a nondisabled person instead.”
- “Prior to the pandemic, jumping through a ton of hoops and needing to disclose private medical information to have partial work-from-home status, but it took a pandemic that killed millions for work-at-home to be approved/acceptable.”
- “Given a hard ‘no’ because they were afraid I would get hurt due to heavy lifting and/or moving products around. Then given a teddy bear to make up for it.”
- “Told I was really lucky to have a job, as any other place would fire me for all of the accommodations I needed.”
- “After I finished undergrad, the job search process was hell! I would go in for interviews and would get stares. I would be qualified for positions and literally get ghosted from employers.”
- “I asked for an office chair that fits my body, and the response was ‘maybe you can just do something about your desk or how you’re sitting instead?’”
- “Being given the nickname ‘Eeyore’ by a boss because of my mental health disabilities.”
- “Was fired outright when they found out my label/disability.”
- “Supervisor telling HR I was refusing to do my job because I couldn’t do it without the reasonable accommodation they were denying.”
- “Being told that spending money to train me was a waste of resources, I’d never be management material. Then when I was a manager, moving my office to the former storage room because ‘watching you type is painful.’ I’ve been told that people like me don’t need to work because we can just live off federal disability, so I shouldn’t take a job away from someone with a family.”
- “Attending interviews where members of the interviewing panel asked how I dress myself and about my spouse.”
While many of us are aware that laws such as the Americans with Disabilities Act and Section 504 of the Rehabilitation Act are key pieces of legislation that provide some legal protections against disability discrimination, I would argue that, clearly, we haven’t done enough yet. Organizations like The National Center for Disability, Equity, and Intersectionality and American Progress, among many others, are advocating for key legislation that would end subminimum wage, get rid of asset limits for public assistance programs, increase funding for home and community based services, and pass the Equality Act as methods of helping to solve this problem. As Michelle Obama recently said, we just need to ‘Do Something!’
Leah Smith is the Associate Director of The National Center for Disability, Equity, and Intersectionality and Co-Facilitator for Her Power!, a national event aimed at teen girls with disabilities. She wears many hats, but being a mom to her two kids is, by far, the most important.
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How Transportation Employees Can Offer Services to Users with Disabilities in Safe, Respectful Ways to Create More Accessible Communities
Wednesday, September 25, 2024, 11:39 AMHow Transportation Employees Can Offer Services to Users with Disabilities in Safe, Respectful Ways to Create More Accessible Communities
Wednesday, September 25, 2024, 11:39 AM
By Andrea Jennings Transportation is more than just a means of getting around; it’s a gateway …
Read this PostBy Andrea Jennings
Transportation is more than just a means of getting around; it’s a gateway to how we all access our community and society. When transportation services are inaccessible, disabled individuals are excluded from many aspects of life, including employment opportunities and social events.
Employees at all levels, from frontline staff and C-Suite top executives to mid-managers and senior managers, play a vital role in ensuring accessible transportation. Thoroughly vetting third-party contractors that work directly with disabled individuals to make sure that they understand how to interact with disabled individuals is something government agencies and organizations should prioritize. Although the Americans with Disabilities Act (ADA) will ultimately set the groundwork, using human-centered practices beyond legal compliance can yield more sustainable results than if implemented in a performative way. It’s about creating an experience that allows everyone equitable access with dignity and without attitudinal barriers. Let’s dive into some best practices of how transportation employees can offer services to users with disabilities in safe, respectful ways to create more accessible communities.
In practice, this may look like asking questions, taking the time to understand accessibility policies thoroughly, providing individualized support, and ensuring all equipment is functioning properly. Communication is always integral to accessibility: having signage and literature in accessible formats can make a significant difference. Additionally, being attentive to feedback and engaging in regular training is crucial for continually improving the travel experience for passengers with disabilities. Since 1/4 of Americans have a disability, it might also be helpful for employees to read books to understand the disability culture firsthand from people with lived experiences. Books like Disability Visibility by Alice Wong and The Anti-Abelist Manifesto by Tiffany Yu are good books to start with.
As Keith Jones, President of SoulTouchin’ Experiences, emphasizes, “The two key practices that can be adopted are already predicated in legislation. Also having continuous training on best practices, serving individuals with disabilities as well as consistently adhering to Department of Transportation guidelines and the ADA.”
Practical Measures to Enhance Accessibility in Ground Transportation
Practical steps are essential for transportation employees to improve accessibility. Training transportation employees and operators on how to operate accessible equipment successfully are also important, as well as emergency preparedness. Some of these tools set the employee and the passenger up for success. For example, employees can ensure that transportation schedules and wayfinding tools are within the customer’s reach and are in accessible formats, providing clear directions on the fastest and safest routes. Here are some additional practical tips from people with lived experience or who work in fields that support and advocate for accessibility beyond mere compliance:
Mark Waterson, CEO of Convalescent Aid Society, a non-profit organization providing free loan of medical equipment to community members, highlights a crucial aspect: “One of the keys to making transportation as accessible as possible is to make sure that seats and areas designated for disabled individuals remain open and available for those who actually need these accommodations.”
Zebreda Dunham, who runs the YouTube Channel “Zebreda Makes it Work,” notes, “When I go to the train stations, the elevators occasionally don’t work, and regardless if they work or not, the buttons are hard to reach. I often have trouble getting through the turnstiles because of people who are non-paying customers. It would be nice if an employee were there to keep the flow smooth and make sure that the disabled community can operate the systems smoothly.”
Clear Path of Travel – Rideshare, Taxis, Shuttles, and Event Parking
As an accessibility in entertainment and media strategist, I naturally attend many events and concerts. As a mobility aid user, a critical part of my accessible experience is the flow of accessible arrival and departure. Employees can ensure a clear path of travel by checking to see that paths from parking areas to shuttle pick-up and drop-off points are clear and accessible. There should be adequate signage, and drivers should be instructed to pull into these areas at the designated spots.
Enhancing Comfort and Safety
Comfort and safety should be at the forefront of every transportation employee’s mind. To prevent serious accidents, grab handles should be within easy reach, seats should be at appropriate heights, and equipment should be regularly maintained. However, aside from accessible equipment, employees can also enhance travelers’ experiences.
Treasure Sheppard, a Strategic Initiatives Project Manager at HACLA, highlights, “I find it refreshing when staff take the time to pause and be patient while assisting individuals with disabilities. This leads to better safety measures and customer experiences.”
Air and Sea Travel Accessibility
Air and sea travel can be a daunting experience for people with disabilities, but it doesn’t have to be. Employees, from check-in staff to flight attendants, play an essential part in the experience and safety of disabled travelers. Handling mobility aids with care and ensuring accessible boarding and seating arrangements are vital. In 2021, a friend to many and the late public figure and advocate Engracia Figueroa’s wheelchair was damaged when she returned from advocating in D.C. This wheelchair was custom built for her individual needs and ultimately was, as she put it, “an extension of herself.” If the employees had handled her wheelchair with care, her wheelchair would not have received the damage in the first place. Again, protocols alone are not enough; employees implementing the protocols, having more human-centered training, and hiring disabled consultants can make a world of difference and also save lives.
Training, Awareness, and Feedback
Proper training is crucial for all transportation employees to assist disabled passengers effectively. Effective training involves not only understanding how to use accessibility equipment but also how to interact respectfully and supportively with people who have disabilities. Sara Goldman, MPH, MSBS, ADAC, an Accessibility Coordinator, emphasizes, “There are many existing practices and policies that have been implemented to make bus, rail, and air transportation more accessible to people with disabilities. A key practice to adopt would be consistent and regular training to ensure that all employees are aware of policies and able to implement those practices for anyone who may wish to utilize them!”
Public awareness campaigns can also make a big difference by educating other passengers about accessibility protocols. For example, a report from the U.S. Department of Transportation (DOT) highlights how practical training and public awareness can reduce complaints and improve overall satisfaction for disabled passengers. Finally, it is essential to involve people from diverse disabled communities in the planning and feedback processes, as we are not a monolith. This can ensure that the transportation system is responsive, accessible, and inclusive, addressing the needs of all passengers.
Dana “MzDanaK” Jones, a community member and rising author of an autobiography called N the BLINK of an Eye, adds, “In my experience, they can help more when they obviously see that they might be needed and always be ready to accommodate with patience.”
Conclusion
Accessibility beyond compliance requires a strong commitment from all employees, from executives to frontline workers, to understand and address the diverse access requirements of all passengers. By focusing on human-centered improvements, maintaining safety and comfort, and fostering a culture of respect, transportation employees can offer services that allow everyone to travel with dignity and ease. In this way, we create more accessible communities.
Andrea Jennings, M.Mus., Series TV host as well as a producer for Access for All: Integrating Accessibility, is a disability & accessibility in media Strategist, director, and lead actress in an award-winning film. Passionate about music, law, and entertainment. Her journey led to creating Shifting Creative Paradigms – Leveling The Playing Field® a multi-media social enterprise production co., that advocates for social justice through Disability culture, film, music, and art. She is a chair emeritus and current commissioner for an Accessibiity and Disability Commission. Andrea’s scholarly contributions include co-authoring the pivotal health equity report, The Atlantic | OPRG’s report on “The Intersection of Health Equity in Communities & Business Strategy,” which addresses systemic challenges in health equity. Her work has graced prestigious platforms like Park Avenue Armory, The Metropolitan Museum of Art, and Rutgers University. Her work has also been recognized in Forbes, Billboard Magazine, The Atlantic Magazine, The Hollywood Reporter, and The New York Times.
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Able and Ready: Former Easterseals Camper is Setting a New Standard for Accessible Transportation
Friday, September 20, 2024, 11:01 AMAble and Ready: Former Easterseals Camper is Setting a New Standard for Accessible Transportation
Friday, September 20, 2024, 11:01 AM
Rhonda Clark, 55, has spastic cerebral palsy. “I wasn’t supposed to live past 48 hours. I jokingly t…
Rhonda Clark, 55, has spastic cerebral palsy. “I wasn’t supposed to live past 48 hours. I jokingly tell people I have cerebral palsy, but it doesn’t have me.”
Rhonda started going to Easterseals camp in Wisconsin from 1981 to the early 90s. She grew up in an abusive household, and the two weeks at camp were her reprieve. A week before camp ended, she cried knowing she had to go home. She shares how Easterseals camp allowed her to do exciting things she wouldn’t have otherwise, such as adaptive zip lining and swimming. She even met her first boyfriend at camp. “No one would judge me [there]; everyone was the same,” she said.
Easterseals camp taught her independence and gave her the confidence to navigate inaccessibility and ableism as an adult. “I’m not one to just settle for what I’ve been told I can have. I’ve never been. And I think going to Easterseals camp as a kid made a huge impact on me in that respect, because that’s where I got my first taste of living independently.”
Rhonda currently lives in Nashville and moved there 28 years ago after graduating from the University of Wisconsin Green Bay in 1995. Her goal after college was to work in country music, and Rhonda was promised a job at a record label. However, fate intervened, and she learned of the label closing right before getting on the plane to Nashville. She had already shipped her belongings to her new home, including her power wheelchair, which she didn’t want to risk getting damaged on the flight. Despite knowing few people in the city, she didn’t want to be stranded in Wisconsin without her power chair, so she went ahead with the move.
“I literally pedaled my resume down music row,” she said. Rhonda was able to land a few gigs, and then spent two and a half years with United Cerebral Palsy in Middle Tennessee, where she helped book talent for their telethons.
Rhonda also volunteered for Easterseals, where she met her dear friend, Beverly Jones. Beverly was in a video for Holly Dunn’s song “I Am Who I am,” which Easterseals played during a telethon. The two met backstage where Rhonda was volunteering and have been a constant in each other’s lives ever since.
After her time at United Cerebral Palsy, Rhonda worked for Country Music Television for seven years, and then at a children’s hospital for 11 years.
Now, Rhonda is starting a non-emergency transportation company in Tennessee, Able and Ready Transportation Incorporated, to address the poor transportation options for disabled individuals – especially wheelchair users like herself.
Paratransit is only available in Davidson County, and Tennessee is a big state – not everyone can live in that service area. She shared that transportation is particularly challenging because of the lack of sidewalks and limited public transit outside of Davidson County. For example, Rhonda would be able to drive her wheelchair to her dog’s vet, which is less than a mile away, but there are no sidewalks to get her there safely; she has to rely on someone else to drive her, which impacts her independence and autonomy.
Her goal with Able and Ready Transportation Incorporated is to offer on-demand, low-cost, 24/7 access to accessible transportation for any reason – not limited to medical transportation. This service could help in a vast number of circumstances, such as when someone’s accessible vehicle breaks down on the road, potentially leaving them stranded, or getting them to work while their car is in the shop. It can unite friends for a night on the town – without a restriction on what time to go home. Able and Ready could also work with hotels or airports to ensure they have accessible shuttle options for wheelchair users. “I just want people to know they can live, work and be who they were created to be. And be with who they want to be with, when they want to be with them,” Rhonda shared.
Rhonda began working on Able and Ready in 2019 and was forced to delay plans because of the pandemic. She is now working with a small team to raise funds and navigate complicated laws around transportation and for-profit businesses. To deploy her services across county lines, which is vital to her mission in reaching all Tennesseans, there is a legal requirement to be a for-profit business.
She started raising money on GoFundMe but found that service was taking too much of a cut. She then moved to fundraising directly on the Able and Ready website. Able and Ready was able to fund one van, but there is still a need for more vans, office space, and staff. These overhead costs would put her in $300,000 in debt, but she is slowly raising that money to get them truly started.
Rhonda’s ultimate goal is to set a precedence in Tennessee and catapult this work to other states.
She proudly states, “somebody said that I set the bar too high, and I said, well, somebody’s got to.”
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Bridging the Gap in Public Transportation for Disabled Travelers
Tuesday, September 10, 2024, 12:13 PMBridging the Gap in Public Transportation for Disabled Travelers
Tuesday, September 10, 2024, 12:13 PM
By Mike Ervin If you ride public transit trains here in Chicago, at each boarding platform you will …
Read this PostBy Mike Ervin
If you ride public transit trains here in Chicago, at each boarding platform you will see a couple storage boxes made of silver metal. Each of those boxes contains what’s called a gap filler, which is a fiberglass square with wheels on the side. Gap fillers are painted yellow and on each, planted in blue, is the international symbol of wheelchair access and the words WELCOME ABOARD. The gap filler is about five feet tall and four feet wide.
So, whenever I ride the train, I tell my destination to the Chicago Transit Authority (CTA) customer assistant that’s on duty in the kiosk at the station from where I am departing. The CA, as they are called, then escorts me to the boarding platform. Either that or they meet me there. The CA has a big ring of keys and uses one of them to unlock the nearest silver storage box. They roll out the gap filler. When the train arrives and the doors open, the CA puts the yellow slab in place in front of the door to bridge the gap between the station platform and the train and I roll in. After the train leaves and the CA returns to their kiosk, they contact the CA on duty at the station of my destination to let them know I am coming so that they can be waiting to put down the gap filler when my train arrives so I can roll off.
When the Americans with Disabilities Act was signed into law in 1990, it mandated wheelchair access to all public transportation. So the CTA was faced with the challenge of convincing people with disabilities to try riding the newly-accessible buses and trains. Thus, the Joint Implementation Committee (JIC) was formed. JIC members were CTA officials and Chicagoans with disabilities. We met regularly to brainstorm ways to make riding the CTA as smooth as possible for wheelchair users. We knew that the key to getting wheelchair users to try riding was to make them feel welcome. We all agreed that not too many wheelchair users were going to jump on the CTA just because the federal government declared that they had a right to do so. Disabled people were too used to being excluded from the public transit system because of all the physical barriers that kept them out and the reluctance of the CTA to do anything about removing any of those barriers. They needed to be confident that the CTA understood and addressed all of the little details that added up to true accommodation.
Just adding elevators to make train stations and platforms accessible wasn’t enough. When trains pulled up to the platform and their doors opened to let riders in and out, that would create another barrier. The floor of the train would be a few inches higher than the platform. Most people would just step over that gap without giving it a thought. But that gap could prohibit a wheelchair user from boarding the trains.
So the JIC recommended that there be something available at every boarding point that can be deployed to bridge the gap. But there would have to be humans involved because these bridges weren’t going to deploy themselves. It made the most sense that assisting people with disabilities in this way would be one of the job duties of the CA. But what if there was no CA on duty or if they were away from the kiosk assisting somebody else and couldn’t be contacted?
In that case, if there was no CA around and a passenger needed the gap filler to get on or off of the train, it would be the job of the person operating the train to get out of the train and deploy it.
That’s how the gap fillers and the system of deploying then came to be long, long ago. There are a lot of moving parts, which makes it more likely that something will go wrong. But all I can say is that I have ridden CTA trains hundreds of times. And whenever I’ve needed the gap filler, a CA or train operator has always deployed it. It’s become a matter of routine for CTA employees. When someone who uses a wheelchair shows up to ride, everybody knows just what to do.
But one thing that has changed since the ADA became law is that train cars that are much more wheelchair accessible are being manufactured and CTA has put several of them into service. When a train consisting of these cars pulls up and the door opens, the car is usually on the same level as the platform so there’s no need for me to use the gap filler to get on or off.
That’s what happened when I rode a CTA train earlier this summer. As I waited on the platform for the train to arrive, the CA vigilantly stood next to me clutching the yellow gap filler. ready to put it in place. But when the train pulled up and the doors opened, it was one of the newer, more accessible cars. The entrance of the doorway was level with the platform so I really didn’t need to use the gap filler to get on. But before I could say anything, the CA was already putting the gap filler in place. So I just thanked him and rolled on.
When I arrived at my destination, another CA was waiting on the platform with a gap filler. The doors opened and again, before I knew it, she had put it in place.
My return trip went the same way. The train car was one of the new ones so I didn’t need the gap filler to get on or off. But the CAs were always right there to put one in place.
And again, the only thing I said to them was thank you. I didn’t want to say or do anything that might discourage any of them from going the extra mile to make people with disabilities feel welcome riding the CTA.
Mike Ervin is a writer and disability-rights activist living in Chicago. He is a columnist for the Progressive magazine and writes the blog Smart Ass Cripple.
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Sex Ed for All: How We Can Support Disabled Students
Friday, September 6, 2024, 1:35 PM
By Ashira Greenberg Sex education is a sensitive topic that garners a lot of attention in news and m…
Read this PostBy Ashira Greenberg
Sex education is a sensitive topic that garners a lot of attention in news and media. While sex education is intended to keep people safe and prepare youth for life, many people get uncomfortable with how to approach the topic to support young people, which leads to much discussion about how to approach sex education throughout the country. No national laws govern what sex education should include or how content should be taught across the country. Additionally, states’ laws and guidelines can often mean that there is no guarantee that education sufficiently covers the topics that people need to learn to stay healthy. According to SIECUS’ state profiles, several states emphasize abstinence-only education for all students, and so many students are left out of conversation entirely in certain spaces — including LGBTQ+ students, BIPOC students and disabled students. While the focus of this blog is disability and accessibility, reflection on the experiences of different communities is important as people do not live single-issue lives.
People with disabilities are a diverse group with different needs and experiences. According to the United Nations, the disability community is the largest minority in the world, and the community intersects with all other communities. The World Health Organization highlights that people with disabilities can identify with any gender as well as with any sexual orientation and the community spans across all cultures. Regardless of identities or background, people with disabilities can be impacted by a full gamut of sexual experiences, including casual encounters, violence and abuse, and long-term committed relationships.
According to SIECUS’ 2021 Call-to-Action, however, students with disabilities in the United States are less likely to receive sex education than students who do not have disabilities. Among students with disabilities who do receive formal sex education at school, accommodations and representation within lessons can be limited. Only three states specifically include people with disabilities in sex education requirements, and only five states have additional requirements mandating that health curricula be accessible for people with disabilities. While students with disabilities across the United States may have an Individualized Education Program (IEP) or 504 Plan to outline accommodations that must be provided by law to support a given student throughout education, inclusive experiences encompass more than basic accommodations. Legal compliance is key, but a lack of support in classrooms still contributes to risks and harms that impact the disability community. Disability experiences can be more nuanced than legal definitions. Due to a variety of barriers, students with disabilities may have limited access to educational and informational resources, so supportive teachers are key to successful experiences.
Best practices for accessible and inclusive lessons foster supportive environments for all students with a wide variety of needs. Setting up the learning environment is key to supporting success for all learners. Ensure that the space is accessible, so all people can easily access bathrooms and personal belongings. Be mindful of noises, scents, room temperature, textures, and lighting to support physical comfort. Recognize that students may require accessible furniture, adaptive devices, support people, or service animals to engage in sessions. Setting up the space to accommodate such needs is critical. Setting classroom expectations, like “raise your hand before speaking” and “one speaker at a time,” can help facilitate access by creating a culture of engagement that meets people’s needs. Some expectations may also need to be adjusted to support student needs. Students may need breaks during lessons to allow for movement, snacks, drinks or restroom needs, so plan to be flexible with timing for activities and offer extra time when needed. In addition to a confidential space for questions, tell students how to best communicate concerns with you and ask students for the best way to communicate with them.
Beyond the learning structure, develop a classroom culture with resources that support different learning styles and highlight disability experiences. Educational frameworks, such as Universal Design for Learning and Differentiated Instruction, can set the groundwork for accessible lessons. Universal Design for Learning encourages teachers to facilitate lessons that allow for multiple means of engagement, representation, action, and expression for students to demonstrate learning in different ways.
Beyond Universal Design for Learning, Differentiated Instruction tailors education to students’ individual learning needs. Be mindful of accessibility of all materials, and consider which textual, audio, visual, and tactile resources will best support learning. Choose educational modalities based on students’ unique needs and offer a variety of different options when possible to maximize the opportunity for engagement with content. When sharing content, clearly define terms to minimize miscommunication and facilitate understanding in areas that may be less familiar or especially sensitive. Emphasize the many potential ways that people can experience fulfilling friendships, relationships, and sexuality. Make sure students know about different ways that abuse can show up in different kinds of relationships. Expand messages about safety and respect to include the needs as well as experiences of students with disabilities who may have some unique concerns. With respect to both consensual and non-consensual interactions, include information on sexually transmitted infections, pregnancy, and contraception. Modify role play or story prompts to incorporate a variety of disabilities in different roles throughout scenarios. Support students with disabilities to navigate situations through self-advocacy and asking for help when needed. If content becomes overwhelming or triggering for some students, allow space for self-care. People need to support each other to create the healthier spaces that are the goal of sex education.
A note on representation: Inclusive representation that shows and tells the story of disability is important in all aspects of life. In the realm of sexuality and relationships where people with disabilities are typically excluded, representation is even more critical to positive experiences. While books, television shows and movies are starting to openly explore sex for disabled people, many resources may be lacking in authenticity and give a mixed impression of disabled experiences. While disabled experiences can be complex, teachers should be mindful of ways that the media can reinforce tropes about disability in the context of sexuality and relationships. Try to select media that includes authentic representation of disability as well as media that was developed directly by disabled people. Many disabled creators and authors have developed videos, books or other resources that explore disabled sexuality as well as relationships. That said, a representation gap exists in the experience of disabled people in sexual/reproductive healthcare. Healthcare is a key part of actualizing sexuality education safely, and many educators offer “talk to your trusted adult or your healthcare provider” as the automatic response to questions that feel more nuanced or less familiar, which often includes questions about disability. Unfortunately, access to trusted adults and healthcare providers for support with sexual/reproductive health can be uniquely difficult for people with disabilities. Some healthcare spaces have developed articles and videos for people with disabilities, so keeping resources available can be helpful.
All people need affection, love, acceptance and companionship. Disability does not negate a person’s sexuality, bodily autonomy and the right to positive relationships. While disability is common throughout the world, gaps in education harm the disability community, and a lack of support in the classroom can add to the challenge of accessing safe, healthy and fulfilling sexual experiences. Best practice guidance fosters supportive environments for all students with a wide variety of different kinds of needs. Access is just one step to inclusion for people with different identities, but without access, full inclusion is impossible. Students with disabilities deserve access to education like students without disabilities, and all students deserve access to respectful relationships.
Ashira Greenberg (she/her/hers) graduated with her Master of Public Health from Columbia University’s Mailman School of Public Health and received her CHES certification. Ashira is passionate about child, youth and family health with an interest in improving educational and healthcare experiences for all young people. Ashira is especially committed to advocacy and health promotion on behalf of youth with disabilities, chronic illness and complex health needs.
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