Alex, with a 10% chance of surviving, is now 13 years old. He battled through that inciting event that caused brain damage and continues to battle obstacles every day. The first three years of his life were spent in doctor's offices, resulting in evaluations that never gave his parents any comfort of hope, or even a firm diagnosis of what they were facing.
Though Alex has had many diagnoses and labels, he is an extraordinary kid who has touched lives and spread joy in so many ways. He adores music, riding his bike, school and the neighbor dog, Piper.
Team Alex Takes Action
initial diagnosis of Cerebral Palsy, Alex's family began to realize that Alex was having trouble with vision. At 7 months old, Alex was diagnosed with Cerebral Visual Impairment (CVI), a neurological visual impairment, meaning the eyes functionally work but do not communicate with the brain effectively. CVI is the #1 cause of visual impairment in children in the developed world. But despite this grim fact, there is hope because with therapeutic intervention CVI is treatable.
While treatment for CVI is known, it is not widely available. Determined to help other families and children in Central Illinois receive evaluation, treatment and support for CVI, Rock the Farm, a fundraising concert benefiting Easterseals Central Illinois was born. Team Alex, a team of Alex's family, produces the concert to finance and sustain CVI treatment at Easterseals Central Illinois -- benefiting Alex and many other children with this diagnosis. This is an exciting year. With the funds raised over our seven years of Rock the Farm, Easterseals Central Illnois is launching The ALEX program for CVI.
Support Team Alex
You can make a donation to Team Alex and directly support The ALEX Program for CVI by clicking here.