As we remember Dr. Martin Luther King Jr. and the vital work he did and continues to do through his legacy, I would like to reflect on the hope that change can bring.

Change is not something that just happens automatically, but it can happen in the wake of pain. Over this past year, this country experienced the unimaginable with the pandemic, with hundreds of thousands of people losing their lives. The divisiveness in this country was highlighted over and over, with the death of George Floyd, Breonna Taylor and countless others, and culminating in the reprehensible actions taken at the U.S. Capital.

But in these dark moments, we also see people engage in acts of love that make the unbearable bearable and let each of us know we are not alone in our fear or grief; social distancing does not mean disconnection from each other, whether it’s connecting through Zoom with your friends in quarantine or holding a virtual vigil for those we lost.

If you are feeling powerless right now, remember that Dr. King once said, “If I cannot do great things, I can do small things in a great way.” Every action we take to help each other, and to be kind, sets us forth on a path to positive change and brings hope for a brighter future. Through self-reflection, community outreach, or other acts of love, we can be a beacon of that hope we so long to feel again. Let’s listen to Dr. King’s words and put them into practice every day.

Louis Braille was born on January 4, 1809. His birthday is now annually recognized as World Braille Day, and January is Braille Literacy Awareness Month. I have long been aware of World Braille Day, but it’s only recently that I learned that the entire month is dedicated to Braille — how cool is that?!

A page written in Braille along with standard characters and words.

Though I don’t use Braille as often as I used to, it’s still a part of my life. I first learned Braille when I started preschool at age 3. My memories of this are foggy at best, but I do remember the first Braille book I read was called Go and Do. It introduced me to contractions, which are letters or symbols that are used to substitute for actual words. For example, the letter G by itself stands for the word “go.” Braille has a symbol for the word “and,” similar to how in print, you use the symbol “&” to mean “and.” The letter D by itself stands for the word “do.” This makes typing easier, as you do not need to type the entire word.

I read a lot of Braille in my school years. As far back as middle school, I remember textbooks being several volumes. Braille books are heavier, and the dots can take up so much space that the average print textbook is split up into several volumes when converted to Braille. This made for some accommodating in middle and high school — for my school presentations, I often needed to know ahead of time what pages we’d be working on so I could see if I needed to retrieve another volume of the textbook. If this concept confuses you, don’t worry; it confused my teachers when I’d try to explain it. They’d ask, “Doesn’t your textbook there just have all the pages like ours does?”…not in a patronizing way, but out of simple confusion.

Braille books can be very expensive, especially when they come in several volumes. So, you can imagine that this is why, when I’m reading books for pleasure at home, I prefer to listen to audio books. I read a lot of books (I love reading!) but after reading Braille for quite a while, my fingers can actually get tired. Sometimes, they hurt!

When I went to college, most of my assignments were done electronically. I could read textbooks using VoiceOver (the speech synthesizer on my iPhone), but I often took tests in Braille. I was given the option to either have them read tests to me in person or provide them to me in audio format. If I chose the audio format, someone from the Disability Resource Center would record the exam, I listen to the recording and write my answers in Braille. Later, my Braille answers would be transcribed into print for the professors to grade.

Audio format seemed like it took too much time, so I arranged to have my exams provided in Braille instead. The professors simply emailed the exam to the Disability Resource Center and they’d provide it in Braille. That way I wouldn’t have to rewind the audio or ask someone to re-read something if need be — I could simply use my fingertips to reread the question if I needed to.

To take notes in class, I’d use a Braille Note Apex (it essentially looks like a screen-less laptop). Similar to how words appear on the screen when you type on a laptop, the words would appear at the bottom on a Braille display. I could have used my laptop to take notes, but I would’ve had to use headphones so my classmates wouldn’t hear the screen-reading software on my computer. You can see the problem there: it’s hard to hear a class lecture with headphones on! Using just one earbud in my ear meant I might be too focused on the speech software and miss something the professor said. So I went with Braille.

As you might know from previous posts, I graduated from Northern Illinois University in December 2019. Most people think of Braille as a way to read books, but now that I’m done with school, I use it in ways you might not think of. We used my Braille writer — a very large typewriter of sorts — to label the cards so I can play card games with my family. I use Braille to read signs that verify bathroom signs or room numbers (though this was more applicable in college, but I’m sure it will be useful again post-pandemic, when I get out and travel more). Another example: I sometimes use sound clues to locate restrooms myself when alone at a coffee shop, and I check to see if there’s a Braille sign near the door to indicate it is the women’s restroom.

A common concern among parents is that after a blind person is through with their education, with everything being electronic these days, Braille skills will diminish, and a person may not read as well. But Braille is still there and still useful, from reading signs to playing games to even writing an old-fashioned card if you want to.

One of my (sighted) friends learned Braille and every year she writes my birthday card in Braille, and I’m grateful that she taught herself Braille and that I still use it outside of school.

Early in December 2020, I wrote a blog post about the final rule issued by the Department of Transportation (DOT) on traveling by air with service animals. The rule was published in the Federal Register a few weeks later, which cleared the way for it to go into effect today, January 11, 2021. From now on, passengers have to pay to have emotional support animals travel with them.

Service animal organizations – including the Seeing Eye, where I trained with my service dog Luna – are pleased with certain aspects of the rule, including the definition of service animal as “a dog, regardless of breed or type, that is individually trained to do work or perform tasks for the benefit of a qualified person with a disability.” But one thing about the 2020 ruling many service dog organizations are not crazy about is the new form DOT is requiring service-dog users to fill out before traveling.

Starting today, airlines will be required to have the Service Animal Air Transportation form on their web sites, including a version accessible to people who use assistive technology – the screen reader I am using with my laptop to write this article, for example. Service dog organizations say they will be watching closely as airlines begin to implement the new rule. Many view the requirement to fill out a special form when flying as an unnecessary and unfair burden to impose on qualified service dog handlers.

The Department of Transportation can only take action against an airline if individuals exercise their right to file a complaint. Qualified service dog handlers who encounter barriers to air travel – including inaccessible forms – are encouraged to file a Department of Transportation Civil Rights complaint form found online here.
And if it helps to have the link all spelled out the DOT civil rights complaint form can be found online at: https://www.transportation.gov/airconsumer

I’ve written a fair amount of blog posts over the years encouraging employers to hire people who have disabilities, and I’ve also filled out plenty of surveys about what it’s like to be a person with a disability looking for work. This is the first time I’ve heard of a survey asking employers to share their experiences hiring and/or managing people with disabilities: The Shirley Ryan AbilityLab (formerly known as the Rehabilitation Institute of Chicago) is currently conducting a survey to learn what helps people with disabilities keep their jobs. They say survey results will help guide services to people with physical disabilities to improve employment outcomes. From their press release:

The 30th anniversary of the Americans with Disabilities Act provides an opportunity to look at the progress we’ve made as a nation, and to identify issues that require our continuing efforts.

As a person with a disability who has enjoyed many years of employment here at Easterseals, I’m glad to hear there is interest in discovering ways to help me and other people with disabilities keep our jobs. I’m very interested in what might be learned from this survey, and I know I’m not alone. If you are a qualified employer or manager, maybe time off at home during the holidays will leave you with 30 free minutes to fill it out. Please share the link and QR code with your business networks as well — thanks.

I happen to turn the radio on this past weekend just in time to hear a guy named Mik Scarlet saying the COVID environment is giving average people a better understanding of what it’s like to be at odds with the “built environment.” Scarlet, a wheelchair-user who is an expert in access and inclusion, explained it like this: “Non-disabled people are finally getting the idea of what it’s like to be told I’m sorry, you can’t come in, we don’t have access for you. It’s having your world shrunk, when it’s not your fault.”

What I’d tuned in to that day was the National Public Radio Show On the Media. The weekend show was crediting the unique experience people with disabilities have as a group when it comes to rebuilding infrastructure.

During the show, host Bob Garfield wonders out loud if those experiences might help policy-makers and advocates when it comes to rebuilding our post-pandemic world. “Well, isn’t this awkward?” he asks in a refreshingly sardonic way. From there, he points out that eight billion people around the world are living in a centuries-old environment constructed in a way that now, during the pandemic, is dangerous: narrow passageways, crowded indoor spaces, poor ventilation. “Now we’re going to have to retrofit the entire built world to accommodate a new biological reality,” he says. “To some people, though, that’s a movie they’ve seen before. Namely, those with disabilities. The universe is facing what people who use wheelchairs have face their entire lives: an infrastructure that just doesn’t work.”

After his interview with Mik Scarlet, Garfield turns to Sara Hendren, professor at Olin College of Engineering. The mother of a child with Down syndrome, Hendren is the author of What Can A Body Do? How We Meet the Built World. The book discusses ways to apply the wisdom and work of people with disabilities to the process of redesigning a post-pandemic world.

Curb cuts, wheelchair-accessible bathrooms, auto-captioning, automatic doors, Braille buttons on elevators…over the past half-century, people with disabilities have worked for accommodations that are now so commonplace everyone takes them for granted.

What will be next?

Hendren says things we’ve seen this past year — seniors-only shopping hours, flexible remote work options, accessible food and grocery delivery services, opening shared streets to pedestrians and bicycles — are all changes people with disabilities have long been asking for but were not made until the mainstream needed them.

What I learned from the broadcast — and then from listening to the podcast again afterwards — is that when it comes time to start reimagining the post-pandemic-built world, policy makers would do well to take lessons from the disability rights movement. Disability advocates have a lot of experience rebuilding society to accommodate new biological realities. I hope the people in Washington are listening!