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Download the Living with Autism Study and Findings

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Made possible through the generous support of
MassMutual Financial Group.

MassMutual Financial Group logo

Conducted in cooperation with the Autism Society of America.

Autism Society of America logo

Easter Seals' Living with Autism Study

"What will happen to my son when we are gone?"

Download the Living with Autism study findingsAutism affects more than 1.5 million Americans and their families. Critical services and supports are needed to raise a child with autism, but they are few and far between.

In cooperation with the Autism Society of America, Easter Seals surveyed over 2,500 parents of children with autism and typically-developing children -- about daily life, relationships, independence, education, housing, employment, finances and healthcare.

The results gathered from our groundbreaking autism study paint a startling picture of the life-long fears and anxieties people with autism and their families face ... and the disparities among parents of children with autism as compared to parents of typically developing children:

  • Nearly 80% are extremely or very concerned about their child’s independence as an adult.
  • Only 14% feel that their child will be able to make life decisions.
  • Only 17% think their child will make friends.
  • They report that they’re “financially drowning,” with concerns for their child’s financial future.

Thanks to the generous support of MassMutual Financial Group, the findings are now available to you. As an Easter Seals national corporate partner and the study sponsor, MassMutual is committed to serving children and adults with autism through its exclusive SpecialCare program, a solution that gives families living with autism and other disabilities access to information, specialists, and financial strategies that can help improve their quality of life. Learn more about the SpecialCare program here.

Millions of families are desperate for solutions and resources. Easter Seals and others in the autism community are doing their best, but current systems, structures and resources to help people with autism and their families do not adequately meet the growing need, especially for adults with autism.

Easter Seals will use these findings to raise awareness of and advocate for the life-long services families living with autism desperately need.