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Sickle Cell Program

Easter Seals is pleased to announce a new program for individuals with Sickle Cell Disease

Sickle cell trait and sickle-cell disease are conditions that are genetically inherited or passed down from your parents.  Easterseals sickle-cell program is targeted towards individuals who have sickle-cell disease and to those at risk for sickle cell trait. 

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Easterseals will screen individuals 16 years old to 45 years old who are at-risk for sickle cell trait.

Education and outreach:

Easterseals offers educational information about sickle-cell disease and sickle cell trait at local health fairs, schools, etc and to community groups.  Our presentation can vary in time from 20 minutes to 45 minutes, we have a PowerPoint presentation and/or handout materials.  Call the Easterseals Sickle Cell Educator (386–589–3302) to schedule a presentation or attendance at a health fair. 

Free sickle cell trait screening:

Individuals 16 years old to 45-year-old may complete a free sickle cell trait screening through a collaboration with Halifax Health.  It is important to know if you have sickle cell trait because you could have a baby with sickle-cell disease if your partner also has sickle-cell disease, sickle cell trait, or another abnormal blood disorder.  Call the Easterseals Sickle Cell Educator (386 – 589 – 3302) to find out how to schedule your free sickle cell trait screening.

Education for individuals with sickle cell trait:

Individuals recently identified with sickle cell trait will be provided an educational session to help them understand the implications of having sickle cell trait and how it may impact their health and well-being throughout their life.

Care management:

Sickle-cell disease affects one of every 500 black or African-American births and about one out of every 36,000 Hispanic American births.  Individuals with sickle-cell disease can have complications such as a crisis, infection, eye disease, or stroke.  Easterseals offers care management for individuals with sickle-cell disease provided by a registered nurse.  The goal of care management is to increase the individual’s (or their parent’s) understanding of the disease so that they can live a more healthy life and participate actively in their own care.  To refer an individual for care management services call the Director of the Sickle Cell Program at Easterseals (386-589-3892).

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