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One in Seven Medicaid Enrollees has a Disability, Hear their Stories

One of every seven Medicaid enrollees is a person with a disability, and now the Senate is considering health care proposals that restrict access to critical Medicaid services. We urge the Senate to oppose any proposal to reduce or eliminate Medicaid services currently available to people with disabilities. (Read our letter to Congress here) Medicaid helps so many live their lives to the fullest. Whether that means helping people with disabilities stay healthy and get the resources they need to live at home, or allowing parents to work outside the home for pay instead of being full-time caregivers, ultimately avoiding bankruptcy, people who currently rely on Medicaid services can't afford to lose them.

Read more than 150 stories we've collected here from parents of children with disabilities and from adults and seniors with disabilities in the Easterseals family who depend on Medicaid for their health, independence and well-being. And join more than 2,000 people who have already voiced their concern by signing our petition.

BACK TO TOP Alabama Nakita W. -- Calera, AL AL-06
What Medicaid service do you or the person you know receive? My daughter which is 3yrs old receives full Medicaid Why do you get the service? My daughter has Social Behavior spectrum of autism How has the service made a difference? It has made a huge difference, b/c without Medicaid, she will not be able to get the speech and O.T sessions that she needs. Easter Seals is very vital to our family, b/c they have helped my daughter in so many ways. She is now opening up more, and also her speech is coming along. She is saying things, the doctors say she will never say or do... They are not only helping her, but me as her mother as well. It's very hard to see your daughter struggle with the disability that she has, and to watch other kids her age play and do just fine. I know that God has chosen her for me, and I love her dearly, but with the help of Easter Seals and the love we BOTH give her, sky is the limit for her. What would happen if you no longer received the service? I would be devastated, b/c she will not be able to get the services that she needs. NOT only will it hinder her, but also stop her progress of becoming the great person that she is. Stopping her service will be detrimental to her, and will effect her lifestyle as an child/adult. Nakita W. Calera, AL You can help Easterseals raise a collective voice for people with disabilities to ensure they continue to get the services and supports they need. Donate today, sign our petition, or share your story about how Medicaid services have helped you or someone you know.
Albertina P. -- Tuscaloosa, AL AL-07
What Medicaid service do you or the person you know receive? AIDB Why do you get the service? Baby born 5 months too soon weighing 1lb 3ozs. Considerably far behind in all areas. They have provided her with the different therapies. How has the service made a difference? She is. Living miracle. What would happen if you no longer received the service? We still need the healthcare providers and Ned's. Albertina P. Tuscaloosa, AL You can help Easterseals raise a collective voice for people with disabilities to ensure they continue to get the services and supports they need. Donate today, sign our petition, or share your story about how Medicaid services have helped you or someone you know.
April S. -- Phenix City, AL AL-03
What Medicaid service do you or the person you know receive? Allkids Why do you get the service? They have autism identical twins boys. How has the service made a difference? They are progression and making improvement, because they are able to attend the different services they need. What would happen if you no longer received the service? They will not get the help they need to learn and develop. April S. Phenix City, AL You can help Easterseals raise a collective voice for people with disabilities to ensure they continue to get the services and supports they need. Donate today, sign our petition, or share your story about how Medicaid services have helped you or someone you know.
BACK TO TOP Arizona Featured storyEzra -- Easterseals Southwest Human Development AZ-07
EzraEzra was born with Prader-Willi syndrome, a rare disorder present at birth that results in physical, mental and behavioral challenges, including a constant sensation of hunger, known as hyperphagia. Ezra's parents met with Easterseals Southwest Human Development specialists while Ezra was in the NICU to discuss early intervention services. Shortly after his release from the hospital, Ezra began receiving Medicaid-funded early intervention services, including occupational, speech and physical therapies, provided by Easterseals Southwest Human Development in Arizona. Ezra was also referred to the nonprofit's ADAPT Shop, a unique place where children with disabilities can access physical supports. ADAPT Shop staff evaluated Ezra - diagnosing his scoliosis - and set him up with a customized seating device (his "happy chair") that supported Ezra, who was unable to lift his head at the time. Ezra will be turning 2 this year. He is now able to sit up on his own, bear weight on his feet and use his core muscles as a result of the early access to Medicaid services through Easterseals Southwest Human Development. You can help Easterseals raise a collective voice for people with disabilities to ensure they continue to get the services and supports they need. Donate today, sign our petition, or share your story about how Medicaid services have helped you or someone you know.
Lynn C. -- Phoenix, AZ AZ-09
What Medicaid service do you or the person you know receive? In-Home Physical Therapy Why do you get the service? My daughter has Down Syndrome and qualified for Early Intervention Services How has the service made a difference? With the help of our amazing Physical Therapist my daughter learned to crawl first, which research has shown is critical to creating the synapses in the brain for future correct movement, and then learned to walk by the time she was 2 1/2 years old! What would happen if you no longer received the service? I am currently waiting to get AHCCS services for children 3-18 years old. If my daughter doesn't get AHCCS she will not be able to have her Physical Therapist return. Because of her low muscle tone she needs continue help to further her mobility such as getting in and out of doors, doing stairs, increasing her stability and cadence so she does not have pain later on and she learns how to continue to move correctly. Intervention now will prevent medical care in the future. Lynn C. Phoenix, AZ You can help Easterseals raise a collective voice for people with disabilities to ensure they continue to get the services and supports they need. Donate today, sign our petition, or share your story about how Medicaid services have helped you or someone you know.
BACK TO TOP Arkansas Tammy B. -- Cabot, AR AR-01
What Medicaid service do you or the person you know receive? Ar kids an tefra Why do you get the service? Bartlett Beetle syndrome How has the service made a difference? It has paid for every thing What would happen if you no longer received the service? My 6 yr old granddaughter would not be able to get the medical care she needs probably Tammy B. Cabot, AR You can help Easterseals raise a collective voice for people with disabilities to ensure they continue to get the services and supports they need. Donate today, sign our petition, or share your story about how Medicaid services have helped you or someone you know.
BACK TO TOP California Featured storyEli -- Easterseals Southern California
EliAt 27 months, Eli was diagnosed with autism. He was barely verbal, engaged in repetitive behaviors and isolated himself from other children. Through the early education services provided by Easterseals, Eli's behavioral therapy protocols were supported during his pre-school day and staff worked to build his verbal and social skills. As a result of these Medicaid-funded services, Eli, by age 5, had caught up to his peers and began kindergarten on time. Because of the services Easterseals provides Eli was able to get his future off to a good start reducing the need for intensive and costly support in the future, and both of his parents continued to work without needing to quit a job to provide full-time care. You can help Easterseals raise a collective voice for people with disabilities to ensure they continue to get the services and supports they need. Donate today, sign our petition, or share your story about how Medicaid services have helped you or someone you know.
Colleen P. -- Salinas, CA CA-20
What Medicaid service do you or the person you know receive? I COLLEEN PIRES & MY SONS, TYLER-PATRICK PIRES 24 YRS. & SEAN-PATRICK PIRES 29 R BOTH DISABLED SINCE BIRTH, WE ALL GET MEDI-CAL & I GET MEDICARE & MEDI-CAL Why do you get the service? FOR R MEDICAL NEEDS & SON'S R DISABLED & I'M 65 YRS.OLD How has the service made a difference? WE HAVE ALOT OF HEALTH ISSUES WITHOUT MEDI-CAL, I COULDN'T AFFORD TO PAY OUT OF POCKET MEDICAL EXPENSES AT ALL. What would happen if you no longer received the service? I COULDN'T GO TO DR.S APPT. & DEFINITELY WOULDN'T BE ABLE TO GET MY SON'S THE HEALTH CARE THAT THEY DESPERATELY NEED. Colleen P. Salinas, CA You can help Easterseals raise a collective voice for people with disabilities to ensure they continue to get the services and supports they need. Donate today, sign our petition, or share your story about how Medicaid services have helped you or someone you know.
Cristal V. -- Ontario, CA CA-35
What Medicaid service do you or the person you know receive? ABA Speech Occupation Physical Why do you get the service? Autism How has the service made a difference? My son wouldn't be a typical child for not the help of these services at such a young age. What would happen if you no longer received the service? He would regress. Cristal V. Ontario, CA You can help Easterseals raise a collective voice for people with disabilities to ensure they continue to get the services and supports they need. Donate today, sign our petition, or share your story about how Medicaid services have helped you or someone you know.
Erika F. -- Castro Valley, CA CA-15
What Medicaid service do you or the person you know receive? My son is autistic and receives much needed therapy at a clinic. He is 22 years old. Why do you get the service? My son needs therapy. He's not the same if he doesn't receive it. He gets worse. How has the service made a difference? He's much more in control of his behavior and emotions. What would happen if you no longer received the service? He would be a mess and the household would have to deal with hostile behaviors and he would become an emotional mess. Erika F. Castro Valley, CA You can help Easterseals raise a collective voice for people with disabilities to ensure they continue to get the services and supports they need. Donate today, sign our petition, or share your story about how Medicaid services have helped you or someone you know.
Kathy B. -- Fair Oaks, CA CA-07
What Medicaid service do you or the person you know receive? Medical through Healthnet Why do you get the service? I have been diagnosed with aspergers and also take a very important medication that has been the only proven remedy for my severe alcoholism that hospitalized me and almost ruined my life. I take this medication daily and receive counseling for aspergers at HRC. How has the service made a difference? It is the only solution to my drinking. I was weeks away from being homeless. I drank daily...24/7. I now have 8 months. I cost the state money everytime i go to the hospital for drinking. I haven't drank in 8 months. I receive counseling for depression and aspergers and it helps me to integrate into society better. What would happen if you no longer received the service? I would be dead in a few years and homeless. That is the truth. I can't function without naltrexone and counseling. Its a matter of life or death for me. It blocks the receptors in the brain that crave alcohol. Counseling helps me so I don't get suicidal. Kathy B. Fair Oaks, CA You can help Easterseals raise a collective voice for people with disabilities to ensure they continue to get the services and supports they need. Donate today, sign our petition, or share your story about how Medicaid services have helped you or someone you know.
Sebastian O. -- Diamond Bar, CA
What Medicaid service do you or the person you know receive? medicare helped my nieces and nephews receive treatment for serious illnesses. They would not be alive if there was no such service to help! Why do you get the service? How has the service made a difference? My niece specifically is a lot better, now 12 and loving life with Cheerleading! What would happen if you no longer received the service? Sebastian O. Diamond Bar, CA You can help Easterseals raise a collective voice for people with disabilities to ensure they continue to get the services and supports they need. Donate today, sign our petition, or share your story about how Medicaid services have helped you or someone you know.
Maria O. -- Baldwin Park, CA CA-32
What Medicaid service do you or the person you know receive? Mental health Why do you get the service? Children behavior How has the service made a difference? It helped a lot,my children change that behavior and the teraphy helped the whole family to know what to do and help our children to do better What would happen if you no longer received the service? Behavior problems at home,school and when we went out his life was at risk because of the behaviors. Maria O. Baldwin Park, CA You can help Easterseals raise a collective voice for people with disabilities to ensure they continue to get the services and supports they need. Donate today, sign our petition, or share your story about how Medicaid services have helped you or someone you know.
Mary L. -- San Jose, CA
What Medicaid service do you or the person you know receive? My Daughter is in constant pain and has Neurofibromitosis and Moyamoya disease. This answers it all for those that really do care. Why do you get the service? Pain How has the service made a difference? Relief of Pain and expenses What would happen if you no longer received the service? unacceptable to believe this would ever happen. More pain and misery in life for all of us especially my daughter. Mary L. San Jose, CA You can help Easterseals raise a collective voice for people with disabilities to ensure they continue to get the services and supports they need. Donate today, sign our petition, or share your story about how Medicaid services have helped you or someone you know.
Maryanne R. -- Laguna Niguel, CA CA-48
What Medicaid service do you or the person you know receive? Medi Cal Why do you get the service? She has depression and a brain injury How has the service made a difference? Would not be able to afford medical care without it What would happen if you no longer received the service? She wouldn't be able to afford her meds and medical care and would become suicidal Maryanne R. Laguna Niguel, CA You can help Easterseals raise a collective voice for people with disabilities to ensure they continue to get the services and supports they need. Donate today, sign our petition, or share your story about how Medicaid services have helped you or someone you know.
Cynthia H. -- Rocklin, CA CA-04
What Medicaid service do you or the person you know receive? My son Marshall receives In Home Support through MediCal. The money is directly used to pay 90% of our living expenses as both my son and my husband are disabled and on Social Security Disability. I am caregiver to them both. Why do you get the service? How has the service made a difference? What would happen if you no longer received the service? We wouldn't have enough money for food, rent or utilities without this funding. I would be responsible for paying for all Marshalls medications, which cost more each month than the money I make as a paid caregiver. Cynthia H. Rocklin, CA You can help Easterseals raise a collective voice for people with disabilities to ensure they continue to get the services and supports they need. Donate today, sign our petition, or share your story about how Medicaid services have helped you or someone you know.
BACK TO TOP Colorado Diane M. -- Colorado Springs, CO CO-05
What Medicaid service do you or the person you know receive? Medicaid is the secondary insurance for my adult son, who is on Medicare due to his disability. Why do you get the service? He receives SSDI benefits. How has the service made a difference? Yes What would happen if you no longer received the service? He would have to pay for the portion of his medical care not covered by Medicare. Diane M. Colorado Springs, CO You can help Easterseals raise a collective voice for people with disabilities to ensure they continue to get the services and supports they need. Donate today, sign our petition, or share your story about how Medicaid services have helped you or someone you know.
Rebecca P. -- Greeley, CO CO-04
What Medicaid service do you or the person you know receive? When I was out of work recovering from numerous surgeries, I used Medicaid for 3 months, and would not have healed properly without it. As a result I was able to return to full time employment. Why do you get the service? Unable to work full time for health reasons and could not afford COBRA anymore. How has the service made a difference? As a result I was able to return to full time employment. What would happen if you no longer received the service? It scares me to think about that. More than likely, delayed my healing and return to full time work. Rebecca P. Greeley, CO You can help Easterseals raise a collective voice for people with disabilities to ensure they continue to get the services and supports they need. Donate today, sign our petition, or share your story about how Medicaid services have helped you or someone you know.
Sheila J. -- Denver, CO CO-01
What Medicaid service do you or the person you know receive? CES Waivers Why do you get the service? We have a child with Dup15q How has the service made a difference? Without it his single parent would not have the means to afford respite. What would happen if you no longer received the service? Adoption Sheila J. Denver, CO You can help Easterseals raise a collective voice for people with disabilities to ensure they continue to get the services and supports they need. Donate today, sign our petition, or share your story about how Medicaid services have helped you or someone you know.
BACK TO TOP Connecticut Featured storyAlex -- Easterseals Center for Better Hearing CT-03
AlexAlex was diagnosed with CHARGE syndrome—a condition that causes complications related to vision, heart health, growth and hearing. Alex's hearing loss was very significant. As a toddler, his doctors were not optimistic that Alex would ever hear out of both ears clearly. Alex has experienced 20 surgeries, including ones to help correct his hearing so he can hear "stereo sound." In addition, Alex has received Medicaid-funded hearing care and services through Easterseals Center for Better Hearing. These critical Medicaid services have allowed Alex to hear out of both ears clearly. He is able to communicate without the use of sign language. Alex has been successful in the public school system, learning alongside his peers, and graduating high school. He now goes from conference to conference speaking to others about his disability, while interning part-time and is preparing to go to college. You can help Easterseals raise a collective voice for people with disabilities to ensure they continue to get the services and supports they need. Donate today, sign our petition, or share your story about how Medicaid services have helped you or someone you know.
Kristen Mae L. -- Lisbon, CT CT-02
What Medicaid service do you or the person you know receive? I have a severe mental illness and have struggled with keeping jobs and having medical insurance to keep on my medications. My cousin has an intellectual handicap and emotional issues and has been in the DMR and ARC programs living in group homes then/now in Independent Living and he has kept the same job, the same place to live, with consistency, stability, and living a very good life NOT struggling with homelessness, no home base, no stability, like I have. This is because he has help from government organizations that are set up to help people with intellectual disabilities. People who CHOOSE to be alcoholics, drug addicts, gamblers get TONS of help, but people with mental illnesses get pushed down and thrown to the wayside by our society. I have 1 good thing going for me the last few years, and that is medical aid to stay on my meds so that at least I can keep on a little bit of a decent life path. Taking away health care and services will create many many many more problems than we have already had. Want a good example of what happens when people with mental illness don't get the help that is NECESSARY from the professionals who could care less in our society? Newtown. That is not a gun ownership issue because he didn't even own those guns. It was an un-helped mentally ill person who killed people, and it is a PROBLEM that still has never been addressed or resolved in any way, shape, or form because smoke and mirrors an political agendas constantly get in the way of REAL SOLUTIONS TO REAL LIFE PROBLEMS FOR REAL PEOPLE. Why do you get the service? not listing my illnesses ---- AS FOR THE REQUEST BELOW THAT ASKS ABOUT BEING ABLE TO SHARE MY STORY; You can have permission to share all of this information, go to: http://www.Be-A-Hero-Here.com and ask me for stories and details. Everyone knows about my illness, but I do NOT want my REAL NAME to have the stigma of mental illness because it makes getting work impossible. How has the service made a difference? Medical benefits are necessary to be able to take the medications. There SHOULD be Independent Living, Mentors, and a program like http://www.Be-A-Hero-Here.com available for people with mental illness who struggle with chronic homelessness and instability in their life so that we can SOLVE PROBLEMS FOREVER. What would happen if you no longer received the service? I would be homeless again, unmedicated, and floundering around, probably try to kill myself again, not that Trump cares about any of us at all. Kristen Mae L. Lisbon, CT You can help Easterseals raise a collective voice for people with disabilities to ensure they continue to get the services and supports they need. Donate today, sign our petition, or share your story about how Medicaid services have helped you or someone you know.
BACK TO TOP Delaware Featured storyJourney -- Easterseals Delaware & Maryland's Eastern Shore
JourneyWhen Journey was born at 28 weeks, her parents Patrice and Rich knew they had a journey ahead of them - the inspiration for her name. It was not until Journey was nine months old and had a seizure that they realized their journey would not be the one they expected. When Journey was diagnosed with a rare brain disorder, her parents were concerned about the unknown, but then they found Easterseals and a team of therapists and knew they were not alone. “It was terrifying at the beginning, but once we had a diagnosis we hit the ground running to find ways to help her and make her life easier,” Patrice says. “Easterseals helps Journey be the best she can be. They help make big goals and help her reach them.” Journey is now three and has passed many milestones with the help of Medicaid funded Children’s Therapy services. She is now working on sitting up on her own for longer periods of time, crawling and walking with a walker, which helps her keep up with her brother. You can help Easterseals raise a collective voice for people with disabilities to ensure they continue to get the services and supports they need. Donate today, sign our petition, or share your story about how Medicaid services have helped you or someone you know.
Featured storyBryson -- Easterseals Delaware & Maryland's Eastern Shore
BrysonA diagnosis does not define who you are or what you can be. Kirstin and Matt learned this when their son, Bryson, was born with TAR syndrome, a genetic condition so rare that even the doctors did not know what to expect. Receiving a diagnosis like this can be scary, but Easterseals helped Bryson and his parents realize his full potential. Bryson started receiving Medicaid funded Children’s Therapy services when he was two months old. Easterseals therapists helped Bryson strengthen the muscles in his hand, roll over and sit up. Bryson, who is now 15 months old, is working on standing on his own and taking steps. With proud parents and therapists cheering him on, he is making gains and keeping up with kids his age. “When he was younger it was hard to see other kids do what he couldn’t do yet,” Kirstin said. “Bryson is just like any other 15-month-old. He wants to do what every other kid is doing. He wants to play. He may have physical differences so he does things differently, but he is just like any other kid. He wants to go, go go!” You can help Easterseals raise a collective voice for people with disabilities to ensure they continue to get the services and supports they need. Donate today, sign our petition, or share your story about how Medicaid services have helped you or someone you know.
Featured storyMatt -- Easterseals Delaware & Maryland's Eastern Shore
MattWhen Kelley’s son, Matt, who has Cerebral Palsy and an intellectual disability, completed high school, she was worried that a transition into an adult program might be difficult for him. Then she found Easterseals Medicaid funded Intellectual Disabilities Services. “Easterseals is such a blessing to our family because Matt is happy, busy, and is a part of the community,” Kelley says. “He is with his peers of all ages and abilities and he has a ball.” Five days a week, Matt comes to the Easterseals day program. While Matt is at Easterseals his parents can go to work with peace of mind knowing he is in capable hands and being treated with respect. “The people at Easterseals respect the participants as adults and capitalize on their strengths. They also respect that even though he is an adult, Matt is also my child. So, they send me updates and pictures through e-mails so I know what he’s been up to,” Kelley said. You can help Easterseals raise a collective voice for people with disabilities to ensure they continue to get the services and supports they need. Donate today, sign our petition, or share your story about how Medicaid services have helped you or someone you know.
Featured storyRyan -- Easterseals Delaware & Maryland's Eastern Shore
RyanWhen Ryan was a teenager he experienced a spinal cord injury that resulted in quadriplegia causing him to no longer have motion and feeling in his arms and legs. Despite his injuries, Ryan, is a shining example of positivity bringing light to all he comes across at Easterseals where he attends the Medicaid funded day program for adults with intellectual disabilities. Finding Easterseals was a blessing to Sherry, but has meant so much more to Ryan. In addition to accommodating his healthcare needs, Easterseals keeps Ryan on the go with visits to local museums and a routine of fitness classes with specialized assistance. “Ryan would be bored to death if he had to sit at home all day rather than go to Easterseals. He likes social interaction and attention. He looks forward to going to Easterseals and is disappointed when he is not there,” Sherry said. “He is well cared for and safe. He is with people who care about him. What more could I ask for?” You can help Easterseals raise a collective voice for people with disabilities to ensure they continue to get the services and supports they need. Donate today, sign our petition, or share your story about how Medicaid services have helped you or someone you know.
Ofelia G. -- Dover, DE
What Medicaid service do you or the person you know receive? Health care, medicine Why do you get the service? My son jose is completely nonverbal since birth and he is now diabetic How has the service made a difference? He cannot work to support himself medically and financially What would happen if you no longer received the service? Then his diabetes will be worsened which can lead to his early demise Ofelia G. Dover, DE You can help Easterseals raise a collective voice for people with disabilities to ensure they continue to get the services and supports they need. Donate today, sign our petition, or share your story about how Medicaid services have helped you or someone you know.
BACK TO TOP Florida Featured storyCamila -- Easterseals Florida FL-21
CamilaCamila is a 3 year old girl with Down syndrome from West Palm Beach, Florida. She was enrolled in Early Steps program as an infant with initial motor and feeding concerns. Camila's family was very involved in her services from the start and she remained in the program until her 3rd birthday. Thanks to Medicaid funding, Easterseals specialists taught Camila's family strategies to help her improve her feeding, gross and fine motor skills through all the developmental milestones. Although Camila's skills were slow to develop, and additional medical issues emerging, Easterseals providers and her service coordinator continued to support and encourage the family, including her sibling and grandmother in strategies as well. Camila has blossomed into this beautiful little girl with a family who is confident in their abilities to encourage her to be a part of her community. They are involved with the Gold Coast Down Syndrome association and enjoy many typical family activities. You can help Easterseals raise a collective voice for people with disabilities to ensure they continue to get the services and supports they need. Donate today, sign our petition, or share your story about how Medicaid services have helped you or someone you know.
Featured storyRyan -- Easterseals Florida FL-08
RyanRyan is a personable young man diagnosed with Autism Spectrum Disorder. Ryan's parents are very supportive and loving and teach him to be as independent as possible. In 2014, Ryan began receiving Medicaid-funded life skills services provided by Easterseals. Through classroom, work-site and community-based supports, Ryan has improved his life and social skills and learned work-related skills such as recycling and safety procedures. Ryan particularly enjoys using the computers and iPads for educational and recreational activities. Ryan works on his goal to increase his physical activity and general health by participating in weekly yoga classes individualized for his special needs. With services provided by Easterseals and other Medicaid providers, Ryan has demonstrated progress developing important life, social, behavioral and employment skills. This past year, Ryan was successfully hired as a laundry aide at an assisted living facility where he now works independently two-three days per week. You can help Easterseals raise a collective voice for people with disabilities to ensure they continue to get the services and supports they need. Donate today, sign our petition, or share your story about how Medicaid services have helped you or someone you know.
Natasha W. -- Jacksonville, FL FL-05
What Medicaid service do you or the person you know receive? Medicare, ssi, all types of therapists, respite care, great medical care, ect.. Why do you get the service? To help out with my special needs 13 year old daughter. Who is non verbal, not potty trained, cerebral palsy, autistic, the list just goes on and on. The services are a very big help to us. Taking care of kids with special needs is very expensive, so for people who don't have the best job that pays a lot of money, there where the services comes in to play to help us.. How has the service made a difference? It's a stress reliever, being able to find services or people to help out with our kids, getting them to learn things that sometimes a parent can't do. Just having that support group means the world.. What would happen if you no longer received the service? I would not be able to take care of my special needs daughter. It's hard work already being a single parent and doing it all on my own. Nyla is a very beautiful amazing young girl, she's 13 and in the 6 grade she lights up my world without her I wouldn't know where I would be. We need all the help we can get when taking care of kids with very special needs.. Natasha W. Jacksonville, FL You can help Easterseals raise a collective voice for people with disabilities to ensure they continue to get the services and supports they need. Donate today, sign our petition, or share your story about how Medicaid services have helped you or someone you know.
Tomas L. -- Deltona, FL FL-06
What Medicaid service do you or the person you know receive? I get medicaid from social security administration. Why do you get the service? I was 100% disabled due to the war in afghanistan How has the service made a difference? don't have to hassle with medical expenses or bills and the visits to the Doctors office are less complicated when filling oit paperwork. What would happen if you no longer received the service? Doctor bills would be through the roof and the visits will be longer to see the Doctor. Tomas L. Deltona, FL You can help Easterseals raise a collective voice for people with disabilities to ensure they continue to get the services and supports they need. Donate today, sign our petition, or share your story about how Medicaid services have helped you or someone you know.
Debra R. -- Melbourne, FL
What Medicaid service do you or the person you know receive? I am waiting for med waiver in Florida Currently an agency has been providing money for my daughter to attend her day program. If med waiver was cut our population would be forced to stay home Why do you get the service? Development al delay How has the service made a difference? Gets my daughter out of the house What would happen if you no longer received the service? No socialization No self worth Debra R. Melbourne, FL You can help Easterseals raise a collective voice for people with disabilities to ensure they continue to get the services and supports they need. Donate today, sign our petition, or share your story about how Medicaid services have helped you or someone you know.
Yolonda E. -- Miami, FL FL-24
What Medicaid service do you or the person you know receive? United Health Care Why do you get the service? My son has Austism, speech, OT, and ANA therapy How has the service made a difference? My son is starting to say words and point to what he wants. My son now play with others What would happen if you no longer received the service? He will shut down completely, he still has a lot to accomplish. Yolonda E. Miami, FL You can help Easterseals raise a collective voice for people with disabilities to ensure they continue to get the services and supports they need. Donate today, sign our petition, or share your story about how Medicaid services have helped you or someone you know.
Dianna W. – Jacksonville, FL FL-04
What Medicaid service do you or the person you know receive? I receive help at home. I had 3 heart attacks, 4 strokes and if Medicaid did not help me with the 20 percent difference. I would have never had rehabilitation in and out of my home. Why do you get the service? I have right side weakness, high risk for constantly falling. Medical Alert also has save my life which is in my home. A fib is also a condition I suffer from. Asthma,COPD,and sleep apnea Medicaid is vital to sustain me and my health. How has the service made a difference? The service allows better access to quality care. I cannot afford to lose medcaid. They also provide transportation to and from my Drs. I live in Florida and do not drive. I would be lost. Completely. ! What would happen if you no longer received the service? I would not be able to go to my Drs. Cardiologist,Neurologists orthopedic, Gynecology Dianna W. Jacksonville, FL You can help Easterseals raise a collective voice for people with disabilities to ensure they continue to get the services and supports they need. Donate today, sign our petition, or share your story about how Medicaid services have helped you or someone you know.
BACK TO TOP Georgia Featured storySasha -- Easterseals Southern Georgia
SashaSasha was abandoned by her birth parents in a bitter divorce and Easterseals stepped in to prevent a 10 year old child with significant disabilities from being placed in an institution. She thrived in a host home with a trained caregiver and services funded by the Medicaid waiver. At age 19, Sasha moved to an Easterseals group home in a typical small town neighborhood. Her nursing services, g-tube nutrition, trach care and 24/7 oversight by an LPN with in the residence are all funded through Medicaid. Sasha enjoys community activities, visitors to her home and has an amazing quality of life, thanks to Medicaid and the Medicaid waiver programs. Now, at age 27, Sasha is beloved by her adopted community and her housemates. She is healthy, happy and medically stable with community doctors who really care. Easterseals is proud to have been a pivotal factor in her quality of life. Unfortunately, another 8,000 Georgians with disabilities are on a wait list for needed Medicaid waiver services. Medicaid funding cuts or restrictions would only exacerbate this growing problem. You can help Easterseals raise a collective voice for people with disabilities to ensure they continue to get the services and supports they need. Donate today, sign our petition, or share your story about how Medicaid services have helped you or someone you know.
Charles L. -- Leesburg, GA GA-02
What Medicaid service do you or the person you know receive? My adopted daughter has FASD . We have given her an opportunity to have a life. She I now 20 years old . She has to have living assistance. She receives Medicare health assistance which she would not be able to provide on her on. She also receives assistance from Easter Seals in providing learning experiences outside of home. Why do you get the service? Daddy and Mommy will not live forever. Society as a whole does not give much of themselves to individuals. They are busy with their on needs . Easter Seals has provided our daughter with valuable social and learning skills to help her in life after we a gone. We would be lost without Easter seal. Medicaid has enabled her to have these services . How has the service made a difference? Without the services she would not be able to have a life outside of institutions. Now she can have a life she deserves like anyone else. She did not ask to be born into this world with her disabilities. She is so precious and loving and an inspiration to others. What would happen if you no longer received the service? She would not be able to survive on her on. Period. Charles L. Leesburg, GA You can help Easterseals raise a collective voice for people with disabilities to ensure they continue to get the services and supports they need. Donate today, sign our petition, or share your story about how Medicaid services have helped you or someone you know.
Dawn S. -- Lithia Springs, GA GA-13
What Medicaid service do you or the person you know receive? Applied Behavior Analysis(ABA) and Counseling. Why do you get the service? My son has autism and goes to ABA to work on maladaptive behaviors, his social and communication skills. He goes to counseling to deal with emotional and anxiety issues. How has the service made a difference? We started ABA about 1.5 years ago and it has made a huge impact in our lives. I am less stressed because I now know how to deal with some of his behaviors. He can function better in school, at home, and out in the community. There are many notable differences in him since we began. We just began counseling a week ago, so I cannot say that I see a difference yet. What I can say is that he responds very well to therapy so, I am extremely hopeful. What would happen if you no longer received the service? While living in Georgia, my son was diagnosed with ASD in January 2015. After doing research, I found out that Georgia Medicaid did not cover ABA. I then found out how critical early intervention is. I made the difficult decision to relocate to a state that had Medicaid coverage. I ended up moving to Florida in August 2015 so that he could gain access to ABA. He has made huge gains since we started ABA in September of 2015, but still has a significant number of deficits that still need to be worked on. It would be detrimental to his progress if he had to stop ABA any time soon. I believe that no longer having access to ABA would definitely have a negative impact on his future. With ABA I believe that he will have a promising future, which includes him attending college and one day working a full time job. Without access to ABA at this critical stage in his life, I think that window of opportunities in the future becomes limited, which would not be in my son's best interest. Dawn S. Lithia Springs, GA You can help Easterseals raise a collective voice for people with disabilities to ensure they continue to get the services and supports they need. Donate today, sign our petition, or share your story about how Medicaid services have helped you or someone you know.
Tammy B. -- Winder, GA
What Medicaid service do you or the person you know receive? medical. but there is a lot that need dental , m,aybe you gave more dental for the disable they would not need so much medical Why do you get the service? medicare and medicade again dental is and should be what is on the top people are getting sick due to dental health , but keep paying all those dr when sometime a little dental care could stop alot of things How has the service made a difference? none so far you have to beg for any service i been fighting since oct 2016 for a sergery and still fighting What would happen if you no longer received the service? i am going to die Tammy B. Winder, GA You can help Easterseals raise a collective voice for people with disabilities to ensure they continue to get the services and supports they need. Donate today, sign our petition, or share your story about how Medicaid services have helped you or someone you know.
Margaret J. -- Hahira, GA GA-08
What Medicaid service do you or the person you know receive? My son has to have therapy several times a month and is on several medications. Medicaid pays for all of the services. Why do you get the service? My son in on the autistic spectrum and has attention deficit hyperactivity disorder. How has the service made a difference? He has to have therapy several times a month and is on several medications. That being said, if it were not for medicaid I would not be able to afford my son's medical expenses. What would happen if you no longer received the service? If it were not for medicaid I would not be able to afford my son's medical expenses and I would not be able to get the services that my son needs. Margaret J. Hahira, GA You can help Easterseals raise a collective voice for people with disabilities to ensure they continue to get the services and supports they need. Donate today, sign our petition, or share your story about how Medicaid services have helped you or someone you know.
Trascia A. -- Valdosta, GA GA-01
What Medicaid service do you or the person you know receive? My son has autism and he receives medicaid Why do you get the service? Because of his condition How has the service made a difference? It has help him be able to some what do somethings his self and help with his temper What would happen if you no longer received the service? My son would be at a lost of life Trascia A. Valdosta, GA You can help Easterseals raise a collective voice for people with disabilities to ensure they continue to get the services and supports they need. Donate today, sign our petition, or share your story about how Medicaid services have helped you or someone you know.
Veronica J. -- Tifton, GA
What Medicaid service do you or the person you know receive? My severely autistic son is in a group home because of Medicaid. Why do you get the service? He was a danger to us and to himself. How has the service made a difference? He is doing great now. There's been a significant decreases in his violent behaviors. What would happen if you no longer received the service? We could not afford his care. It is a safety risk to keep him at home. He would end up hospitalized which would be a heavier burden on the state Veronica J. Tifton, GA You can help Easterseals raise a collective voice for people with disabilities to ensure they continue to get the services and supports they need. Donate today, sign our petition, or share your story about how Medicaid services have helped you or someone you know.
Kimberly L. -- Cairo, GA GA-02
What Medicaid service do you or the person you know receive? Disability & Medicaid for my two sons on the Autism Spectrum, ADHD & as well as a Significant Learning Delay for my youngest son. Why do you get the service? I coul not afford the constant Psychological appoints, Therapy appointments & multiple medications for both my children. Easter Seals provides services for my youngest son as well that help our family tremendously. How has the service made a difference? My children are thriving & are cared for by their many doctors every month as well as their needed medications. We see our therapists every 2 weeks. Services my children absolutely need. What would happen if you no longer received the service? My children WILL suffer. By way of Special Needs Education, lack of opportunity for all their doctors' care & prescribed medications that help them to thrive & succeed in their own unique ways. It would truly devastate our family. Kimberly L. Cairo, GA You can help Easterseals raise a collective voice for people with disabilities to ensure they continue to get the services and supports they need. Donate today, sign our petition, or share your story about how Medicaid services have helped you or someone you know.
Kelly G.-- Buford, GA GA-07
What Medicaid service do you or the person you know receive? My son receives Deeming Waiver Medicaid. Why do you get the service? My son had Down Syndrome and global developmental delays. He was also born with a congenital heart defect and several other health issues. How has the service made a difference? My son has been able to receive multiple therapies from a very young age, including speech, occupational, feeding, and physical therapies. All of these have helped him achieve his developmental milestones much faster than if he had received no therapy. Medicaid also eased the financial burden of paying for open heart surgery and other diagnostic and treatment procedures our son had needed. What would happen if you no longer received the service? My son would definitely not receive the same amount of therapy. My private insurance does not cover the amount of therapy he receives. This would impact his ability to achieve developmental milestones. It would also be a great financial burden for our family to pay for his medical care without the help of Medicaid. Kelly G. Asbury Park, GA You can help Easterseals raise a collective voice for people with disabilities to ensure they continue to get the services and supports they need. Donate today, sign our petition, or share your story about how Medicaid services have helped you or someone you know.
BACK TO TOP Hawaii Featured storyNalu -- Easter Seals Hawaii HI-02
NaluIn February 2015, Nalu was found to have a mass of tumors in his lungs and diagnosed with stage 4 testicular cancer. Doctors initially suggested he might only have months left to live, but after 4 rounds of chemotherapy in mid-2015 and surgery, all signs of cancer appear to have been completely removed. Since then Nalu has been thriving, thanks in part to Medicaid-funded adult day health (ADH) and personal assistance and habilitation (PAB) services provided through Easterseals in Hilo, Hawaii. In early 2016, Nalu received training through the Easterseals employment services program and landed a job at Pizza Hut where he has been working since March 31, 2016. Nalu's access to critical Medicaid community-based services allowed him to hope, not only through receiving the medical attention he needed, but by having access to friends, training and support through the services of Easterseals. You can help Easterseals raise a collective voice for people with disabilities to ensure they continue to get the services and supports they need. Donate today, sign our petition, or share your story about how Medicaid services have helped you or someone you know.
Jamie P. -- Mililani, HI HI-01
What Medicaid service do you or the person you know receive? My son, Bryant has been with Easter Seals since 2007 until most recently under the Medicaid waiver program. With the help of an Easter Seals program, he was able to find part time employment at a local bowling alley 5 days a week, 3 hours a day. This has enabled our son to gain independence and self worth. We are eternally grateful to Easter Seals and their employees who have treated Bryant with utmost compassion and love. Why do you get the service? Both parents work full time and we needed this program to assist in the care and well being of our son after high school. How has the service made a difference? It provided a safe, well constructed program for my son to be a vital individual in our community. Their patience and guidance enabled him to get a job in his community. What parent wouldn't be proud? We couldn't have done it by ourselves. Programs like this are vital for humanity!! What would happen if you no longer received the service? It will present a huge burden on us financially and emotionally. Programs like this exists for the well being of both the individual and the family. We receive respite help also through the department of disabilities ( State of Hawaii). Without respite, our life with a disabled individual can get rather stressful. He needs constant care, and we sometimes need a break. Jamie P. Mililani, HI You can help Easterseals raise a collective voice for people with disabilities to ensure they continue to get the services and supports they need. Donate today, sign our petition, or share your story about how Medicaid services have helped you or someone you know.
BACK TO TOP Idaho Featured storyVictor -- Easter Seals-Goodwill Northern Rocky Mountain ID-02
VictorWhen 62-year-old Victor first entered Easterseals-Goodwill's behavioral health services in Idaho, he lived in a homeless shelter and faced numerous physical and mental health issues, making him seem 20 years older than he really was. Victor needed a knee replacement, but—because he had no access to medical care other than the ER—he resorted to using a cane as a temporary, inadequate fix. Victor also suffers from cognitive challenges, making seemingly simple tasks like arranging transportation or completing forms extremely difficult. Victor began receiving Medicaid-funded services provided by Easterseals-Goodwill once he became eligible for Social Security (SSDI). Medicaid services have helped Victor transition from the homeless shelter into an assisted living facility, providing more safety and stability. Through Medicaid, Victor is receiving the medication he needs to prevent a mental health crisis or substance abuse relapse and is meeting with a surgeon about knee replacement surgery. Victor's mental and physical condition has stabilized. But if Medicaid services are cut, Victor would lose all the ground that he's gained and go back to living on the street, crippled for the rest of his life. You can help Easterseals raise a collective voice for people with disabilities to ensure they continue to get the services and supports they need. Donate today, sign our petition, or share your story about how Medicaid services have helped you or someone you know.
Jodi R. -- Coeur D Alene, ID ID-01
What Medicaid service do you or the person you know receive? My daughter is severely disabled and is 18 years old. My husband and I both work outside the home in order to make ends meet. My daughter currently qualifies for in home services for a caregiver through Medicaid to ensure her safety and care so that we can work. If this program was cut, one of us would be forced to quit our job, and we would be forced to live on public assistance. Why do you get the service? Our daughter has Phelan-McDermid Syndrome, Autism, and many other conditions. She cannot care for herself. How has the service made a difference? We could not work outside the home and provide for our family without this service, and without working we would be on public assistance: money, food stamps, and health insurance for our entire family. What would happen if you no longer received the service? See above. Jodi R. Coeur D Alene, ID You can help Easterseals raise a collective voice for people with disabilities to ensure they continue to get the services and supports they need. Donate today, sign our petition, or share your story about how Medicaid services have helped you or someone you know.
BACK TO TOP Illinois Featured storyRyan & Justin -- Easter Seals DuPage & Fox Valley
Ryan & JustinRyan and Justin have Myotonic Muscular Dystrophy and Autism. The brothers' challenging behaviors made them a danger to themselves, each other, and their family. Six years ago, their family knew they had reached their limit and needed help. Luckily, Ryan and Justin began receiving Medicaid-funded home-based services, including occupational and behavior therapies. Today, both boys are living at home and making excellent progress as a result of these Medicaid services. Their mother Theresa explains: "I hate to imagine where our family might have ended up had we not received the services when we did. Home-based services have changed our family in ways only we can truly appreciate. But one thing is very clear; this service is vital for us. Not to mention the expense is far less than having to provide life-long care outside the home." You can help Easterseals raise a collective voice for people with disabilities to ensure they continue to get the services and supports they need. Donate today, sign our petition, or share your story about how Medicaid services have helped you or someone you know.
Gina N. -- Willow Springs, IL
What Medicaid service do you or the person you know receive? All Kids Why do you get the service? My husband is a small business owner that did not bring in enough money to afford family insurance. How has the service made a difference? My daughter was a preemie and born with a brain malformation. We were told she would never walk or talk. Thanks to All Kids and the DuPage Easter Seals, she was able to receive age 0-3 early intervention. She learned to walk, talk and more! At the age of five, she had life saving brain surgery as a result of her brain malformation. Now at age 14, she loves helping others and is earning straight As in honors classes at the public high school! What would happen if you no longer received the service? Gina N. Willow Springs, IL You can help Easterseals raise a collective voice for people with disabilities to ensure they continue to get the services and supports they need. Donate today, sign our petition, or share your story about how Medicaid services have helped you or someone you know.
Sheri K. -- Freeburg, IL IL-12
What Medicaid service do you or the person you know receive? My son receives medicaid which helps him with his drug prescriptions and his doctor copays. It also helps him with the Home Based Waiver Program which has been life changing for he and our family. Why do you get the service? My son gets this service because he has ASD (Autism Spectrum Disorder) and ADHD. How has the service made a difference? By receiving this service, our son is able to live independently in the community with PSW's (Personal Support Worker's) checking in on him every other day to help him with cooking his meals, paying his bills, and making sure he is making good choices to continue to live independently. What would happen if you no longer received the service? Our son would have to move to a group home or come back home to live. We have worked SO hard to get him as independent as possible. HE has worked SO hard to get this far. While other teenagers were "hanging out" with their friends, our son was attending social skills groups and daily independent living classes just to learn. We've had to break skills down for him to a level he could understand to teach him how to care for himself. While most homes have home decor on the walls, our home was filled with visual schedules and supports to help our son. It would be life changing in a very negative way for our son and our family if Medicaid was taken away. Life is hard. Life is even harder when you have a child with a disability. Life is even harder when services are taken away for that child and family. Please do not let them take Medicaid away. Sheri K. Freeburg, IL You can help Easterseals raise a collective voice for people with disabilities to ensure they continue to get the services and supports they need. Donate today, sign our petition, or share your story about how Medicaid services have helped you or someone you know.
Thom P. -- Normal, IL IL-18
What Medicaid service do you or the person you know receive? My step-son has high-functioning Autism. He receives extensive services that rely on Medicaid money. Why do you get the service? Our son has Autism and requires intensive therapeutic and behavioral intervention at home and at school. In addition, he regularly needs hospitalization for stabilization. How has the service made a difference? It has covered the services that we have needed up to recently. Unfortunately at this time, our son needs a psychiatric residential placement based upon his need to receive the intense therapeutic services to allow him to be a member of our household and the community. When we needed the services the most, Medicaid let us down and denied the financial resources required. In essence, medicaid deprived our son of his civil liberties. We are not willing to accept this and will continue to pursue services. What would happen if you no longer received the service? Our family would no longer remain intact. Our son would most likely end up incarcerated. Thom P. Normal, IL You can help Easterseals raise a collective voice for people with disabilities to ensure they continue to get the services and supports they need. Donate today, sign our petition, or share your story about how Medicaid services have helped you or someone you know.
Chalonda C. -- Zion, IL IL-10
What Medicaid service do you or the person you know receive? my son has Medicaid and needs it because he is autistic and must have therapies, dental and medical appointments with specialists, not just regular doctors. Why do you get the service? Because of his special needs. How has the service made a difference? It has made a difference because I have low income and cannot afford other insurance. What would happen if you no longer received the service? I would not be able to take my son to the doctor or therapists, which he desperately needs. Chalonda C. Zion, IL You can help Easterseals raise a collective voice for people with disabilities to ensure they continue to get the services and supports they need. Donate today, sign our petition, or share your story about how Medicaid services have helped you or someone you know.
Christina S. -- Chicago, IL IL-01
What Medicaid service do you or the person you know receive? Medicaid for my kid who has Autism Why do you get the service? Because she needs therapies and medication How has the service made a difference? It has help her to become the kid she are What would happen if you no longer received the service? I really don't kniw Christina S. Chicago, IL You can help Easterseals raise a collective voice for people with disabilities to ensure they continue to get the services and supports they need. Donate today, sign our petition, or share your story about how Medicaid services have helped you or someone you know.
Esther D. -- Lake In The Hills, IL IL-14
What Medicaid service do you or the person you know receive? My 13 yr old son has multiple needs (neurological) where he requires all therapies OT,SP, and OT. This has introduced me to a different world where I see the extreme need for services to continue for the disabled, without these services the disabled would suffer extreme injustices. Why do you get the service? At this time we don't receive it but we are praying for service at some point in his life as he has extreme needs. How has the service made a difference? Services allows the disabled a chance at progressing in life,, meeting milestones otherwise impossible. Families become informed to the needs as well. Huge!!! What would happen if you no longer received the service? Our son would suffer in his growth for a chance to an independent life. Esther D. Lake In The Hills, IL You can help Easterseals raise a collective voice for people with disabilities to ensure they continue to get the services and supports they need. Donate today, sign our petition, or share your story about how Medicaid services have helped you or someone you know.
Frederick B. -- Chicago, IL
What Medicaid service do you or the person you know receive? I'm a 2 times, Heart Attack Survivor!! If I didn't have Medicaid along with Medicare!! I will be paying 100.00 + for each of my Heart Medications!! Why do you get the service? How has the service made a difference? What would happen if you no longer received the service? Frederick B. Chicago, IL You can help Easterseals raise a collective voice for people with disabilities to ensure they continue to get the services and supports they need. Donate today, sign our petition, or share your story about how Medicaid services have helped you or someone you know.
Kristyn G. -- Plainfield, IL
What Medicaid service do you or the person you know receive? Health insurance and pull-ups for my daughter.... Why do you get the service? My daughter has autism How has the service made a difference? Help Alot on cost of buying diapers What would happen if you no longer received the service? I would buy them myself ....it just really helps Kristyn G. Plainfield, IL You can help Easterseals raise a collective voice for people with disabilities to ensure they continue to get the services and supports they need. Donate today, sign our petition, or share your story about how Medicaid services have helped you or someone you know.
Mr. Z. -- Chicago, IL IL-05
What Medicaid service do you or the person you know receive? Grandson born at 24 1/2 weeks! Severe Cerebral Palsy! Therapy through Easter Seals since he was 4 months old!! Easter Seals, and their therapists have done wonders for his development! Please don't take away from life's most vulnerable, and helpless!! Why do you get the service? Occupational, Physical, and Speech therapies!! Helps with his spastic movements, core strength head control etc. How has the service made a difference? Without them his joints would totally be athrophy (stiff & brittle) He is confined to a wheelchair so physical therapy is imparative to his joints!! What would happen if you no longer received the service? All that he has accomplished through his tharapies these past 8 years will be for nothing!! He will totally regress! This can not happen!! ð¡ Mr. Z. Chicago, IL You can help Easterseals raise a collective voice for people with disabilities to ensure they continue to get the services and supports they need. Donate today, sign our petition, or share your story about how Medicaid services have helped you or someone you know.
Roberta B. -- Peoria, IL IL-17
What Medicaid service do you or the person you know receive? My grandson was born autiustic Why do you get the service? Easter services but it's more then an hr away but no services closer How has the service made a difference? It's helped tremendously What would happen if you no longer received the service? There would've no help Roberta B. Peoria, IL
What Medicaid service do you or the person you know receive? My son when he was little they helped him physically n they helped him get a wheelchair as he was born with spinabifidan hydrocephalus they took great care of my son Why do you get the service? He doesn't any more he's 31n helped him to see all his physicals at no charge How has the service made a difference? He's grown up to be a healthyyoungman You can help Easterseals raise a collective voice for people with disabilities to ensure they continue to get the services and supports they need. Donate today, sign our petition, or share your story about how Medicaid services have helped you or someone you know.
Kathie K. -- Cook County, IL IL-05
What Medicaid service do you or the person you know receive? Medical coverage and coverage of prescriptions that are vital for day-to-day functioning Why do you get the service? My son can only work part-time due to disabilities. How has the service made a difference? The amount of money I have spent out of my own pocket since my was 2 years old has been a constant strain. I have worked 12 plus hours just to cover medical expenses. He is now in his 20s and deserves Medicaid and all it has to offer. He continues to work because he wants to. What would happen if you no longer received the service? How can I continue to pay for everything at this point in my life? I have had two surgeries in seven years. I cannot continue to work at the pace I have for over 20 years. My son and all others on Autism Spectrum deserve a quality life, which includes medical coverage, since they cannot. They fall into the category of the "poor." It is undeniable. Kathie K. Cook County, IL You can help Easterseals raise a collective voice for people with disabilities to ensure they continue to get the services and supports they need. Donate today, sign our petition, or share your story about how Medicaid services have helped you or someone you know.
Lynn D. -- Roscoe,IL IL-16
What Medicaid service do you or the person you know receive? My son, Jordan, is 24 years old and has multiple intellectual and physical disabilities as well as significant medical needs. He receives Medicaid for his health care and also receives funding through the Home based Waiver which is funded under Medicaid. Why do you get the service? Jordan is a 24 year old who has multiple intellectual and physical disabilities and significant medical needs How has the service made a difference? The funding that Jordan receives for his "Waiver" aren't enough due to his multiple needs so we have to supplement a lot financially so that he has a meaningful life in his community. Jordan works at a sheltered workshop (which is funded through Medicaid) and is gaining skills needed so that he can get a job in the community to support himself. Jordan's Medicaid has been a supplement to our private health insurance coverage. We are so very grateful for the funding he receives through Medicaid! What would happen if you no longer received the service? Jordan currently works at a sheltered workshop which is funded through Medicaid (Waiver Program) so he wouldn't be working or getting the support to gain work skills and experience or the other supports he receives to become as independent as possible. I would have to quit working to stay at home to care for Jordan and help him look for work. His medical costs would be financially devastating! Lynn D. Roscoe,IL You can help Easterseals raise a collective voice for people with disabilities to ensure they continue to get the services and supports they need. Donate today, sign our petition, or share your story about how Medicaid services have helped you or someone you know.
BACK TO TOP Indiana Featured storyKristen -- Easterseals Arc of Northeast Indiana IN-03
KristenKristen has been receiving a range of support services from Easterseals Arc of Northeast Indiana since 1999. These services include 24-hour support in the home she shares with two roommates. But Kristen's active life goes far beyond her home. With the help of her job coaches and the confidence gained through Easterseals Arc's Employment Readiness Academy, Kristen landed a job at a local restaurant. She now thrives at that job while still participating in other Medicaid waiver-funded community-based programs. Although she's very motivated to work, Kristen enjoys her free time as well, hanging out with friends or having adventures with the help of the recreation and community integration staff. Having Medicaid-funded support at home, at work, and at play enables Kristen to have a well-rounded life as an active citizen. You can help Easterseals raise a collective voice for people with disabilities to ensure they continue to get the services and supports they need. Donate today, sign our petition, or share your story about how Medicaid services have helped you or someone you know.
Julie N. -- Columbus, IN IN-06
What Medicaid service do you or the person you know receive? Just a few short years ago our family was in crisis. Our daughter has CP and developmental delay with severe intellectual disability. She does not function at all out of routine and has had many sever behavior problems. Without the Medicaid waiver program, we would not be able to care for her at home. This service is vital to our family. Why do you get the service? Our daughter has sever developmental delay with intellectual disability. She is incontinent and nonverbal and has serious behavioral issues when her routine is interrupted. How has the service made a difference? It has completely changed our lives. We are able to go places together, take breaks from the sleepless nights, have help at home, receive ABA services for our daughter. What would happen if you no longer received the service? I cannot even imagine. I don't think we would be able to keep her in the home. We would both no longer be able to work outside the home. Our 17 year old son would suffer academically and emotionally. My family is a Trump/Pence supporter and we feel confident that they will take care of this fragile group of children who are at great risk without the Medicaid Waiver service. Julie N. Columbus, IN You can help Easterseals raise a collective voice for people with disabilities to ensure they continue to get the services and supports they need. Donate today, sign our petition, or share your story about how Medicaid services have helped you or someone you know.
Patricia C. -- Indianapolis, IN IN-05
What Medicaid service do you or the person you know receive? 83 yr. old husband has severe Parkinson's Disease, cannot walk, can barely feed himself, is blind in one eye, is incontinent, cannot print or write, and can barely speak. Why do you get the service? I am 71 yr. old, have severe osteoarthritis, diabetes, fibromyalgia, HBP, Depression and just had my atrial valve replaced Jan. 2016, and had complications. I can no longer care for my husband. How has the service made a difference? I believe my husband gets the full care that he needs. I cannot lift him. What would happen if you no longer received the service? He needs full care and I cannot give it to him any longer. We do not have enough funds for private care. Medicaid takes his Social Security and Pension. We are NOT "Takers." We both worked our entire adult lives; paid taxes; and put our children through college without loans. Patricia C. Indianapolis, IN You can help Easterseals raise a collective voice for people with disabilities to ensure they continue to get the services and supports they need. Donate today, sign our petition, or share your story about how Medicaid services have helped you or someone you know.
Katherine S. -- Indianapolis, IN
What Medicaid service do you or the person you know receive? Medicaid waiver support for my child with disabilities, to provide supplemental insurance, access to services and equipment, case management support Why do you get the service? Because my son has severe disabilities associated with a rare genetic syndrome, requiring 24 hour caregiving support, disability equipment, medical supplies How has the service made a difference? Yes - for us and for other families like this, it helps us afford the services, supplies and medical support our children need to make sure they have the best care possible. What would happen if you no longer received the service? Significant increases in out of pocket healthcare expenses, cost of therapy equipment Katherine S. Indianapolis, IN You can help Easterseals raise a collective voice for people with disabilities to ensure they continue to get the services and supports they need. Donate today, sign our petition, or share your story about how Medicaid services have helped you or someone you know.
BACK TO TOP Iowa Jenna B. -- Albia, IA IA-02
What Medicaid service do you or the person you know receive? Home based services and prescription drug coverage Why do you get the service? Cervical spinal cord injury How has the service made a difference? It not only allows me to live at home, but keeps me out of bankruptcy by covering my over $10,000 in prescription drug expenses per year What would happen if you no longer received the service? I couldn't afford to live at home or have access to the prescription drugs that allow me to live as full a life as possible. I would probably be living out my days in an institutional setting instead of getting a degree so I can go back to work and become self sufficient Jenna B. Albia, IA You can help Easterseals raise a collective voice for people with disabilities to ensure they continue to get the services and supports they need. Donate today, sign our petition, or share your story about how Medicaid services have helped you or someone you know.
BACK TO TOP Kentucky April B. -- Paducah, KY KY-01
What Medicaid service do you or the person you know receive? Insurance Why do you get the service? financial How has the service made a difference? It provides therapy services she needs. What would happen if you no longer received the service? Without Medicaid, we would not be able to afford the therapy my child receives. Without the therapy she needs now, she will not be able to be a functioning adult with a job, later. It is essential. April B. Paducah, KY You can help Easterseals raise a collective voice for people with disabilities to ensure they continue to get the services and supports they need. Donate today, sign our petition, or share your story about how Medicaid services have helped you or someone you know.
Timothy C. -- Buechel or Louisville, KY KY-03
What Medicaid service do you or the person you know receive? I receive Medicaid, KDAP, among other things & if it weren't those subsidies I would not be able to live. I have a life threatening disease that I have to take medications for + doctor visits that I would not be able to afford Why do you get the service? I am disabled How has the service made a difference? I have medical & ssi assistance which it makes it possible for me to have meds food and housing. What would happen if you no longer received the service? I would be homeless no food and eventually I would die. I have meds that are necessary for me to live . Timothy C. Buechel Or Louisville, KY You can help Easterseals raise a collective voice for people with disabilities to ensure they continue to get the services and supports they need. Donate today, sign our petition, or share your story about how Medicaid services have helped you or someone you know.
BACK TO TOP Louisiana Featured storyRain -- Easterseals Louisiana LA-06
RainThis is Rain. He is a happy, five-year-old on the Autism spectrum. His mother first noticed, at 18 months, that he wasn't reaching milestones, so she sought help. Rain depends on his Medicaid services for Personal Care (through Medicaid's Early and Periodic Screening, Diagnostic and Treatment) Applied Behavior Analysis (ABA) therapy, and even the Pull-ups he wears because he isn't yet potty-trained. Rain and his mother are thankful and dependent on these services, as well as the speech and occupational therapy he received in the past. It is important that Rain, and children like him, are able to receive these services to further their development, which will allow them to be functional citizens. You can help Easterseals raise a collective voice for people with disabilities to ensure they continue to get the services and supports they need. Donate today, sign our petition, or share your story about how Medicaid services have helped you or someone you know.
Diamond G. -- New Orleans, LA
What Medicaid service do you or the person you know receive? My daughter was born with a birth defect and thusfar has had 14 surgeries. Without Medicaid she would not have had her neccessary surgeries and medical care. I could not have afforded it all even if I were to sell everything I have. Now she has a quality of life thansk to Medicaid. Why do you get the service? Low income household with a child born with birth defect requiring many surgeries and years of therapy. How has the service made a difference? She now has quality of life after surgeries and therapies. What would happen if you no longer received the service? She no longer needs it, but without having it she would not have any quality of life. There are many I know that are still in a similiar situation and very much need it. In some cases they would die without surgeries and treatment. Diamond G. New Orleans, LA You can help Easterseals raise a collective voice for people with disabilities to ensure they continue to get the services and supports they need. Donate today, sign our petition, or share your story about how Medicaid services have helped you or someone you know.
Tory B. -- Belle Rose, LA
What Medicaid service do you or the person you know receive? Medical insurance coverage Why do you get the service? I have a daughter who is special needs/medically involved How has the service made a difference? Having Medicaid has literally kept my daughter alive and has been able to provide her with the extensive medical care needed. She has had over 80 surgeries and countless procedures....Simply to keep her alive. What would happen if you no longer received the service? Her life span would, without a doubt, have been shortened immensely Tory B. Belle Rose, LA You can help Easterseals raise a collective voice for people with disabilities to ensure they continue to get the services and supports they need. Donate today, sign our petition, or share your story about how Medicaid services have helped you or someone you know.
BACK TO TOP Maine Featured storyNicky -- Easterseals Maine ME-01
NickyNicky, age, 6, is one of those children and has received Medicaid-funded services since he was two-years-old. Through MaineCare, Nicky received early intervention, speech therapy, occupational therapy, and clinical social work services. His teachers and therapists worked closely with Nicky's mom and Easterseals provided support through Targeted Case Management. With some support, Nicky started school this past fall in a typical kindergarten classroom. To help with the transition, Easterseals staff worked with his new teacher, support team, and the after-school program to ensure that he was successful. Medicaid has made a tremendous impact on Nicky and his family and continues to do so. Easterseals staff still works with Nicky, his mom, and brothers through case management to support home-school and community resources. You can help Easterseals raise a collective voice for people with disabilities to ensure they continue to get the services and supports they need. Donate today, sign our petition, or share your story about how Medicaid services have helped you or someone you know.
Verna W. -- Lincoln County, ME ME-01
What Medicaid service do you or the person you know receive? I would not be able to afford my meds,appointments or PT with out it. Why do you get the service? I have Cerebral Palsy & a spinal injury How has the service made a difference? It has improved my life for the short term & the long term. What would happen if you no longer received the service? I would be sick and sad. Verna W. Lincoln County, ME You can help Easterseals raise a collective voice for people with disabilities to ensure they continue to get the services and supports they need. Donate today, sign our petition, or share your story about how Medicaid services have helped you or someone you know.
BACK TO TOP Maryland Featured storyMegan -- Easterseals Serving DC | MD | VA MD-06
MeganMegan is a young, vibrant 23-year old with Cerebral Palsy (CP). She uses a wheel chair for mobility and is nonverbal, using other ways to effectively communicate her everyday needs and wants. She is the youngest of five children. Her family is very loving and supportive of Megan. Her parents -- who both work to support the family and the extra expenses related to Megan's special needs -- began researching day-time supports and activities for Megan to replace her special needs education activities, which were ending. Fortunately, they found a perfect fit, thanks to Medicaid. Megan enrolled in Easterseals' adult day program where she receives individualized support and participates in daily activities -- paid for through Medicaid. Through its highly-trained staff, Easterseals can accommodate most of her needs, both medically and socially. Her beautiful smile brightens up the day for everyone who participates in the daily activities. These Medicaid-funded services have given Megan the daily support she requires and has allowed her parents to remain at work to support their family. You can help Easterseals raise a collective voice for people with disabilities to ensure they continue to get the services and supports they need. Donate today, sign our petition, or share your story about how Medicaid services have helped you or someone you know.
Featured storyBrinley -- Easterseals Delaware & Maryland’s Eastern Shore MD-01
BrinleySometimes life does not go according to plan, but sometimes it can turn out to be the greatest gift in the world. This was the case for Angela and Andy when they gave birth to their daughter, Brinley, and found out she had Down Syndrome. Angela and Andy knew it was important to get Brinley in to a children’s therapy program so she would not fall behind. After heart surgery at 10 weeks, Brinley’s parents found Easterseals Medicaid funded Children’s Therapy program in Salisbury, MD and it has made all the difference. Brinley is now able to sit up and is reaching for toys thanks to Physical Therapy, is transitioning well to solid foods with the help of Speech therapy and working on grasping smaller objects in Occupational Therapy. “While Brinley’s initial diagnosis was a huge shock, Brinley has brought nothing, but joy to our family. I would not change a thing,” Angela says. “She teaches us far more than we will ever teach her. I wouldn’t change anything about her. She adds so much to our family.” You can help Easterseals raise a collective voice for people with disabilities to ensure they continue to get the services and supports they need. Donate today, sign our petition, or share your story about how Medicaid services have helped you or someone you know.
Diane J. -- Montgomery Village, MD MD-06
What Medicaid service do you or the person you know receive? My son has multiple disabilities. His father did not want a "special needs" child and left when he was a year old. I could not afford the medical insurance. Medicaid stepped in and was his source for his medical needs. My son also has a Medicaid waiver. This has helped fund ROI in Germantown MD where he works. He loves working and has a sense of purpose and community. Why do you get the service? covered above How has the service made a difference? above What would happen if you no longer received the service? WELL- we are facing that problem. It is necessary for us to move to PA to help care for my elderly mother. We are now faced with the problem of no money for services because the services are funded through Medicaid. Medicaid is not transferable from state to state. Although my son has received services for the past 34years in Maryland he how has to go on a waiting list to receive services in Maryland. Medicaid is a valuable source of funding for all people with disabilities and their families. Diane J. Montgomery Village, MD You can help Easterseals raise a collective voice for people with disabilities to ensure they continue to get the services and supports they need. Donate today, sign our petition, or share your story about how Medicaid services have helped you or someone you know.
Sallie H. -- Germantown, MD MD-06
What Medicaid service do you or the person you know receive? My daughter has Williams Syndrome and on top of that she has Ulcerative Colitis. I could never afford treatment without her services. Why do you get the service? How has the service made a difference? What would happen if you no longer received the service? My daughters health would be put a risk. Sallie H. Germantown, MD You can help Easterseals raise a collective voice for people with disabilities to ensure they continue to get the services and supports they need. Donate today, sign our petition, or share your story about how Medicaid services have helped you or someone you know.
BACK TO TOP Massachusetts Carol G. -- Fitchburg, MA MA-03
What Medicaid service do you or the person you know receive? Abi waiver Why do you get the service? Severe brain injury How has the service made a difference? Huge difference my son has gained independence back What would happen if you no longer received the service? He would regress backwards and probably would not remain healthy Carol G. Fitchburg, MA You can help Easterseals raise a collective voice for people with disabilities to ensure they continue to get the services and supports they need. Donate today, sign our petition, or share your story about how Medicaid services have helped you or someone you know.
Elizabeth C. -- Roslindale, MA MA-08
What Medicaid service do you or the person you know receive? The most important Medicaid service that I receive is my personal care attendant HOME CARE.I also receive my medical care and durable medical equipment like my wheelchair thanks to Medicaid's help.My medical care is mostly done in my home, attending to colds and infections and pressure sores early â'" a highly sensible and usually more economical way to care for elders and people with disabilities. In addition, much more respectful and humane. Why do you get the service? I have been disabled due to multiple sclerosis for over 35 years. For about the last 25 years I have been quadriplegic. During that time I was able to continue to raise my daughter who is now31, a highly successful person economically and socially. I am active in my community and state government and feel productive rather than feeling like a burden. The money that might have gone to a nursing home goes instead to individuals or families like myself who hire and train their own workers. How has the service made a difference? I take an active part in my own care and well-being. This makes me stronger. I have dignity. I leave an active positive footprint on my community, having been on the state PCA Workforce Council for 7 years and on the board of my health practice over the last 10 years.. My family of origin does not have to worry about me. What would happen if you no longer received the service? I believe I would be in a nursing home, waiting and waiting for help with the most basic needs â'" blowing my nose, or getting to the bathroom on time, getting situated at my computer so I am not falling over, stretching out a painful leg cramp. I greatly fear being alone and ignored while I call for help. Like those ads for the abandoned dogs â'" except hey, we are people! It frightens me how radically different it could be from my life right now.. â'? Elizabeth C. Roslindale, MA You can help Easterseals raise a collective voice for people with disabilities to ensure they continue to get the services and supports they need. Donate today, sign our petition, or share your story about how Medicaid services have helped you or someone you know.
Walter Z. -- Ipswich, MA MA-06
What Medicaid service do you or the person you know receive? Daughter getsSSDI, MA Health Why do you get the service? She's deaf and blind with multiple other disabilities How has the service made a difference? Leading happpy productive life and living in a group home What would happen if you no longer received the service? Totally devastating and total disruption to her life Walter Z. Ipswich, MA You can help Easterseals raise a collective voice for people with disabilities to ensure they continue to get the services and supports they need. Donate today, sign our petition, or share your story about how Medicaid services have helped you or someone you know.
BACK TO TOP Michigan Featured storyMelvin -- Easterseals Michigan MI-14
MelvinEver since he was a young boy, Melvin could not understand why he felt the way he did. He would deal with bouts of tremendous anger followed by intense depression. As Melvin got older and his disorder remained untreated, he found himself destroying relationships and isolating himself from society. Thanks to Medicaid he was able to get treatment at Easterseals. Now, the Pontiac, Michigan resident has his own apartment, a job with Easterseals, received numerous awards for his volunteer work in the community, and was invited to speak on Capitol Hill, TWICE! You can help Easterseals raise a collective voice for people with disabilities to ensure they continue to get the services and supports they need. Donate today, sign our petition, or share your story about how Medicaid services have helped you or someone you know.
Pamela B. -- South Lyon, MI MI-11
What Medicaid service do you or the person you know receive? My oldest son is disabled due to an above knee amputation as a result of childhood bone cancer and continues to suffer emotionally. He uses medical and prosthetic Medicaid services. My youngest son is profoundly hearing impaired and uses Medicaid for his hearing devices. Why do you get the service? To help with their expensive medical needs. How has the service made a difference? It has allowed my sons to feel more independent and has given me more peace of mind to know that Medicaid is available to help with their special needs. What would happen if you no longer received the service? They would be unable to afford their medical prosthetics and hearing devices as they cost tens of thousands of dollars. Pamela B. South Lyon, MI You can help Easterseals raise a collective voice for people with disabilities to ensure they continue to get the services and supports they need. Donate today, sign our petition, or share your story about how Medicaid services have helped you or someone you know.
Lee A. -- Oscoda, MI MI-05
What Medicaid service do you or the person you know receive? Disability Why do you get the service? My son has a mental health disease which makes it impossible for him to work. Without Medicaid he would die on the street after I am gone. Medicaid has literally saved his life. How has the service made a difference? I don't have to worry about my son after I am dead. What would happen if you no longer received the service? see above Lee A. Oscoda, MI You can help Easterseals raise a collective voice for people with disabilities to ensure they continue to get the services and supports they need. Donate today, sign our petition, or share your story about how Medicaid services have helped you or someone you know.
Nathan H. -- W Bloomfield, MI MI-14
What Medicaid service do you or the person you know receive? I have MS & currently in a clinical trial : phase 3 Why do you get the service? How has the service made a difference? Not yet, but hopefully will. What would happen if you no longer received the service? Be without money, etc. Nathan H. W Bloomfield, MI You can help Easterseals raise a collective voice for people with disabilities to ensure they continue to get the services and supports they need. Donate today, sign our petition, or share your story about how Medicaid services have helped you or someone you know.
Sarah R. -- Warren, MI MI-09
What Medicaid service do you or the person you know receive? Mental Health Services for me that includes a weekly counseling session and monthly psychiatric care for my daily medication through Easter Seals and through Macomb County Mental Health Authority. Why do you get the service? How has the service made a difference? Better management of Depression and anxiety symptoms. What would happen if you no longer received the service? I would have a sudden intense severity of symptoms that would lead me to be more depressed, more anxious, more emotionally unstable with uncontrollable crying spells and a loss of hope etc. leading to a hospital visit then psych ward inpatient that can be avoided by the government continuing Mental Health Services so my life and others like me would feel their lives would be meaningful. All because an insensitive cruel person in the government has no knowledge that many like me need our Mental Health Services to continue. Sarah R. Warren, MI You can help Easterseals raise a collective voice for people with disabilities to ensure they continue to get the services and supports they need. Donate today, sign our petition, or share your story about how Medicaid services have helped you or someone you know.
Tamika B. – Detroit, MI MI-14
What Medicaid service do you or the person you know receive? I know this is not the correct forum for this, but I am disabled, and I have Medicare which does not cover everything. I have been denied Medicaid due to my income which barely covers my household bills, food or medicine. I have no dental or eye care. I was told I was on a Medicaid spendown for $749 each month. I really need some help. Why do you get the service? How has the service made a difference? What would happen if you no longer received the service? Tamika B. Detroit, MI You can help Easterseals raise a collective voice for people with disabilities to ensure they continue to get the services and supports they need. Donate today, sign our petition, or share your story about how Medicaid services have helped you or someone you know.
BACK TO TOP Mississippi Barbara H. -- Picayune, MS MS-04
What Medicaid service do you or the person you know receive? Community based Why do you get the service? C5 quad How has the service made a difference? He is alive an has had far better quality of life than if he were in an instituion as well as at a fraction of the cost. Yes we strugle but it has been worth it. What would happen if you no longer received the service? He would have to go into a nursing home where i know he not thrive because i have worked in state an private home they are not up to standard an though there are good people there are plenty of bad an under trained people an it takes heart to do this job I have many times told people go to mc donalds pays more an its less work. Barbara H. Picayune, MS You can help Easterseals raise a collective voice for people with disabilities to ensure they continue to get the services and supports they need. Donate today, sign our petition, or share your story about how Medicaid services have helped you or someone you know.
BACK TO TOP Missouri Featured storyKaren -- Easterseals Midwest MO-07
KarenUp until just a few years ago, Karen shared a small nursing home room with only a curtain for privacy. Karen rarely left her room, and was overweight, experiencing seizures, and on oxygen 24/7. Things began to change when she moved into an Easterseals Midwest community living home. With the support of Easterseals staff, Karen began making healthier food choices, and getting daily exercise. So far, Karen has lost over 80 pounds and no longer suffers from seizures or is dependent on an oxygen machine. She even walked a mile in Easterseals' annual Walk, Run 'n Roll fundraiser this summer—something she could never have imagined doing two years ago. All of Karen's healthcare needs are covered through the Medicaid Waiver program. With this assistance, Karen can lead an independent, empowered life, and make huge changes in her health and wellbeing. In the words of Karen's caregivers, she has "blossomed emotionally and strengthened physically" during her time with Easterseals Midwest, and is only growing more confident each and every day. You can help Easterseals raise a collective voice for people with disabilities to ensure they continue to get the services and supports they need. Donate today, sign our petition, or share your story about how Medicaid services have helped you or someone you know.
Diane A. -- Wright City, MO MO-03
What Medicaid service do you or the person you know receive? Our son is able to live independently in a group home (with two other roommates) in a residential subdivision with one-on-one care. Since this transition almost two years ago, he had thrived! He also received health insurance through Medicaid. Why do you get the service? Our son has multiple diagnoses and is unable to live on his own. How has the service made a difference? Our son has grown into a mature, independent young man. He is now eating better, and he is using sign language more consistently to communicate. These are just two examples of his progress. What would happen if you no longer received the service? I simply do not know. It's scary to even consider. Diane A. Wright City, MO You can help Easterseals raise a collective voice for people with disabilities to ensure they continue to get the services and supports they need. Donate today, sign our petition, or share your story about how Medicaid services have helped you or someone you know.
Carol L. -- Chesterfield, MO MO-02
What Medicaid service do you or the person you know receive? My 23 y.o. son with autism receives Medicaid waiver funding to attend Easter Seals Adult Day program. Why do you get the service? He gets these services because he cannot qualify for a competitive job How has the service made a difference? He has a place to go every day from 9-3 with a great staff. They take him out to volunteer and to do leisure activities. What would happen if you no longer received the service? If he did not attend the day program, he would be sitting at home with his mother or a series of caregivers while his mother works and takes care of the household. Carol L. Chesterfield, MO You can help Easterseals raise a collective voice for people with disabilities to ensure they continue to get the services and supports they need. Donate today, sign our petition, or share your story about how Medicaid services have helped you or someone you know.
Ada D. -- St. Louis, MO MO-01
What Medicaid service do you or the person you know receive? It's very important to get service because all the equipment needed just to help in every day life, for example to eat, get out of bed, shower to sit or stand and the list can go on and on. Why do you get the service? Individuals with disability need special support from Medicaid , family and staff members Health care providers and so on. How has the service made a difference? Service make a great difference most families can not afford to but the equipment they need. What would happen if you no longer received the service? Support of the individual could go liking of vital service they could even pass away. Ada D. St. Louis, MO You can help Easterseals raise a collective voice for people with disabilities to ensure they continue to get the services and supports they need. Donate today, sign our petition, or share your story about how Medicaid services have helped you or someone you know.
Jodi L. -- Bolivar, MO MO-07
What Medicaid service do you or the person you know receive? Not only is my husband disabled with CHF but the individuals that I work for all recieve Medicaid or Medicare. How has the service made a difference? My husband receiving Medicade has prevented me from being a widow. Thirteen years ago my husband went to the hospital because he didn't feel right. The doctors evaluated him and told him that he was in A-fib and that he had CHF, they told him that he wouldn't live to make it out of the hospital. After talking to social services and their help my husband got signed up on Medicade and was able to receive the appropriate care and medications that he needed. He has been dropped by Medicade in the past and was unable to receive his medications. Not taking his medications for a week put him back into the hospital for 23 days at one point and we didn't think that he was going to make it out of the hospital. What would happen if you no longer received the service? If Medicare wasn't available, I couldn't imagine what life would be for people. There is no way possible that my husband could get the care and medicines that he needs. I would honestly be a widow if it wasn't for Medicare. Jodi L. Bolivar, MO You can help Easterseals raise a collective voice for people with disabilities to ensure they continue to get the services and supports they need. Donate today, sign our petition, or share your story about how Medicaid services have helped you or someone you know.
Sherry W. -- Springfield, MO MO-07
What Medicaid service do you or the person you know receive? All of our consumers receive Medicaid Health care coverage Why do you get the service? They all have special needs How has the service made a difference? One consumer was able to have cornea transplants. At the age of 22, she was legally blind. To help her see was an amazing thing. She is ready to take some community classes and strives to hold a job to earn her own money. What would happen if you no longer received the service? She would still be dependent on others around her to help her with the most basic tasks...eating, walking, interacting with others in the community. Sherry W. Springfield, MO You can help Easterseals raise a collective voice for people with disabilities to ensure they continue to get the services and supports they need. Donate today, sign our petition, or share your story about how Medicaid services have helped you or someone you know.
Savannah S. -- California, MO MO-04
What Medicaid service do you or the person you know receive? I am a support coordinator in Missouri. We manage a caseload of 65+ individuals living with developmental disabilities within Moniteau County. Medicaid has funded supports and services that not only protect the health and safety of my clients, but also promotes a greater quality of life by offering them the supports that they need to be able to live a more independent lifestyle. For many, an independent lifestyle would not be possible without Medicaid services. Why do you get the service? To promote health, safety and over all quality of life. How has the service made a difference? Medicaid services have given many of my clients the opportunity to seek employment, access transportation, increase daily living and socialization skills, seek adequate medical treatment as well as, provide the supports that they require to live in the least restrictive environments, thus, promoting independent lifestyles and community inclusion. Medicaid services have also helped to reduce and eliminate unwanted behaviors and provided these children with the opportunity to establish peer relationships; therefore, improving their quality of life. Medicaid services allow these individuals to be active, functioning members of society. What would happen if you no longer received the service? Without Medicaid services, my clients would not have access to adequate medical treatment, adaptive equipment supports, day habilitation and residential programs, transportation services, vocational/employment supports and community living. Many would be forced to live in restrictive environments with limited access to their communities, if any access at all. They would not be able to seek employment, as they would not have the necessary supports in place to allow for this. They would not have services in place to promote independent daily living and socialization skills and for many their skills would drastically regress. Without Medicaid services in place, their opportunity to live independent and productive lives is taken away. Medicaid has played a significant role in the monumental changes in society's perception of individuals living with developmental disabilities, as it has given them hope for a brighter future and offered them the opportunity to live the lives that they deserve as active members of our communities. Savannah S. California, MO You can help Easterseals raise a collective voice for people with disabilities to ensure they continue to get the services and supports they need. Donate today, sign our petition, or share your story about how Medicaid services have helped you or someone you know.
Milton G. -- Kansas City, MO MO-05
What Medicaid service do you or the person you know receive? group home services Why do you get the service? disabled family person needing much care. How has the service made a difference? much improved skills that could not be achieved with family What would happen if you no longer received the service? Family could not care for him and give the attention needed so he would become more disabled possibly die Milton G. Kansas City, MO You can help Easterseals raise a collective voice for people with disabilities to ensure they continue to get the services and supports they need. Donate today, sign our petition, or share your story about how Medicaid services have helped you or someone you know.
Dawn Z. -- Columbia, MO MO-04
What Medicaid service do you or the person you know receive? I have home health twice a day because I don't need 24/7 care!!!! I'm very independent women that has a house!!!!!!!!! Why do you get the service? I have CP. How has the service made a difference? To stay independent and control my own life! What would happen if you no longer received the service? A goup home or a nursing home! Which would cost the state 2 or 3 time more. Dawn Z. Columbia, MO You can help Easterseals raise a collective voice for people with disabilities to ensure they continue to get the services and supports they need. Donate today, sign our petition, or share your story about how Medicaid services have helped you or someone you know.
Jawad R. -- Kansas City, MO MO-05
What Medicaid service do you or the person you know receive? MO Health Net Why do you get the service? Because I am Disabled and Special Needs How has the service made a difference? Because it helps with my Medical Expenses What would happen if you no longer received the service? I would have to pay for my Medical Expenses and Services Jawad W. Kansas City, MO You can help Easterseals raise a collective voice for people with disabilities to ensure they continue to get the services and supports they need. Donate today, sign our petition, or share your story about how Medicaid services have helped you or someone you know.
BACK TO TOP Montana Featured storyMerenda -- Easter Seals-Goodwill Northern Rocky Mountain
MerendaMerenda is 24 years old and lives with intellectual disabilities, depression, PTSD and several physical health challenges. Merenda has no family support and is her own guardian, living alone in an apartment. Merenda has an extremely difficult time with boundaries and often gravitates to unhealthy and unsafe people, risking physical danger. She is easily coerced and has been taken advantage of and threatened by strangers, including sex offenders and other violent offenders. Her safety has been compromised by weapons, drugs and unprotected sex and she is facing eviction for lease violations as a result of these activities. Fortunately, Merenda was connected to Easterseals for critical Supported Living services funded through Montana's 0208 Medicaid Waiver Program. Easterseals specialists work with Merenda 1.5 hours each day (31-45 hours per month) to address these life-threatening issues, to learn cooking, housekeeping, laundry, personal hygiene and money management skills, and to meet her needs for transportation, shopping and medical appointments. Without Medicaid, Merenda would most likely be homeless and at even greater risk of abuse, exploitation (financial and sexual), starvation, unsupported medication, self-harm and human trafficking, a growing problem in Montana. You can help Easterseals raise a collective voice for people with disabilities to ensure they continue to get the services and supports they need. Donate today, sign our petition, or share your story about how Medicaid services have helped you or someone you know.
BACK TO TOP Nebraska Kathy E. -- Lincoln, NE NE-01
What Medicaid service do you or the person you know receive? AD waiver Why do you get the service? My daughter Addison is disabled and born with a life threatening genetic disorder called Ponto Cerebellar Hypoplacia Type 2 (PCH2). How has the service made a difference? Helps cover medications and respiratory equipment needed not covered by my primary insurance. She has to have home health services because of her disability. She cannot attend before or after school programs or regular daycare due to her special needs and I have to work. What would happen if you no longer received the service? Losing service would turn our world upside down. I wouldn't be able to pay for home health care services out of pocket or her many meds or monthly respiratory equipment needed that my insurance doesn't cover. Losing child care services would also cost me my job and worst of all, my daughter would lose her life. I have been so thankful for the services provided and losing them would be devastating to us many other families. Kathy E. Lincoln, NE You can help Easterseals raise a collective voice for people with disabilities to ensure they continue to get the services and supports they need. Donate today, sign our petition, or share your story about how Medicaid services have helped you or someone you know.
BACK TO TOP Nevada Diana S. -- Las Vegas, NV NV-01
What Medicaid service do you or the person you know receive? Health Why do you get the service? 2 disabled children, both go to Easter seals How has the service made a difference? Without this help I would not be able to keep my children at home and I would not be able to afford their medical care or medications. What would happen if you no longer received the service? If I could not afford my children's medications they would die. Period. Diana S. Las Vegas, NV You can help Easterseals raise a collective voice for people with disabilities to ensure they continue to get the services and supports they need. Donate today, sign our petition, or share your story about how Medicaid services have helped you or someone you know.
BACK TO TOP New Hampshire Featured storyChris -- Easterseals New Hampshire NH-01
ChrisChris came to Easterseals 11 years ago for help managing stress, anxiety and balancing social expectations. Since that time, Chris has lived in several Easterseals supported programs, each one offering him a more independent lifestyle and helping him to develop new skills such as cooking and bill paying that he uses every day as an adult. Today, because of his hard work and access to Medicaid-funded services that he received through Easterseals, Chris is now employed, lives in his own apartment with an Easterseals staff member, volunteers in the community, and is very proud to have earned his driver's license. You can help Easterseals raise a collective voice for people with disabilities to ensure they continue to get the services and supports they need. Donate today, sign our petition, or share your story about how Medicaid services have helped you or someone you know.
Michelle A. -- Merrimack, NH NH-01
What Medicaid service do you or the person you know receive? CDS Consumer Directed Services Why do you get the service? Adult child with a developmental/intellectual disability How has the service made a difference? Yes What would happen if you no longer received the service? I would no longer to work and my son would not be able to thrive and be productive in our community. Michelle A. Merrimack, NH You can help Easterseals raise a collective voice for people with disabilities to ensure they continue to get the services and supports they need. Donate today, sign our petition, or share your story about how Medicaid services have helped you or someone you know.
Alice I. -- Nashua, NH NH-02
What Medicaid service do you or the person you know receive? My 25 year old disabled daughter receives NH Medicaid in the form of: health insurance, medicaid sponsored transportation and Medicaid Waivered Services to help her live independently as possible. Why do you get the service? My daughter has intellectual disabilities, motor issues and mental health issues. How has the service made a difference? It has kept her alive and taken care of to the best of her ability. What would happen if you no longer received the service? She would be in a Nursing Home. Alice I. Nashua, NH You can help Easterseals raise a collective voice for people with disabilities to ensure they continue to get the services and supports they need. Donate today, sign our petition, or share your story about how Medicaid services have helped you or someone you know.
Cheril M. -- Enfield, NH NH-02
What Medicaid service do you or the person you know receive? My daughter has ADHD and when she was in school she had anxiety about her condition and medicade helped her to get counseling and behavior modification for almost 6 years. I don't think she would have made it through school otherwise. Why do you get the service? How has the service made a difference? What would happen if you no longer received the service? Cheril M. Enfield, NH You can help Easterseals raise a collective voice for people with disabilities to ensure they continue to get the services and supports they need. Donate today, sign our petition, or share your story about how Medicaid services have helped you or someone you know.
Jeanne V. -- Seabrook, NH NH-01
What Medicaid service do you or the person you know receive? My Mom has Alzheimer's and Medicaid has made it possible for her to be home instead of in a nursing home. This has added so much to her quality of life. She is able to be with her dog and especially her family. If she were placed in a nursing home, I know that her condition would decline a lot more rapidly. Why do you get the service? For my Mom's in home care and day program care. How has the service made a difference? It is hard enough knowing that your Mom's brain is slowly eating away and that her functioning is continuously declining. It would be more horrible knowing that we had no choice but to allow strangers take care of her in a nursing home. She is able to go to a day program a few days a week and have an in home care provider in their home a couple of days a week, so my Stepdad can continue to work to support them. She is surrounded by familiar faces and has a good routine down between the services and the care that our family gives her. What would happen if you no longer received the service? She would likely be placed in a nursing home, likely Rockingham, which reminds me of a jail cell. She was there for Rehab Services. As much as they try and do for the patients, their resources are limited and it would be a horrible place for my mom to have to live out her last days. This says nothing about the staff. They were wonderful to us. Jeanne V. Seabrook, NH You can help Easterseals raise a collective voice for people with disabilities to ensure they continue to get the services and supports they need. Donate today, sign our petition, or share your story about how Medicaid services have helped you or someone you know.
Jennifer S. -- Nashua, NH NH-02
What Medicaid service do you or the person you know receive? Special ed, otherwise, PT, speech, abandoned provider, assisting equipment and personal care supplies Why do you get the service? For a 20 yrs old with severe autism and speech aphasia. He's also very violent. How has the service made a difference? It has made sure we can adequately take care of my son the way every other American citizen should be taken care of. What would happen if you no longer received the service? He would have to be placed in the system as ND out of his home. Jennifer S. Nashua, NH You can help Easterseals raise a collective voice for people with disabilities to ensure they continue to get the services and supports they need. Donate today, sign our petition, or share your story about how Medicaid services have helped you or someone you know.
Trish M. -- Weare, NH NH-02
What Medicaid service do you or the person you know receive? My son receives multiple therapies, OT, PT, Speech and ABA. He also just received a speech device. Why do you get the service? My son has Down syndrome and in November was diagnosed with Autism, ADHD, sensory processing and OCD. He is mostly non verbal. He is a happy, sweet boy who loves to learn new things and is very proud when he is praise for his milestones, no matter how small, they are huge for our family. How has the service made a difference? We have seen major growth due to these services. He is learning more each week. We believe that having this help is the reason for his improvement. Every child deserves the opportunity to learn and have the help necessary to do so. I have learned more of what to do at home also. I feel that we would not be able to afford all the services he needs if not for Medicaid. We are very thankful. What would happen if you no longer received the service? I believe he would completely regress. It has been such an important piece, for me even. The hopes that these services can help him develop the important life skills and learning behaviors for every day life. I love learning all I can to also implement these behaviors and tools at home. Without them I do believe most parents would feel completely lost. Trish M. Weare, NH You can help Easterseals raise a collective voice for people with disabilities to ensure they continue to get the services and supports they need. Donate today, sign our petition, or share your story about how Medicaid services have helped you or someone you know.
BACK TO TOP New Jersey Cindy K. -- Hamilton, NJ NJ-04
What Medicaid service do you or the person you know receive? My sister who was born with a mental and physical disability benefits from Easter Seals. She receives free gym membership and companion benefits. This helps provide relief for my aging parents. Without Easter Seals, our lives would be much more difficult to manage her disabilities. Why do you get the service? Disabled family member How has the service made a difference? Enhances the mental and physical aspects of my sister's disabilities. What would happen if you no longer received the service? She would no longer continue to benefit from the regular excersize program. She also suffers from Diabetes. The regular exercise program helps maintain her weight which helps control the symptoms of Diabetes. The companion program helps develop her social and interactive skills. This helps her to better interact with others. This also helps my parents who are primary caregivers, receive relief from the everyday care in which they provide. Cindy K. Hamilton, NJ You can help Easterseals raise a collective voice for people with disabilities to ensure they continue to get the services and supports they need. Donate today, sign our petition, or share your story about how Medicaid services have helped you or someone you know.
Lynda C. -- Ocean Gate, NJ NJ-03
What Medicaid service do you or the person you know receive? My family receives Medicaid for our health needs. I am a diabetic and need Medicaid to help with the cost of my medications. I have two children on the autism spectrum and Medicaid helps with their much needed services. My husband recently lost his job, and since has suffered some difficulties with his health as well. Without this coverage I am not certain where our family would end up. It is very hard to cope with our struggles, but Medicaid has really helped us out in so many ways. Why do you get the service? We have no income right now and my children are disabled. How has the service made a difference? It has helped with medical bills and special services for my disabled children What would happen if you no longer received the service? If we did not have the service of Medicaid, we would lose everything. Lynda C. Ocean Gate, NJ You can help Easterseals raise a collective voice for people with disabilities to ensure they continue to get the services and supports they need. Donate today, sign our petition, or share your story about how Medicaid services have helped you or someone you know.
Kathy H. -- Sea Girt, NJ NJ-04
What Medicaid service do you or the person you know receive? Self directed services thru an annual budget for my son to attend a program for developmentally disabled young adults & clients to continue his ADLs & learn more office & clerical jobs for him to b able to improve on his personal tasks!!! Why do you get the service? See above- Michael John has Ataxuc Cerebral Palsy w developmentally disabled learning levels!! How has the service made a difference? He has been able to learn & improve his ADLs with continuity in all areas on a continuous basis outside the home daily !!! What would happen if you no longer received the service? Would become stale & stagnant with no learning tools, no self/confidence, no social networking, no friendships made !!! Kathy H. Sea Girt, NJ You can help Easterseals raise a collective voice for people with disabilities to ensure they continue to get the services and supports they need. Donate today, sign our petition, or share your story about how Medicaid services have helped you or someone you know.
Margie P. -- Budd Lake, NJ NJ-07
What Medicaid service do you or the person you know receive? I receive supplemental money for medications and for dental work, and for group home services and transportation when I do not have a car and am medically unable to use a car. Why do you get the service? I have ptsd and bipolar with psychotic tendencies. How has the service made a difference? I was able to get to my treatments, day program, go to day program, get my medications as prescribed. I might be in hospital without outpatient. What would happen if you no longer received the service? What would happen if I no longer received services through medicare and medicaid. My hospitalization may be longer, which would cost more money. I would not receive at home services to transition back into the community. Since I have been out of the hospital, I have been to day programs, which helped me transition back to work again, which helped me pay my billes and stop going to food pantry. Now I work five days a week for people with disabilities. I have a copay for my meds through medicaid. My meds would cost hundreds of dollars without medicaid. With the program, It is 3.30 copay. I have always worked when not in the hospital. I live on my own now. I used to live in a group home where there were services covered by medicaid. Five houses have been closed for people with mental illness includiing one that was meant to keep people out of the hospital. I find it frightening that funding has been cut on so many services. And, that there may be more cuts. In summary, day programs to manage meds until they are working to stabilization to control voices, paranoia, etc., copays for medicine that help control symptoms such as paranoia, voices, and other serious symptoms, visiting counselors to help people with paranoia, voices, and delusions stay in their home and manage without hospitalization and going into group, and last support to get jobs and keep jobs for people who hear voices and have paranoia. Margie P. Budd Lake, NJ You can help Easterseals raise a collective voice for people with disabilities to ensure they continue to get the services and supports they need. Donate today, sign our petition, or share your story about how Medicaid services have helped you or someone you know.
Pat D. -- Lavallette, NJ NJ-03
What Medicaid service do you or the person you know receive? I have a special needs child, Michael (37 years old) and I want to keep him at home and have a severe need to have services that will allow me to keep him home. Why do you get the service? As stated above. How has the service made a difference? Yes it has, Michael is very happy living at home with services offered to him. What would happen if you no longer received the service? He would be placed in a hospital. Pat D. Lavallette, NJ You can help Easterseals raise a collective voice for people with disabilities to ensure they continue to get the services and supports they need. Donate today, sign our petition, or share your story about how Medicaid services have helped you or someone you know.
Rose K. -- Monroe Township, NJ NJ-12
What Medicaid service do you or the person you know receive? Health care, supplies, and services Why do you get the service? Our patient is a 40 year old man, with cerebral palsy, who suffered a brain hemorrhage after birth, therefore suffering brain damage. Peter is actually like being with a 6 month old baby. He has his daily medications, He's in diapers, when we wear our gloves. He requires everything be done for him. Shaving, feeding, bathing, brushing teeth...he is in a wheel chair and is in his hospital bed, through out each and every day. We move him from one to the other, every 2 hours, except for when it's time to say goodnight. We bring him to the dentist, and his doctors when necessary. Since Pete does not walk, he is lifted when needed to move him around. We have a team of family members, 2 are Direct Support Professionals for Easter Seals, 1 part time, the other sister is full time. How has the service made a difference? We could never afford to provide everything that Pete needs to get him from one day to another. What would happen if you no longer received the service? I cannot answer this question! Could not imagine life for Peter without the help of his healthcare provider Rose K. Monroe Township, NJ You can help Easterseals raise a collective voice for people with disabilities to ensure they continue to get the services and supports they need. Donate today, sign our petition, or share your story about how Medicaid services have helped you or someone you know.
Sonja H. -- Jersey City, NJ NJ-10
What Medicaid service do you or the person you know receive? Social worker, visiting nurse, home health aid, therapy, incontinence supplies, mobility supplies doctors /specialist visits Why do you get the service? I have two special needs children who will never be able to live on their own without the help of social services and myself. How has the service made a difference? I have help with home health aid, visiting nurse and a social worker keeping me informed about service that's out there for my children. What would happen if you no longer received the service? I can no longer take care of my children without these services. Sonja H. Jersey City, NJ You can help Easterseals raise a collective voice for people with disabilities to ensure they continue to get the services and supports they need. Donate today, sign our petition, or share your story about how Medicaid services have helped you or someone you know.
Beth N. -- Asbury Park, NJ NJ-04
What Medicaid service do you or the person you know receive? I go to Program 2 days a week I live to Meant if he cuts that we will be all sitting at home Doing nothing We use it for. If health care we can't not adopts to pay for insurance because disbilty can't not afford to pay for another plan Why do you get the service? I have disabilities and Medicare and Medicare How has the service made a difference? That I can have insurance for Doctors like everyone else What would happen if you no longer received the service? I would not be able to go Rk My doctors be healthy and need to meds program Beth N. Asbury Park, NJ You can help Easterseals raise a collective voice for people with disabilities to ensure they continue to get the services and supports they need. Donate today, sign our petition, or share your story about how Medicaid services have helped you or someone you know.
BACK TO TOP New York Featured storyKier -- Easterseals New York NY-25
Kier is a 43 year old male who has been working with Easterseals since late July 2016. He was a new client with a diagnosis of mild Intellectual disability and reported significant levels of anxiety, struggling greatly with interpersonal relationships and keeping a job. In past jobs he would often become severely anxious/overwhelmed and become irritable, angry and inappropriate with other staff and superiors. He had difficulty getting along with others and communicating his thoughts. Because he was unable to effectively manage his anxiety and his other changing emotions he was routinely fired. Over the past 6-7 months, he has been consistent with therapy, he has attended appointments on time and has been able to build rapport, explore his feelings and learn to problem solve, cope with his anxiety and communicate his needs much more effectively. He has been working with a psychiatrist and has been able to find a medication regimen that helps decrease his anxiety. He also connected with a Medicaid Service Coordinator and was recently hired as a custodian at a new job. He has shown to be insightful, open to feedback and has reported a significantly reduced level of anxiety, increased mood and more positive outlook on life. He has improved his communication skills and is able to effectively express his frustrations at work. He has been doing well and is grateful for services here! You can help Easterseals raise a collective voice for people with disabilities to ensure they continue to get the services and supports they need. Donate today, sign our petition, or share your story about how Medicaid services have helped you or someone you know.
Carolyn W. -- Brooklyn, NY
What Medicaid service do you or the person you know receive? My daughter receives personal care services, as well as habilitative services funded by NYS Medicaid. Why do you get the service? My daughter has cerebral palsy. How has the service made a difference? It enables her to live at home in the community. What would happen if you no longer received the service? My daughter could end up being forced into a nursing home. Carolyn W. Brooklyn, NY You can help Easterseals raise a collective voice for people with disabilities to ensure they continue to get the services and supports they need. Donate today, sign our petition, or share your story about how Medicaid services have helped you or someone you know.
Shirley S. -- Elmira, NY NY-23
What Medicaid service do you or the person you know receive? son Deveolpmently Disabalied medicare & Medicaid Why do you get the service? no other services available traveled 100 miles one way to get it. How has the service made a difference? Helped with meds. behavior What would happen if you no longer received the service? meds. would go unmonitored Shirley S. Elmira, NY You can help Easterseals raise a collective voice for people with disabilities to ensure they continue to get the services and supports they need. Donate today, sign our petition, or share your story about how Medicaid services have helped you or someone you know.
BACK TO TOP North Carolina Featured storyAllison -- Easterseals UCP North Carolina & Virginia
AllisonAllison is a high functioning adolescent with autism. She exhibited a lot of anxiety, self harm, and challenging behaviors. She had not seen her father in years and her mother lost custody due to abuse and neglect. She was placed in therapeutic foster care, a North Carolina program funded through Medicaid where licensed therapeutic foster parents assist foster children in meeting behavioral goals through support and mental health treatment. Allison's foster parent accepted Allison's challenges and wouldn't give up. Allison was encouraged to join her school's theater arts program, which was a perfect match. Allison excelled and performed in several school plays. After a couple years in care, the social worker managed to track down Allison's father. Remarkably, the father was eager and interested in seeing her and after several months of planned visits, family therapy, shared parenting, and preparation, Allison was reunified with her father! You can help Easterseals raise a collective voice for people with disabilities to ensure they continue to get the services and supports they need. Donate today, sign our petition, or share your story about how Medicaid services have helped you or someone you know.
Angela S. -- Salisbury, NC NC-13
What Medicaid service do you or the person you know receive? I have worked with Easter Seals for 10 years and I have had the same client, with out the service my client gets they would not have the life they have now, also without the service their foster parent could have never adopted them, Why do you get the service? How has the service made a difference? They can go places with out a danger to them self and others What would happen if you no longer received the service? I would lose my job and my client would not be able to go out to their favorite places Angela S. Salisbury, NC You can help Easterseals raise a collective voice for people with disabilities to ensure they continue to get the services and supports they need. Donate today, sign our petition, or share your story about how Medicaid services have helped you or someone you know.
Debbie G. -- Manteo, NC NC-03
What Medicaid service do you or the person you know receive? Disablities medicaid Carolina Access Why do you get the service? Our lil gorl has CRS/SA Hypothyroidism How has the service made a difference? Without this service I honsetly dont know how we could afford her medical supplies alone even though we have this insurance we still pay almost 1500. a year just in cathers and anima supplies not to mention new shoes everytime she gets new SMOs or the pull ups and diapers we still need to finish a month out. What would happen if you no longer received the service? To be honset I pray I never find out, we are having it hard enough just surviving finically thes past 4.5 yrs have been the hardest I have ever been in trying to provide food clothing shelter supplies and what every else the doc says we need and go to work40 hours a week. Every lil helps us I nvr knew how hard it is for ppl with disablities and their family until now Debbie G. Manteo, NC You can help Easterseals raise a collective voice for people with disabilities to ensure they continue to get the services and supports they need. Donate today, sign our petition, or share your story about how Medicaid services have helped you or someone you know.
Elizabeth D. -- Wilmington, NC NC-07
What Medicaid service do you or the person you know receive? Innovation Waiver in NC - ABA therapy, home and community supports Why do you get the service? CP and Autism diagnosis How has the service made a difference? Please call me! What would happen if you no longer received the service? My son would be institutionalized Elizabeth D. Wilmington, NC You can help Easterseals raise a collective voice for people with disabilities to ensure they continue to get the services and supports they need. Donate today, sign our petition, or share your story about how Medicaid services have helped you or someone you know.
Jerome P. -- Charlotte, NC NC-12
What Medicaid service do you or the person you know receive? My granddaughter receives physical Therapy and surgeries Why do you get the service? She receives Medicaid for her cerebral palsy disabilities How has the service made a difference? It has made a tremendous difference in helping her to get what she needs. Without it she could not get the medical attention to her needs because our family would not be able to afford medical care for her. What would happen if you no longer received the service? It would be quite horrible, as we desperately need physical therapy and medical care for her special needs condition. Jerome P. Charlotte, NC You can help Easterseals raise a collective voice for people with disabilities to ensure they continue to get the services and supports they need. Donate today, sign our petition, or share your story about how Medicaid services have helped you or someone you know.
BACK TO TOP Ohio Featured storyShannon -- Easterseals Central and Southeast Ohio
ShannonMillions of Born with cerebral palsy, Shannon began receiving physical and occupational therapies at the age of two to help her walk, learn and take care of her personal needs— things her doctors never thought possible. Today, because of her hard work and access to Medicaid-funded services and related surgeries Shannon received through Easterseals and other Medicaid providers, Shannon is a successful high school student preparing for graduation while working part-time in the community. Her success allowed her mother, who was her full-time caregiver, to return to work. You can help Easterseals raise a collective voice for people with disabilities to ensure they continue to get the services and supports they need. Donate today, sign our petition, or share your story about how Medicaid services have helped you or someone you know.
Featured storyBen -- Easterseals Serving Greater Cincinnati OH-01
BenFor some time, Ben allowed his diagnosis of Down syndrome to hold him back. He was shy, difficult to work with, and lacked direction. When he came to Easterseals at age 24, however, support staff saw potential. They placed him in a Medicaid-funded program at the YMCA that balances paid employment and social recreation, and they worked with Ben to set goals and objectives for personal and professional growth. Within a few weeks, the hard work was paying off. His speed at tasks increased, and he became more amicable and outgoing with staff and guests. Ben performs janitorial services two days a week, and his dependable work ethic and friendliness have made Ben a much-loved part of the YMCA. You can help Easterseals raise a collective voice for people with disabilities to ensure they continue to get the services and supports they need. Donate today, sign our petition, or share your story about how Medicaid services have helped you or someone you know.
Featured storyJanet -- Easterseals Serving Greater Cincinnati OH-01
JanetJanet sang in her school choir and played guitar until a traumatic childhood accident put her in a coma. She survived, but now lives with developmental disabilities. It was a difficult adjustment and for some time she withdrew into herself and struggled to make friends. Thanks to 11 years of Medicaid-funded programs and services through Easterseals, Janet formed a strong work ethic in facility-based employment and recently transitioned to a community job at a local YMCA. The program encourages Janet to adopt healthy habits while she receives on-site job coaching and support. Janet works five days a week at the YMCA in the janitorial department, which provides welcome respite to her primary caregiver, her sister. Between work tasks, Janet can be found enthusiastically playing air guitar, humming along with her favorite songs, and laughing with her many friends. You can help Easterseals raise a collective voice for people with disabilities to ensure they continue to get the services and supports they need. Donate today, sign our petition, or share your story about how Medicaid services have helped you or someone you know.
Featured storyJulian -- Easter Seals of Mahoning, Trumbull and Columbiana Counties OH-13
JulianJulian is an Ohio teenager with severe cerebral palsy who was once non-verbal and relied solely on a wheelchair for mobility. Through Medicaid, Julian began receiving physical, occupational and speech therapies provided by Easterseals of Mahoning, Trumbull and Columbiana Counties. Today, he walks with the use of a mobility aid (gait trainer), pronounces some words and expresses himself through purposeful gestures. He has greatly improved his hand-eye coordination and has expanded his diet by eating hard textured food. Because of Medicaid services, he has exceeded numerous short-term goals and reached key milestones. His mother said that Julian wouldn't be as far as he is in life if it wasn't for these essential Medicaid services. However, Medicaid doesn't fully cover all of Julian's needs, such as year-round transportation services to help him get to his therapies. Julian's mom worries that Medicaid changes proposed on the federal level will further restrict her son's access to community services. You can help Easterseals raise a collective voice for people with disabilities to ensure they continue to get the services and supports they need. Donate today, sign our petition, or share your story about how Medicaid services have helped you or someone you know.
Julie B. -- Columbus, OH OH-03
What Medicaid service do you or the person you know receive? Wr/dd waiver provider services . Why do you get the service? My son Christopher Brandt is on Medicaid and medicaid pays for a waiver provider to work with him learning to cook,clean ,exercise ,learn laundry, being out in the community ,development ect . How has the service made a difference? My son knows more now then he did and can live better more at ease and will someday make it on his own with little support . What would happen if you no longer received the service? Christopher wouldn't be able to keep learning and growing and wouldn't be able to live on his own . I want his future to be bright and not to just be at home and not progressing .we are looking into a day program for him since he's more ready for it now with waiver mr/dd s and mr/dd waiver proverb help and will need medicaid for it . Julie B. Columbus, OH You can help Easterseals raise a collective voice for people with disabilities to ensure they continue to get the services and supports they need. Donate today, sign our petition, or share your story about how Medicaid services have helped you or someone you know.
Jay C. -- Cleveland, OH
What Medicaid service do you or the person you know receive? Medicaid home based services Why do you get the service? Aid 14 hours a week How has the service made a difference? I am a single mother with multiple sclerosis I was overwhelmed and this service has given me a helpful hand What would happen if you no longer received the service? We would fall through the cracks Jay C. Cleveland, OH You can help Easterseals raise a collective voice for people with disabilities to ensure they continue to get the services and supports they need. Donate today, sign our petition, or share your story about how Medicaid services have helped you or someone you know.
Susan P. -- Silver Lake, OH OH-14
What Medicaid service do you or the person you know receive? Independent Options Medicaid Waiver (I/O), Food Stamps and Ohio Medicaid Medical and Prescription Drug Coverage Why do you get the service? My adult son uses the I/O Medicaid Waiver to pay for his residence in a group home. He receives SSI, but his caregivers use Food Stamps to keep him well fed and to maintain a healthy diet. Ohio Medicaid is my son's medical and prescription drug coverage, which he needs to prevent seizures and be able to live a full life every day. How has the service made a difference? My son has a home to live in after my husband and I are no longer living, food in his stomach to keep him healthy and nourished, medications that he needs to be a functioning and healthy human being and medical insurance to maintain his health. What would happen if you no longer received the service? My son would not have a home to live in, food to eat, medicine that he desperately needs for his health issues and medical insurance to maintain his health! Susan P. Silver Lake, OH You can help Easterseals raise a collective voice for people with disabilities to ensure they continue to get the services and supports they need. Donate today, sign our petition, or share your story about how Medicaid services have helped you or someone you know.
BACK TO TOP Oklahoma Marcella B. -- Kansas, OK OK-02
What Medicaid service do you or the person you know receive? My medicine each month and my primary care and pain management doctors and mental health. Why do you get the service? Back disorders bipolar anxiety depression and female problems How has the service made a difference? I can't afford doctor bills or to pay for my medication I barely pay my rent and utilities from my SSI What would happen if you no longer received the service? I'd be homeless and couldn't walk couldn't sleep and have anxiety attracts and susisidal Marcella B. Kansas, OK You can help Easterseals raise a collective voice for people with disabilities to ensure they continue to get the services and supports they need. Donate today, sign our petition, or share your story about how Medicaid services have helped you or someone you know.
BACK TO TOP Oregon Shelley R. -- Eugene, OR OR-04
What Medicaid service do you or the person you know receive? We were fortunate to receive Medicaid when the exhange first opened. Why do you get the service? It was an important bridge until my two high functioning autistic children got old enough to find jobs that offered health insurance. How has the service made a difference? It made it possible to get infections treated, correct musculoskeletal imbalances. It was too late to help pay for speech therapy, social skill coaching and early occupational therapy, all things I had to pay for out of pocket while having to home school so I couldn't work to earn money to pay for these things, so the kids didn't get all the services they needed. What would happen if you no longer received the service? Medicaid remains an important safety net should their vulnerable immune systems make them too ill to maintain an expected work schedule or their challenged communication skills create a misunderstanding that gets them fired. I am now severely ill and would not be able to provide health insurance for them. Shelley R. Eugene, OR You can help Easterseals raise a collective voice for people with disabilities to ensure they continue to get the services and supports they need. Donate today, sign our petition, or share your story about how Medicaid services have helped you or someone you know.
Susie W. -- Beaverton, OR OR-01
What Medicaid service do you or the person you know receive? My daughter has MS and a special needs 15 month old with cerebral palsy and is severely disabled. She can't work full-time ashehas special care needs. Their medical needs wouldn't be possible without the help of Medicaid Why do you get the service? Disabled daughters & child How has the service made a difference? Helped keep my grand baby alive What would happen if you no longer received the service? He wouldn't survive .. Susie W. Beaverton, OR You can help Easterseals raise a collective voice for people with disabilities to ensure they continue to get the services and supports they need. Donate today, sign our petition, or share your story about how Medicaid services have helped you or someone you know.
BACK TO TOP Pennsylvania Featured storyDonald -- Easterseals Western and Central Pennsylvania PA-05
DonaldMillions of individuals with disabilities, like Donald, benefit from health care and community-based supports available through Medicaid. Donald was institutionalized at the age of 6, following a severe head injury that resulted in life-long Intellectual disability. After multiple placements within state institutions, Donald successfully transitioned to Community Programming in 1988 when he entered a Medicaid-funded residential program through Easterseals. From a poor upbringing and subsequent institutionalization, Donald had overcome countless obstacles to thrive within his community. He has gained and maintained a positive lifestyle, learned to live with his disability, secured employment within the community, and has established lasting, positive relationships; none of which would have been possible without the support services he's received through his Medicaid-funded services. Because of these supports, Donald has been able to successfully Live, Learn, Work, and Play within his community! You can help Easterseals raise a collective voice for people with disabilities to ensure they continue to get the services and supports they need. Donate today, sign our petition, or share your story about how Medicaid services have helped you or someone you know.
Featured storyBenelli, Adeline & Gunner -- Easter Seals Southeastern Pennsylvania PA-08
Benelli, Adeline and GunnerBenelli, Adeline, Gunner have Autism. At age 3, Benelli began raging and self-harming every day. She was later diagnosed with Generalized Anxiety Disorder (GAD) and Obsessive Compulsive Disorder (OCD). Adeline was also diagnosed with Attention Deficit Hyperactivity Disorder (ADHD). Because of Medicaid, the siblings have had access to critical supports, including in-home early intervention services, provided through Easterseals and other providers. Each week the siblings get a combined 13 therapies that their family's regular insurance would not cover. In addition, Medicaid has given the family access to medical specialists and a special speech device for Benelli to allow her to communicate with own set of "words". Their mother says that "without Medicaid, the basis of our special needs family would crumble." She sees hope and a bright future for her children that simply wouldn't be possible without Medicaid's early and ongoing health care and community supports. You can help Easterseals raise a collective voice for people with disabilities to ensure they continue to get the services and supports they need. Donate today, sign our petition, or share your story about how Medicaid services have helped you or someone you know.
Valerie S. -- Quakertown, PA PA-08
What Medicaid service do you or the person you know receive? My 3 grandchildren ages 2, 4, & 5 are autistic, they received and still receive therapy on a daily basis, the 2 olderest girls are in autistic support schools which have helped them so much. Easter Seals especially has helped my oldest and most severe granddaughter with everything ! Why do you get the service? They need specially trained people to help them learn how to learn and be able to socialize! How has the service made a difference? They have made great strides and do so well in school, they love going to school, even though they are non verbal you can see it in their faces! What would happen if you no longer received the service? They would regress terribly and have a hard time ever being part of our society! Valerie S. Quakertown, PA You can help Easterseals raise a collective voice for people with disabilities to ensure they continue to get the services and supports they need. Donate today, sign our petition, or share your story about how Medicaid services have helped you or someone you know.
Diane J. -- Pittsburgh, PA PA-18
What Medicaid service do you or the person you know receive? Medicaid Waiver and Medical Why do you get the service? Learning disabilities, hearing impaired and low vision. I go to a sheltered workshop that is funded by Medicaid How has the service made a difference? Purpose in my life What would happen if you no longer received the service? I would be stuck at home with nothing to do Diane J. Pittsburgh, PA You can help Easterseals raise a collective voice for people with disabilities to ensure they continue to get the services and supports they need. Donate today, sign our petition, or share your story about how Medicaid services have helped you or someone you know.
Karen M. -- Philadelphia, PA PA-02
What Medicaid service do you or the person you know receive? Waiver Why do you get the service? How has the service made a difference? Tremendously What would happen if you no longer received the service? I would not be able to work to provide for my family Karen M. Philadelphia, PA You can help Easterseals raise a collective voice for people with disabilities to ensure they continue to get the services and supports they need. Donate today, sign our petition, or share your story about how Medicaid services have helped you or someone you know.
Molly G. -- Pen Argyl, PA PA-17
What Medicaid service do you or the person you know receive? Inpatient and outpatient patient mental hospital, psychotherapy, psych rehab (day program for the severely mentally ill which I attended by riding a bus for disabled people, but I am not sure who payed for the bus), psychiatrist, psych rehab worker (to help me learn life skills at home), case worker (to help me navigate the system (finding me services, taking me to doctor's appointments, etc). I am not sure if they helped pay for my group home, some sort of county program did. For my physical problems they have payed for physical therapy, doctors, and specialists. They pay for most of my meds, as well. Why do you get the service? I am mentally ill (bipolar 1 disorder, agoraphobia, social anxiety), learning disabled, I have asperger's syndrome, and I have physical illnesses, too (fibromyalgia, stomach issues, migraines etc.). How has the service made a difference? Thanks to these services I am functioning better then I ever have. I am now attending college where I am earning a degree in social work and I am getting straight A's. I have friends. I am happy most of the time. I am no longer in a pit of anger, dispair, sadness, and lonelyness. I no longer sleep all day. I can safely drive. Psych rehab helped me get over agoraphobia and other issues. Inpatient and outpatient hospitals, along with the wonderful psychiatrist my case worker found me, have helped fix my meds. I have a life. I even do some work for NAMI (national alliance for mental illness). I am learning to do house work and improving in this area (I am still working on that with my psych rehab worker). I still have struggles, but I have a wonderful life. I have wonderful friends and family who I get along with. I go places. I see a positive future where I will hopefully be able to function without disability payments. I see myself with a career (helping others like me). What would happen if you no longer received the service? If I lost my Medicaid I would no longer have a psych rehab worker or a case worker. I would not have my psychiatrist or therapist. I would no longer have my meds. Without meds and other help I would discend back into a hell hole of mental illness. My physical health would also decline. Without Medicaid I would have no future. Molly G. Pen Argyl, PA You can help Easterseals raise a collective voice for people with disabilities to ensure they continue to get the services and supports they need. Donate today, sign our petition, or share your story about how Medicaid services have helped you or someone you know.
Terry S. -- Glenside, PA
What Medicaid service do you or the person you know receive? Just had a stay in hospital because of asthma. Saved my life. Why do you get the service? Life threatening health issues. I work , but part time because of them. How has the service made a difference? Saved my life! What would happen if you no longer received the service? I would not be able to get the medicine I need that keeps me alive. Terry S. Glenside, PA You can help Easterseals raise a collective voice for people with disabilities to ensure they continue to get the services and supports they need. Donate today, sign our petition, or share your story about how Medicaid services have helped you or someone you know.
BACK TO TOP Rhode Island Featured storyViolet -- Easterseals Rhode Island RI-02
VioletViolet was born in 2014 with a very rare form of cancer (infantile fibrosarcoma). She underwent a blood transfusion, eight rounds of chemotherapy and surgery to remove the cancer -- all before her first birthday. While she was cleared to leave the hospital, Violet would require ongoing therapies and support. Thankfully, Violet and her parents could count on Easterseals and Medicaid for these early intervention services. At nine-months, Violet started receiving physical (PT) and occupational (OT) therapies twice a week to help build and strengthen muscles in her arms, where the tumor once existed. These regular therapies helped Violet learn to crawl and, eventually, walk. Her therapy needs diminished -- first to every other week and then, eventually, dropping her PT all together to focus only on OT to enhance her fine motor skills, especially with her left hand. Today, Violet is a very active two-year-old, and is doing everything a two-year-old should be doing. She receives speech therapy twice a month but no longer needs OT or PT. Violet's mom said that the Medicaid-funded therapies have "helped her develop the tools that she needed to succeed and reach the goals we set for her." You can help Easterseals raise a collective voice for people with disabilities to ensure they continue to get the services and supports they need. Donate today, sign our petition, or share your story about how Medicaid services have helped you or someone you know.
BACK TO TOP South Carolina Featured storyColson & Andersen -- Easterseals South Carolina SC-05
Colson and AndersenColson and Andersen were both born prematurely—Colson was 12 weeks early (weighing only 2 lb. 1 oz.) while Andersen was born 11 weeks early. Both required surgeries and specialized care in the Neonatal Intensive Care Unit. Their long hospital stays and related complications caused the boys to fall behind in developmental and physical milestones. The boys' mother connected them to Medicaid Early Intervention services, which are provided in the home through Easterseals. Colson receives speech and occupational therapy. Andersen receives occupational therapy. They are working on goals like drawing circles and straight lines. Today, the South Carolina brothers are active, intelligent, loving and silly little boys you'd expect, who run, jump, play, and swim. They are readying for their next adventure: the community soccer league. You can help Easterseals raise a collective voice for people with disabilities to ensure they continue to get the services and supports they need. Donate today, sign our petition, or share your story about how Medicaid services have helped you or someone you know.
BACK TO TOP South Dakota Debra B. -- Deadwood, SD
What Medicaid service do you or the person you know receive? Needs emergency medicals help right now for himself and is honeless and starving to death right not and us not given any services or the igjt prof and at all his own life at the age of 32 ,HELP HIM PLEASE Why do you get the service? Please give Emergency Medical Services to Daniel Oliver tight now Please si he cab tell his story before e he dies plrease How has the service made a difference? He's never been given any services Pennington County Rapd City Sputh Dakota What would happen if you no longer received the service? He's gojng to die soon Debra B. Deadwood, SD You can help Easterseals raise a collective voice for people with disabilities to ensure they continue to get the services and supports they need. Donate today, sign our petition, or share your story about how Medicaid services have helped you or someone you know.
Stephanie D. -- Sioux Falls, SD
What Medicaid service do you or the person you know receive? Family support 360 program helps me get our do things Why do you get the service? I'm a person with a disability How has the service made a difference? Makes me more active in the community in doing things What would happen if you no longer received the service? Stephanie D. Sioux Falls, SD You can help Easterseals raise a collective voice for people with disabilities to ensure they continue to get the services and supports they need. Donate today, sign our petition, or share your story about how Medicaid services have helped you or someone you know.
BACK TO TOP Tennessee Featured storyDavid -- Easterseals Tennessee TN-07
DavidDavid was a reclusive, depressed, and impulsive young man who was prone to rages, as a result of his disabilities. Four years ago, David was connected to Easterseals Tennessee (ESTN) for Medicaid-funded supported living, supported employment and day services. He moved into community housing (staffed 24/7 with ESTN caregivers) and developed friendships and valuable work skills through ESTN's Day Center. David thrived in this supportive environment and soon set his sights on community employment. Through ESTN's Supported Employment Program, David received additional job training, improved his interviewing skills, and secured a volunteer work opportunity at a local humane shelter. The experience and Medicaid-funded supports paid off. David was hired at a local feed store where he works four-hour shifts, three days a week alongside an ESTN job coach. He has taken on additional occupational duties—even volunteering to be a "first call" substitute when a co-worker cannot report to work. The Medicaid-funded services that enable David to participate in the ESTN programming have empowered this young adult in the pursuit of his personal and professional harmony. David's life has changed in a big way thanks to Medicaid and Easterseals. You can help Easterseals raise a collective voice for people with disabilities to ensure they continue to get the services and supports they need. Donate today, sign our petition, or share your story about how Medicaid services have helped you or someone you know.
Melissa B. -- Oak Ridge, TN
What Medicaid service do you or the person you know receive? Insulin, physical therapy, occupational therapy, prosthetics, asthma medicine Why do you get the service? My husband has juvenile diabetes and cannot get insurance through work. My twelve-year-old son has cerebral palsy. His twin brother has asthma. How has the service made a difference? My husband receives life-saving insulin and my son receives the therapies he needs to thrive and the prosthetics to help his body function. What would happen if you no longer received the service? My husband would have to beg for insulin and my son's progress would slow or his growth would continue uncorrected causing structural pain and problems. Asthma medicine would be difficult to afford. Melissa B. Oak Ridge, TN You can help Easterseals raise a collective voice for people with disabilities to ensure they continue to get the services and supports they need. Donate today, sign our petition, or share your story about how Medicaid services have helped you or someone you know.
BACK TO TOP Texas Amanda C. -- Arlington, TX TX-06
What Medicaid service do you or the person you know receive? My twin boys both are on the Medicaid waiver program, MDCP. Why do you get the service? My identical twin. It's have a rare form of muscular dystrophy causing them to be medically fragile. Both are non verbal and non mobile and have serious respiratory challenges. One is trach and vent dependent, the other is expected to regress as well. Both have g buttons and depend on specialized formula and feeding pumps for nutrition. How has the service made a difference? Without these services, we could not afford the care required to give our boys the quality of life they deserve. Nor, could we as parents provide the care without the help of private duty nurses and respite care. We would be in debt from bills and have to quit our jobs to take care of them. What would happen if you no longer received the service? We would not be able to provide our sons with quality care. We would be not be able to pay for the medical care to sustain quality of life. I would not be able to work to pay the bills because I would have to stay home and give the medical care to medically fragile children, which means I would not be able to pay any bills and would lose everything. Loosing Medicaid essential is the worst thing that could happen. We would lose everything because we cannot afford the expenses required for my sons. Amanda C. Arlington, TX You can help Easterseals raise a collective voice for people with disabilities to ensure they continue to get the services and supports they need. Donate today, sign our petition, or share your story about how Medicaid services have helped you or someone you know.
Brandy B. -- Austin, TX TX-25
What Medicaid service do you or the person you know receive? My son has multiple special needs and receives medications, feeding tube supplies, diapers, doctors visits and therapies through Medicaid. I don't know how we would survive without Medicaid. Why do you get the service? My son has a chromosome abnormality that causes his muscles to be weak, hypothyroid, immune system is compromised, poor growth, osteopenia and many other issues. How has the service made a difference? My son is a very smart and happy boy. The services we have received have littarly been the difference between life and death for him. What would happen if you no longer received the service? We would financially not be able to take care of him due to the cost. He is my beautiful child and my whole world. There is a large possibility that he could die without services because we could not afford the feeding smut either supplies and the many doctors visits. Brandy B. Austin, TX You can help Easterseals raise a collective voice for people with disabilities to ensure they continue to get the services and supports they need. Donate today, sign our petition, or share your story about how Medicaid services have helped you or someone you know.
Mary C. -- Arlington, TX
What Medicaid service do you or the person you know receive? My granddaughter gets all of her medical care and monthly supplies, plus her DME and nursing care, through Medicaid. Why do you get the service? Kennadie is multiply disabled. She has Retts Syndrome, Epilepsy, Cerebral Palsy, Fetal Alcohol Syndrome, osteoporosis, scoliosis, plus several more issues. She is oxygen dependent, tube fed, on a pulse - ox and heart monitor, nebulizer, and Bi-pap. How has the service made a difference? I am a 70 year old grandma and there is no way I could afford her medicine or all of the other things she has to have to stay alive. She is non verbal, non mobile, and totally dependent on me and her nurses. What would happen if you no longer received the service? Between the respiratory issues and the seizures, my granddaughter would most likely die within a year or so. Mary C. Arlington, TX You can help Easterseals raise a collective voice for people with disabilities to ensure they continue to get the services and supports they need. Donate today, sign our petition, or share your story about how Medicaid services have helped you or someone you know.
Rosalinda M. -- Duncanville, TX TX-30
What Medicaid service do you or the person you know receive? Speech/ocupation services Why do you get the service? My son was 3 years old and unable to speak at his age level was behind was speaking like a 1 year old.Also was unable to do things like grab a pencil, crayon, jump was to find out my son motor skills were delayed and speach to. How has the service made a difference? Now my son is at the level were he needs to be he feels confident to play with kids his age. And is in a advance reading level. What would happen if you no longer received the service? If I didn't receive the I believe that my son would had stay behind because we are a low income family I'm a stay home mom and we wouldn't be able to afford the services.I believe that all the services that are given is a big help for the kids and family. Rosalinda M. Duncanville, TX You can help Easterseals raise a collective voice for people with disabilities to ensure they continue to get the services and supports they need. Donate today, sign our petition, or share your story about how Medicaid services have helped you or someone you know.
Gerry V. -- Mansfield, TX TX-06
What Medicaid service do you or the person you know receive? Community aide to come to house. Why do you get the service? I was trying to care for my very ill sister at home. Did not want her in nursing home. How has the service made a difference? It gave my sister some personal care. Allowed me to have some free time. What would happen if you no longer received the service? I would be on my own. She has since passed. Gerry V. Mansfield, TX You can help Easterseals raise a collective voice for people with disabilities to ensure they continue to get the services and supports they need. Donate today, sign our petition, or share your story about how Medicaid services have helped you or someone you know.
Rachel N. -- Dallas, TX
What Medicaid service do you or the person you know receive? Daily attendant and health care assistance with light housework, cleaning, sweeping. Doctor visits, imaging, Why do you get the service? severe narcolepsy, cataplexy, sleep paralysis, hypnagogic hallucinations, fibromyalgia, Rheumatoid arthritis, hepatic adenomas chronic, peripheral neuropathy, severe double carpal tunnel How has the service made a difference? living a life of dignity, survival, and esteem. What would happen if you no longer received the service? Depression and filth, unable to get out of involuntary whole body REM paralysis... I would ultimately succumb to neglectful/suicidal death. Rachel N. Dallas, TX You can help Easterseals raise a collective voice for people with disabilities to ensure they continue to get the services and supports they need. Donate today, sign our petition, or share your story about how Medicaid services have helped you or someone you know.
Trinetta C. -- Houston, TX
What Medicaid service do you or the person you know receive? Speech therapy for both of my children. Prescriptions for my daughter who needs a heart transplant as well as dental and annual well check ups. Why do you get the service? I can't afford health insurance. Taking care of my two children alone with special needs is a full time job. How has the service made a difference? Being able to receive health care without an income is a blessing. My kids wouldn't survive without it. What would happen if you no longer received the service? If these services stop, my daughter can not get her heart medicine that she needs in order to live day by day and my son would be able to get any treatment for his Autism. Trinetta C. Houston, TX You can help Easterseals raise a collective voice for people with disabilities to ensure they continue to get the services and supports they need. Donate today, sign our petition, or share your story about how Medicaid services have helped you or someone you know.
Emily B. -- Kingsland, TX TX-07
What Medicaid service do you or the person you know receive? they cut mine off. i am poverty level. this has to be a mistake! i have appealed it once. i have reapplied. i am on on SSDI, have been since '96. I WAS getting food stamps also. according to social security i make to much. on income tax, i am 180% below poverty level. Why do you get the service? disabled. How has the service made a difference? when i received medicaide to to my income, i at least had enough to have to get a hair cut and eat. i don't have enough money for gas to go to drs. someone has to take off work to take me to dr. What would happen if you no longer received the service? i can't afford anything. i need help getting my benefits back. Emily B. Kingsland, TX You can help Easterseals raise a collective voice for people with disabilities to ensure they continue to get the services and supports they need. Donate today, sign our petition, or share your story about how Medicaid services have helped you or someone you know.
BACK TO TOP Utah Featured storyJune -- Easter Seals-Goodwill Northern Rocky Mountain
JuneJune was born with a condition eventually diagnosed as Hirschsprung's Disease. The Utah toddler also has an untreatable brain disease, heart defects (requiring open heart surgery), serious motor/cognitive/speech delays, severe allergies, atopic dermatitis, and hearing and vision issues, which resulted in numerous surgeries and procedures her first two years. Both her parents worked to complete advanced degrees, but June's health resulted in substantial financial challenges for the family. Her condition required regular travel to the children's hospital, home medical supplies, increased daycare costs, among other expenses, that placed extra financial burdens on the family. Thanks to Medicaid, June accessed what she needed in treatment and services, which were provided by Easterseals in Utah. Medicaid enables people to be assisted with serious medical conditions, and her parents believe their daughter is alive and has a better life because of Medicaid. You can help Easterseals raise a collective voice for people with disabilities to ensure they continue to get the services and supports they need. Donate today, sign our petition, or share your story about how Medicaid services have helped you or someone you know.
Hope C. -- St. George, UT UT-02
What Medicaid service do you or the person you know receive? Medical, dental, vision, and hearing. Why do you get the service? To help me when in need. How has the service made a difference? Medicaid has always been there to help me. A couple of times it has been with hospital bills, like when I had an appendectomy. Recently it's been with my teeth. So I really appreciate them. What would happen if you no longer received the service? I don't even go there. I'm just very grateful for all the medical and dental coverage I get! Hope C. St. George, UT You can help Easterseals raise a collective voice for people with disabilities to ensure they continue to get the services and supports they need. Donate today, sign our petition, or share your story about how Medicaid services have helped you or someone you know.
BACK TO TOP Vermont Featured storyAbby -- Easterseals Vermont
AbbyWhen Abby was four she was moved into the foster care system after witnessing her father physically harming her mother and siblings. Initially, Abby's mom downplayed her daughter's fear of returning home and felt she was overreacting to the situation. An Easterseals Child Parent Psychotherapy (CPP) clinician worked with Abby and her mother so her mother could gain an understanding of her child's perspective. Eventually, Abby's mother left her husband and Abby became more comfortable expressing her feelings. Today, because of CPP, Abby and her mother have a shared story of their experience, loss, hope, and understanding. Eventually, Abby transitioned out of foster care and moved back home with her mother six months ago. Abby attends public school in her hometown and she and her mom are successfully rebuilding their relationship. You can help Easterseals raise a collective voice for people with disabilities to ensure they continue to get the services and supports they need. Donate today, sign our petition, or share your story about how Medicaid services have helped you or someone you know.
BACK TO TOP Virginia Featured storyKingston -- Easterseals UCP North Carolina & Virginia VA-09
KingstonKingston was born with a heart defect called hypoplastic left heart syndrome. Kingston has had two open heart surgeries with another scheduled. Because he was hospitalized for weeks after each surgery, Kingston required physical and speech therapy to catch up on key developmental milestones. These essential services were provided by Easterseals and funded through Medicaid and the Early Intervention Program in Virginia. Kingston still struggles with his speech, but with access to ongoing Medicaid services, he improves each week. Kingston's therapist works with him directly and provides his parents with ideas and tips that they can work with him at home. Kingston's future is bright because of these essential Medicaid services. You can help Easterseals raise a collective voice for people with disabilities to ensure they continue to get the services and supports they need. Donate today, sign our petition, or share your story about how Medicaid services have helped you or someone you know.
Allison K. -- Salem, VA
What Medicaid service do you or the person you know receive? Without Medicaid my autistic son, David, wouldn't have his medication and my youngest, Alex, with CP, Failure to thrive, oral motor injuries and low muscle tone wouldn't have his braces or food or be able to use his left side at all because my oldest medicine is 1000 dollars a month and my youngest medical bills and intervention for just the first 3 months of life were 60,000 dollars...he's 2 now Why do you get the service? Alex needs them to thrive....maybe not to survive but to thrive...he needs ot, PT, and speech every week just to be a one year old developmentally even though he's 2 years old How has the service made a difference? Alex is alive because of medical intervention that I couldn't afford without Medicaid. I tried to get insurance privately and as a single mom of 3 boys all with medical problems it would have been 2000 a month What would happen if you no longer received the service? Alex wouldn't be able to learn to eat or walk...he would lose all muscle tone he has, he would be wheelchair bound forever Allison K. Salem, VA You can help Easterseals raise a collective voice for people with disabilities to ensure they continue to get the services and supports they need. Donate today, sign our petition, or share your story about how Medicaid services have helped you or someone you know.
Jamie P. -- Mechanicsville, VA VA-01
What Medicaid service do you or the person you know receive? Therapeutic day treatment Psychological evaluations Psychiatric care Why do you get the service? Autism Spectrum Disorder ADHD Anxiety Disorder How has the service made a difference? My son can attend school daily. What would happen if you no longer received the service? I am too scared to think of that. Jamie P. Mechanicsville, VA You can help Easterseals raise a collective voice for people with disabilities to ensure they continue to get the services and supports they need. Donate today, sign our petition, or share your story about how Medicaid services have helped you or someone you know.
Lora W. -- Virginia Beach, VA VA-02
What Medicaid service do you or the person you know receive? In home skilled nursing with Medicaid - ID Waiver Why do you get the service? To keep my son living at home and not institutionalized How has the service made a difference? It's made us a family and it's given him a better quality of life What would happen if you no longer received the service? Our family would be torn apart Lora W. Virginia Beach, VA You can help Easterseals raise a collective voice for people with disabilities to ensure they continue to get the services and supports they need. Donate today, sign our petition, or share your story about how Medicaid services have helped you or someone you know.
BACK TO TOP Washington Featured storyPhillip -- Easterseals WashingtonWA-6
EliPhillip is a 7-year-old boy living with autism whose life has transformed because of Medicaid-funded services. As a toddler, Phillip was nonverbal, wandered, had difficulty coping, staying calm, and often found himself isolated from other children. Four years ago, Phillip’s mom feared for his future. Luckily, Phillip qualified for Medicaid and began receiving Medicaid-funded applied behavior analysis (ABA) therapies in 2013 through Easterseals Washington. These essential supports have helped Phillip to communicate, learn self-soothing and adjusting skills, and how to easily transition into new situations and places. He now engages other children of all ages, loves to leave the house, and enjoys public school because Easterseals and the Medicaid services prepared him for success. He has gone from being unable to tolerate a TV or the sound of someone's voice, to going to rock concerts and engaging people daily in a short time. The services have also meant that Phillip’s mom can work and provide for her family. “There is no way I could have gotten him the help he needed without Medicaid,” Phillip’s mom said. “If these services were cut or eliminated, I would fear for Phillip’s future all over again.” You can help Easterseals raise a collective voice for people with disabilities to ensure they continue to get the services and supports they need. Donate today, sign our petition, or share your story about how Medicaid services have helped you or someone you know.
Brandy R. -- Bremerton, WA WA-06
What Medicaid service do you or the person you know receive? Respite Why do you get the service? Because taking care of a special needs child can.literally wear you down and when you refuse to give up your own life starts to hang in the balance as well. Its a scary roller coaster. One that any mother like myself would never jump off, but ride even through the fears and unknown territory. How has the service made a difference? It has helped me regain control.of my own health. Allowed me to regain mental health as well as physical. What would happen if you no longer received the service? It could cost me my life because the one thing I would never stop.doing regardless of the outcome is be a mother. Be a voice for my children. Fight for them and their needs and always put them before myself. Brandy R. Bremerton, WA You can help Easterseals raise a collective voice for people with disabilities to ensure they continue to get the services and supports they need. Donate today, sign our petition, or share your story about how Medicaid services have helped you or someone you know.
Linda S. -- Spanaway, WA WA-10
What Medicaid service do you or the person you know receive? Disability for autism and sensory disorder. My grandchild receives speech therapy, occupational therapy, and motor skills therapy. Why do you get the service? He has cognitive behavior and needs extensive therapy to communicate and have the education he needs for his future. He needs to learn new skills with special trained educators in a social setting with a daily structured schedule to maintain a functional lifestyle. How has the service made a difference? It has made a huge significant difference in his life. He feels more sincere, understood and valued as a person. He is more communicative, less frustrated, less melt downs, happier as a whole. His confidence is stronger and his words are much more understood and clearer every day. What would happen if you no longer received the service? I believe my grandson would seriously have a major set back in all areas in his life. It is vital that a child diagnosed with autism spectrum behavior to have the special education necessary for their daily growth and a brighter future. Linda S. Spanaway, WA You can help Easterseals raise a collective voice for people with disabilities to ensure they continue to get the services and supports they need. Donate today, sign our petition, or share your story about how Medicaid services have helped you or someone you know.
James B. -- Port Angeles, WA WA-06
What Medicaid service do you or the person you know receive? My daughter is a survived of a gunshot wound to her head. She had to have the initial surgery, extensive follow up care, her right eye was removed, and she continues to take many medications to manage her mental health and seizures. Why do you get the service? The hospital initiated the process and by the time she was discharged, she was a patient under the care of Medicare and Medicaid. How has the service made a difference? My daughter had this happen when she was twenty-five years old. Just getting started in her career. She is obviously on lifetime disability. She had no way of paying for the carether that she received then or continues to receive now, ten years later. Get story is a contributing factor in the community. Where would out community be without her to tell it? What would happen if you no longer received the service? When Jenna doesn't get her medications every dose missed leads to increased pain, depression, and increased risk of seizure. James B. Port Angeles, WA You can help Easterseals raise a collective voice for people with disabilities to ensure they continue to get the services and supports they need. Donate today, sign our petition, or share your story about how Medicaid services have helped you or someone you know.
Amie S. -- Tacoma, WA WA-09
What Medicaid service do you or the person you know receive? I have a son who receives CFC (personal care) services and IFS waiver services through DDA on a Medicaid Waiver. Why do you get the service? J was born with autism and as he has aged developed allergies, asthma, and seizures. Additionally he has behavioral issues and when he was diagnosed rates were only 1 in 500 for children with Autism. We spent over 12 years on the waiting list for help with services. J currently receives help for personal care, and waiver services for respite. How has the service made a difference? Services have made a huge difference for our family and keeping our child in the home. As parents in order to pay medical bills and meet the needs of our children we both have had to work outside of the home. This for families is a huge issue when you have special need kids. One of us always worked graveyards and the other days in order to accommodate child care and medical needs. Because of this we began to develop our own medical issues from being sleep deprived and having no respite in caregiving. Having waiver services alone has made it so we can have a more normal schedule and have the care we need for our child to get him out doing things he loves which has caused a decrease in behavior. For personal care as he has become a teenager, this has allowed him to develop a relationship with a caregiver and so it has increased his independence towards doing things more on his own then relying on mom and dad and having the embarrassment that comes with being a teenager and needing help. Medicaid has additionally helped to cover copays for medical which has been a huge relief to our family as we don't have to struggle between buying food and paying the doctors every time the kids get sick. What would happen if you no longer received the service? Without services our family would be in jeopardy, one parent would have to modify a schedule or else stay home and be unable to work. This also would affect the ability to create the life that we would like our son to have and to erase many of those community connections that are being established and will be important as J transitions from school to the community setting. Amie S. Tacoma, WA You can help Easterseals raise a collective voice for people with disabilities to ensure they continue to get the services and supports they need. Donate today, sign our petition, or share your story about how Medicaid services have helped you or someone you know.
BACK TO TOP West Virginia Olivia O. -- Weirton, WV WV-01
What Medicaid service do you or the person you know receive? Easter Seals has been a very important part of our family for many years. Our local Easter Seals has been very supportive for our daughter, Jennifer. Dr. Kitts has been a true blessing because of our daughter's health problems. She is the one that found out that our daughter has problems with her feet and assisted with Medicaid to get her fittings for her shoes in the past. She keeps a close eye on her scoliosis and Medicaid has helped cover the services. THIS YEAR MEDICAID DENIED SERVICES FOR HER NEW FITTINGS, BUT THEY WERE NEEDED. Why do you get the service? Jennifer is physically handicapped & Easter Seals & Medicaid have helped her lead a better life. How has the service made a difference? She is been given quality of LIFE. What would happen if you no longer received the service? What would you do if Medicaid no longer helped your child. Medicaid needs to contact families like ours & have Congress hear our stories in PERSON. MY SAYING FOR MANY YEARS HAS BEEN THAT NO ONE KNOWS WHAT GOES ON BEHIND CLOSED DOORS. OUR DAUGHTER WOULD REALLY BE STRUGGLING IF IT WASN'T FOR DR KITTS OF EASTER SEALS IN WHEELING, WV & FOR MEDICAID. SERVICES HAVE BEEN GETTING TIGHT WITH MEDICAID & CONGRESS NEEDS TO HEAR FROM FAMILIES LIKE US THAT NEED TO KEEP GETTING THE SERVICES FOR QUALITY OF LIFE. Olivia O. Weirton, WV You can help Easterseals raise a collective voice for people with disabilities to ensure they continue to get the services and supports they need. Donate today, sign our petition, or share your story about how Medicaid services have helped you or someone you know.
Rachel T. -- Weirton, WV WV-01
What Medicaid service do you or the person you know receive? My son receives services through medicaid waiver. He receives Residential Habitation . Positive Behavior Support, Respite, and Case management. Why do you get the service? Autism, ADHD, Disruptive Behavior Disorder ,Anxiety, Microcephaly , and MR How has the service made a difference? My sons behaviors was so severe that he had to have a 1:1 teacher and his own classroom because he was in such distress that he became violent to others and himself. Now he is in a special education classroom with many children ,he also participates in regular education programs for inclusion and he is now an active in his community. Without services ,I fear he would not be able to live at home. What would happen if you no longer received the service? We would not be able to keep at home because without the behavior support we would no longer receive help identifying what his behaviors are indicators of. We could no afford to hire child care to even go shopping ,plus it gives us piece of mind and reduces stress knowing we can turn to his team for help. Rachel T. Weirton, WV You can help Easterseals raise a collective voice for people with disabilities to ensure they continue to get the services and supports they need. Donate today, sign our petition, or share your story about how Medicaid services have helped you or someone you know.
Randa A. -- Hurricane, WV WV-02
What Medicaid service do you or the person you know receive? After 6years of agony finally I have Medicaid and they really made a difference in my life My daughter she is 25 years now we came here and she got her green card ð'³ but no way she can get any help because she is not a citizen I waited all these years it was the most worth years ever in our life no help no one to help me taking care of her even to give her a bath ð"' some time she stayed lik 20days or one month without having a bath because of my back I injured my back ,and I did my ear surgery and I told please I need some to take care of her because my doctor told me I can't lift her fo weeks I have a daughter outside the country I begged them just if she get a visa and she will help me ,but no one care at last my daughter came and took care of her sister guess what every six month I have to pay ð'° 500dollars for extended visa after all they said she have to leave and I have to do my other ear but she left for a place she have no family there because all her family member they are herein America and I apply for and I begged so she can stay here and waiting for her papers her ,no respond if it's like no one care ,but when I got my Medicaid they sending me people for her but no one can help me to wash her till today I can't give her a bath ð"' still I have to wait till I pray god for my strength to give her a Nathan's I'm with her 24/7if I want to go any where I have to take her with me .fatouma is a premature baby her diagnosis is cpthats why she is handicap she can't do any thing I have to do every thing by my self the sad ð­ part when she is itching she will call me at night wake me up only for scratch her legs or hands what can I say .fatouma was born on march 23-1992,march23-2017fatouma get approved for her citizen ship and first of may she will become American citizens she has a home ð¡ now before fatouma has no home like no country because they took her country fatouma is a refugee,but now she has a country she will love â?ï? this is my story and I was brief!!! Why do you get the service? Ecause fatouma need the services How has the service made a difference? A little bit not much! What would happen if you no longer received the service? Really it won't make any difference because I can't get all the services because I'm on waiting list for weavers my rank is 570 so I have to wait five years so fatouma she can have all her rights In services Randa A. Hurricane, WV You can help Easterseals raise a collective voice for people with disabilities to ensure they continue to get the services and supports they need. Donate today, sign our petition, or share your story about how Medicaid services have helped you or someone you know.
BACK TO TOP Wisconsin Featured storyKavi -- Easterseals Southeast Wisconsin WI-04
KaviKavi was born with what doctors thought was just low muscle tone. He started physical and occupational therapy when he was 4 months old through the Medicaid-funded Birth to Three program at Easterseals. One month prior to Kavi's first birthday, he was diagnosed with X-linked Myotubal Myopathy, a rare muscular disorder. His prognosis was that he would never walk, talk or even be able to eat. Kavi's parents were told the disorder could even be fatal. However, knowing that he was able to receive the needed Medicaid funded therapy services of occupational, physical and speech therapy, Kavi and his family were provided with the tools, resources and supports that helped him master typical activities that others thought would not be possible. Kavi "graduated" from Birth to Three and now receives outpatient therapy services, also funded through Medicaid. Because of these services, Kavi, now 5, is able to walk on his own, talks non-stop, is eating, swimming and loves playing with his brothers and sisters. There is more work that needs to be done, but—through the availability of Medicaid supported services—Kavi will continue to exceed everyone's expectations. You can help Easterseals raise a collective voice for people with disabilities to ensure they continue to get the services and supports they need. Donate today, sign our petition, or share your story about how Medicaid services have helped you or someone you know.
Chris S. -- Milwaukee, WI WI-04
What Medicaid service do you or the person you know receive? Supportive Home Care Why do you get the service? My nephew has been a paraplegic for over 40 years. Richard's health issues have increased over time and due to very fragile skin he is often on bed rest. He fractured his legs a few years ago trying to shower without assist and now is fearful to do this by himself. How has the service made a difference? Supportive Home Care allows him to live independently in his own trailer in northern Wisconsin. He has no natural supports so this SHC is all he has What would happen if you no longer received the service? If his supportive home care ends he will need to be admitted to a nursing home for long term care. He has told me "he would rather die" Richard's supportive home care gives him quality of life and the freedom to be in his own home. Please do not take away his independence and his will to live, Chris S. Milwaukee, WI You can help Easterseals raise a collective voice for people with disabilities to ensure they continue to get the services and supports they need. Donate today, sign our petition, or share your story about how Medicaid services have helped you or someone you know.
Michelle T. -- Mukwonago, WI WI-01
What Medicaid service do you or the person you know receive? I receive Medicaid services. Why do you get the service? Because I really need it for my services and health insurance How has the service made a difference? Make me more independent What would happen if you no longer received the service? I will maybe have to stay with my parents. Michelle T. Mukwonago, WI You can help Easterseals raise a collective voice for people with disabilities to ensure they continue to get the services and supports they need. Donate today, sign our petition, or share your story about how Medicaid services have helped you or someone you know.
Sonja O. -- Cudahy, WI WI-04
What Medicaid service do you or the person you know receive? WI Katie Beckett Program Why do you get the service? Autism Spectrum Disorder (my son is 12 years old) How has the service made a difference? It allows him to receive services (despite income) that I normally would not be able to afford. What would happen if you no longer received the service? He would not get the help he needs. (Behavioral, emotional, etc.) Sonja O. Cudahy, WI You can help Easterseals raise a collective voice for people with disabilities to ensure they continue to get the services and supports they need. Donate today, sign our petition, or share your story about how Medicaid services have helped you or someone you know.
Vincent A. -- Milwaukee, WI WI-04
What Medicaid service do you or the person you know receive? Medicaid and Badger Care Why do you get the service? Learning disability How has the service made a difference? Greater life experience What would happen if you no longer received the service? Life experience suffers Vincent A. Milwaukee, WI You can help Easterseals raise a collective voice for people with disabilities to ensure they continue to get the services and supports they need. Donate today, sign our petition, or share your story about how Medicaid services have helped you or someone you know.
BACK TO TOP Wyoming Featured storyJay -- Easter Seals Wyoming
JayJay, age 40, has seen his health and mental abilities decline for several years. Jay's condition is such that he often takes minutes to form a verbal response to simple requests. Jay participated in Medicaid-funded day activities through Easterseals and was once physically active and quite mobile. Now, Jay requires hands-on assistance to help him eat, walk even short distances, or use the restroom. Last fall his mother made a difficult decision to transfer one-third of his waiver units to support his unmet home needs. The change has resulted in Jay being more isolated at home since his waiver plan has failed to keep pace with his needs—which have at least tripled in the past year. The number of units authorized in his Medicaid waiver plan is less than 1/3rd of what is needed to adequately care for Jay and ensure his safety. For example, Jay requires 1:1 staffing at all times, yet is only authorized for 3:1 staffing. Easterseals has funded the gap in Jay's service plan this year at an estimated loss of $13,850. Additional restrictions to Medicaid services or reduced funding will further limit access to essential services for Jay and other individuals with disabilities. You can help Easterseals raise a collective voice for people with disabilities to ensure they continue to get the services and supports they need. Donate today, sign our petition, or share your story about how Medicaid services have helped you or someone you know.
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